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spinabifidaassociation.org

Spina Bifida Association

Make a Monthly Donation. Gifts in Honor or Memory. Support Events & Participants. 100 Ways for SB. Give at the Office. Become a Corporate Sponsor. Make a Planned Gift. SB and the Spine. Tweens & Teens. 100 Ways for SB. SB Parents FB Group. SB Tween2Teen FB Group. SB Adults FB Group. SB Latino FB Group. Support SBA every time you shop, at no cost to you. Make a Planned Gift. Supporting the SB Community. August 15 @ 9:00 am. August 22 @ 8:45 am.

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CONTACTS AT SPINABIFIDAASSOCIATION.ORG

Spinabifida Association

Cindy Brownstein

4590 Mac●●●●●●●●lvd., NW

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Spinabifida Association

Cindy Brownstein

4590 Mac●●●●●●●●lvd., NW

Was●●●ton , DC, 20007-4226

US

1.20●●●●3285
1.70●●●●8490
da●●●●@dabnet.net

View this contact

Spinabifida Association

Cindy Brownstein

4590 Mac●●●●●●●●lvd., NW

Was●●●ton , DC, 20007-4226

US

1.20●●●●3285
1.70●●●●8490
da●●●●@dabnet.net

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Make a Monthly Donation. Gifts in Honor or Memory. Support Events & Participants. 100 Ways for SB. Give at the Office. Become a Corporate Sponsor. Make a Planned Gift. SB and the Spine. Tweens & Teens. 100 Ways for SB. SB Parents FB Group. SB Tween2Teen FB Group. SB Adults FB Group. SB Latino FB Group. Support SBA every time you shop, at no cost to you. Make a Planned Gift. Supporting the SB Community. August 15 @ 9:00 am. August 22 @ 8:45 am.
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Spina Bifida Association | spinabifidaassociation.org Reviews

https://spinabifidaassociation.org

Make a Monthly Donation. Gifts in Honor or Memory. Support Events & Participants. 100 Ways for SB. Give at the Office. Become a Corporate Sponsor. Make a Planned Gift. SB and the Spine. Tweens & Teens. 100 Ways for SB. SB Parents FB Group. SB Tween2Teen FB Group. SB Adults FB Group. SB Latino FB Group. Support SBA every time you shop, at no cost to you. Make a Planned Gift. Supporting the SB Community. August 15 @ 9:00 am. August 22 @ 8:45 am.

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spinabifidaassociation.org spinabifidaassociation.org
1

Adults – spinabifidaassociation.org

http://spinabifidaassociation.org/adults

Make a Monthly Donation. Gifts in Honor or Memory. Support Events & Participants. 100 Ways for SB. Give at the Office. Become a Corporate Sponsor. Make a Planned Gift. SB and the Spine. Tweens & Teens. Another Way to Go. Living Well with SB. 100 Ways for SB. Walk-N-Roll for Spina Bifida. SB Adults FB Group. SB Latino FB Group. SB Parents FB Group. SB Tween2Teen FB Group. Make a Monthly Donation. Gifts in Honor or Memory. Support Events & Participants. 100 Ways for SB. Give at the Office. SB and the Spine.

2

Scholarships – spinabifidaassociation.org

http://spinabifidaassociation.org/find-support/scholarships

Make a Monthly Donation. Gifts in Honor or Memory. Support Events & Participants. 100 Ways for SB. Give at the Office. Become a Corporate Sponsor. Make a Planned Gift. SB and the Spine. Tweens & Teens. Another Way to Go. Living Well with SB. 100 Ways for SB. Walk-N-Roll for Spina Bifida. SB Adults FB Group. SB Latino FB Group. SB Parents FB Group. SB Tween2Teen FB Group. Make a Monthly Donation. Gifts in Honor or Memory. Support Events & Participants. 100 Ways for SB. Give at the Office. SB and the Spine.

3

Clinics – spinabifidaassociation.org

http://spinabifidaassociation.org/clinics

Make a Monthly Donation. Gifts in Honor or Memory. Support Events & Participants. 100 Ways for SB. Give at the Office. Become a Corporate Sponsor. Make a Planned Gift. SB and the Spine. Tweens & Teens. Another Way to Go. Living Well with SB. 100 Ways for SB. Walk-N-Roll for Spina Bifida. SB Adults FB Group. SB Latino FB Group. SB Parents FB Group. SB Tween2Teen FB Group. Make a Monthly Donation. Gifts in Honor or Memory. Support Events & Participants. 100 Ways for SB. Give at the Office. SB and the Spine.

4

SB University – spinabifidaassociation.org

http://spinabifidaassociation.org/resources/sb-university

Make a Monthly Donation. Gifts in Honor or Memory. Support Events & Participants. 100 Ways for SB. Give at the Office. Become a Corporate Sponsor. Make a Planned Gift. SB and the Spine. Tweens & Teens. Another Way to Go. Living Well with SB. 100 Ways for SB. Walk-N-Roll for Spina Bifida. SB Adults FB Group. SB Latino FB Group. SB Parents FB Group. SB Tween2Teen FB Group. Make a Monthly Donation. Gifts in Honor or Memory. Support Events & Participants. 100 Ways for SB. Give at the Office. SB and the Spine.

5

spinabifidaassociation.org

http://spinabifidaassociation.org/site/c.evKRI7OXIoJ8H/b.8028963/k.BE67/Home.htm

Make a Monthly Donation. Gifts in Honor or Memory. Support Events & Participants. 100 Ways for SB. Give at the Office. Become a Corporate Sponsor. Make a Planned Gift. SB and the Spine. Tweens & Teens. Another Way to Go. Living Well with SB. 100 Ways for SB. Walk-N-Roll for Spina Bifida. SB Adults FB Group. SB Latino FB Group. SB Parents FB Group. SB Tween2Teen FB Group. Make a Monthly Donation. Gifts in Honor or Memory. Support Events & Participants. 100 Ways for SB. Give at the Office. SB and the Spine.

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& We’re Back! | The Rhema Miracle

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038; We’re Back! Momma and Rhema Beautified! It’s been a MONTH since I’ve last been able to do a post! Yes, we’ve been a little busy! Momma began a small part time job, which turned into a brief stent of a FULL time job when my boss broke his foot! Nothing like being thrown into the deep end three weeks into a new, small, part time gig and then BAM! You are needed full time for about 5 weeks! Met some wonderful folks and am all jazzed up to learn more! For now let me say Rhema is doing over all fine; she...

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Jonathan's Journey: September 2011

http://thompson-six.blogspot.com/2011_09_01_archive.html

MEANING of JONATHAN: "God has given; gift of God". Monday, September 26, 2011. Today Jonathan tried to feed from the bottle for the first time! Day 15 in the hospital. He has to lay on his belly still, so the OT brought a bottle that we could use to feed him from the side. She was watching to see how well he sucks and swallows the milk. He did a great job for his first try! He ate one whole ounce! Sunday, September 25, 2011. We are sitting here two weeks past Jonathan's delivery! The next week of his lif...

thompson-six.blogspot.com thompson-six.blogspot.com

Jonathan's Journey: August 2011

http://thompson-six.blogspot.com/2011_08_01_archive.html

MEANING of JONATHAN: "God has given; gift of God". Thursday, August 18, 2011. And through those prayers, we received peace and sleep and direction and countless other things. The folks at Vandy probably think we are crazy! At least, that's what I was sitting there thinking! So, we left with smiles on our faces and I'm convinced they think something is wrong with us. After all the dust settled, we found ourselves in SC close to family with a wonderful local church (and house! Wednesday, August 3, 2011.

thompson-six.blogspot.com thompson-six.blogspot.com

Jonathan's Journey: August 2012

http://thompson-six.blogspot.com/2012_08_01_archive.html

MEANING of JONATHAN: "God has given; gift of God". Sunday, August 19, 2012. A Day in the Life of Jonathan. Every day when I wake up, Mommy feeds me. I’m pretty picky about new textures, so I still prefer to eat mostly from her. She doesn’t even try to feed me breakfast because I don’t take to it very well. After I eat, sometimes she gives me a sponge bath because it’s much easier than getting into the water. This can make baths very interesting, so I think she prefers to just sponge me off right now.

thompson-six.blogspot.com thompson-six.blogspot.com

Jonathan's Journey: Children are a Blessing from the Lord...

http://thompson-six.blogspot.com/2013/01/children-are-blessing-from-lord.html

MEANING of JONATHAN: "God has given; gift of God". Tuesday, January 1, 2013. Children are a Blessing from the Lord. Subscribe to: Post Comments (Atom). At 18 weeks in utero, Jonathan was diagnosed with Spina Bifida and Hydrocephalus. He joined our family on September 12, 2011 and we have all been richly blessed by his life! That he will respond to PT and strengthen his arms, torso, and neck. That his bladder and kidney will remain "kind" to him. What we're listening to. Recreation by Steven Curtis Chapman.

thompson-six.blogspot.com thompson-six.blogspot.com

Jonathan's Journey: January 2013

http://thompson-six.blogspot.com/2013_01_01_archive.html

MEANING of JONATHAN: "God has given; gift of God". Tuesday, January 1, 2013. Children are a Blessing from the Lord. Happy New Year (and belated Merry Christmas)! As I sit here, one hour away from 2013- a new year- I'm torn with so many mixed emotions. I'm deeply thankful for the Lord's provision in 2012. He has taken us on quite a journey of faith! Given everything we've been through, our family is doing well. We long to be doing so much better, moving out of survival mode and into thriving mode! When I ...

thompson-six.blogspot.com thompson-six.blogspot.com

Jonathan's Journey: Email Updates 2011

http://thompson-six.blogspot.com/p/email-updates.html

MEANING of JONATHAN: "God has given; gift of God". November 17, 2011. Despite having a very bad cold make its rounds through our family, we have much to be thankful for this week! Tuesday’s appointment with our neurosurgeon went very well. When he took the dressing off Jonathan’s back, his word was, “Wow! It was very sweet. He loves being around people. This time upright will allow the shunt to work properly and begin draining more of the fluid from his head. Of course, we are anxious to see ...Please co...

thompson-six.blogspot.com thompson-six.blogspot.com

Jonathan's Journey: July 2012

http://thompson-six.blogspot.com/2012_07_01_archive.html

MEANING of JONATHAN: "God has given; gift of God". Tuesday, July 24, 2012. Hi-a-tus "An interruption in time or continuity: break; especially: a period when something (as a program or activity) is suspended or interrupted". I'm talking about living. With our precious son who brings a whole new reality to our family. And living. In a state of change while we await the next step for our family. And living. And much has happened in our family since the end of March. Jonathan went back into the hospital ...

fortheloveofelly.blogspot.com fortheloveofelly.blogspot.com

For the love of Elly: Our Journey living with Spina Bifida: July 2012

http://fortheloveofelly.blogspot.com/2012_07_01_archive.html

For the love of Elly: Our Journey living with Spina Bifida. Friday, July 13, 2012. Our appointment yesterday went great. To date Elly has not had any shunt revision, he incision looks great, and has not suffered any developmental delays. Though she is not able to walk yet, the Doctors anf physical therapist are optimistic that she will in the near future. Yes, there's still the chance that she won't but I am choosing to look at this as a glass half full sort of situation. Subscribe to: Posts (Atom).

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Spina Bifida Association

Make a Monthly Donation. Gifts in Honor or Memory. Support Events & Participants. 100 Ways for SB. Give at the Office. Become a Corporate Sponsor. Make a Planned Gift. SB and the Spine. Tweens & Teens. 100 Ways for SB. SB Parents FB Group. SB Tween2Teen FB Group. SB Adults FB Group. SB Latino FB Group. Support SBA every time you shop, at no cost to you. Make a Planned Gift. Supporting the SB Community. August 15 @ 9:00 am. August 22 @ 8:45 am.

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