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Speaking of Love: Stella

Thursday, January 31, 2013. Clique aqui para a versão em Português. In this blog you will find many stories we have been experiencing as Stella's parents. Here we intend to talk about things we've learned during our journey, even though painful sometimes, but surely full of happiness and blessings all the way. Our primary goal is share with our family and friends all about our daily routine, tests, research progress, and how she fight her way through all the Aicardi Syndrome related challenges. The progn...

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Speaking of Love: Stella | speakingoflovestella.blogspot.com Reviews

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Thursday, January 31, 2013. Clique aqui para a versão em Português. In this blog you will find many stories we have been experiencing as Stella's parents. Here we intend to talk about things we've learned during our journey, even though painful sometimes, but surely full of happiness and blessings all the way. Our primary goal is share with our family and friends all about our daily routine, tests, research progress, and how she fight her way through all the Aicardi Syndrome related challenges. The progn...

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6 5 months old

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Speaking of Love: Stella | speakingoflovestella.blogspot.com Reviews

https://speakingoflovestella.blogspot.com

Thursday, January 31, 2013. Clique aqui para a versão em Português. In this blog you will find many stories we have been experiencing as Stella's parents. Here we intend to talk about things we've learned during our journey, even though painful sometimes, but surely full of happiness and blessings all the way. Our primary goal is share with our family and friends all about our daily routine, tests, research progress, and how she fight her way through all the Aicardi Syndrome related challenges. The progn...

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speakingoflovestella.blogspot.com

1

Speaking of Love: Stella: Pregnancy

http://www.speakingoflovestella.blogspot.com/2013/01/pregnancy.html

Thursday, January 31, 2013. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be.". Psalms 139. 14-16. I never imagined that I would give birth someday to redhead children, then I had already. We spent the Christma...

2

Speaking of Love: Stella: Aicardi Syndrome

http://www.speakingoflovestella.blogspot.com/2013/01/aicardi-syndrome.html

Thursday, January 31, 2013. Aicardi syndrome is a very rare genetic disorder that affects only girls. It is not inherited from the parents, ie, it is not something that comes from the mother or father. It is a mutation acquired by children during their formation in the womb, and no one can predict when it will happen. In the U.S. there is an Aicardi Foundation, which holds conferences every two years. The next is scheduled for 2014. There is also an American website ( http:/ www.aicar...

3

Speaking of Love: Stella: About this blog

http://www.speakingoflovestella.blogspot.com/2013/01/about-this-blog.html

Thursday, January 31, 2013. Clique aqui para a versão em Português. In this blog you will find many stories we have been experiencing as Stella's parents. Here we intend to talk about things we've learned during our journey, even though painful sometimes, but surely full of happiness and blessings all the way. Our primary goal is share with our family and friends all about our daily routine, tests, research progress, and how she fight her way through all the Aicardi Syndrome related challenges.

4

Speaking of Love: Stella: January 2013

http://www.speakingoflovestella.blogspot.com/2013_01_01_archive.html

Thursday, January 31, 2013. Clique aqui para a versão em Português. In this blog you will find many stories we have been experiencing as Stella's parents. Here we intend to talk about things we've learned during our journey, even though painful sometimes, but surely full of happiness and blessings all the way. Our primary goal is share with our family and friends all about our daily routine, tests, research progress, and how she fight her way through all the Aicardi Syndrome related challenges. The progn...

5

Speaking of Love: Stella: Birth

http://www.speakingoflovestella.blogspot.com/2013/01/birth.html

Thursday, January 31, 2013. From birth I was cast on you; from my mother's womb you have been my God.". May 4th, 2012. Sunny Friday. Full house: full of people, gifts, and hope. All prepared. Some things being fixed in the last minute, but finally all set! We all went to São Paulo in two cars. The delivery would be at Pro Matre maternity and it was scheduled for 01:00 PM. As I am describing, I can feel again the excitement of that day and, honestly, I thought it would be easier to write about it. Her fea...

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Speaking of Love: Stella

Thursday, January 31, 2013. Clique aqui para a versão em Português. In this blog you will find many stories we have been experiencing as Stella's parents. Here we intend to talk about things we've learned during our journey, even though painful sometimes, but surely full of happiness and blessings all the way. Our primary goal is share with our family and friends all about our daily routine, tests, research progress, and how she fight her way through all the Aicardi Syndrome related challenges. The progn...

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