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Spastic Quadriplegic Cerebral Palsy

Tuesday, May 12, 2015. Our Spastic Quad CP son in Macclaren Major stroller. I like to make sure things will work before ai spend big money on them. I'm working on buying accessories so he can sit in the stroller without the tomato seat. His head just above the back rest of the stroller when sitting in it without the seat. Saturday, April 11, 2015. About to check out Eye Gaze and found an Awesome Tooth Brush. I'm going to buy 1 very soon. Special needs tooth brush. Wheel chair ramp hitch. I bought this fo...

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Spastic Quadriplegic Cerebral Palsy | sqcp.blogspot.com Reviews

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Tuesday, May 12, 2015. Our Spastic Quad CP son in Macclaren Major stroller. I like to make sure things will work before ai spend big money on them. I'm working on buying accessories so he can sit in the stroller without the tomato seat. His head just above the back rest of the stroller when sitting in it without the seat. Saturday, April 11, 2015. About to check out Eye Gaze and found an Awesome Tooth Brush. I'm going to buy 1 very soon. Special needs tooth brush. Wheel chair ramp hitch. I bought this fo...

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3 medical equipment

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5 blended diet

6 our little jacob

7 posted by

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Spastic Quadriplegic Cerebral Palsy | sqcp.blogspot.com Reviews

https://sqcp.blogspot.com

Tuesday, May 12, 2015. Our Spastic Quad CP son in Macclaren Major stroller. I like to make sure things will work before ai spend big money on them. I'm working on buying accessories so he can sit in the stroller without the tomato seat. His head just above the back rest of the stroller when sitting in it without the seat. Saturday, April 11, 2015. About to check out Eye Gaze and found an Awesome Tooth Brush. I'm going to buy 1 very soon. Special needs tooth brush. Wheel chair ramp hitch. I bought this fo...

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sqcp.blogspot.com

1

Spastic Quadriplegic Cerebral Palsy: Blended Diet

http://www.sqcp.blogspot.com/p/blended-diet.html

My son does not tolerate in commercialized formula well we have tried a few with no success. He originally ate by mouth after he left the NICU. He was on Enfamil EnfaCare is a milk-based, 22-Cal/fl oz formula and breast milk until he was 1. When he was 10 month old he had a g-tube placed. He started projectile vomiting shortly after he left the hospital. When he was 1 we switched him to PediaSure. We tried this for 4 or 5 months he vomited more than he kept it down. Stage 2 baby food:. Bragg Organic Raw ...

2

Spastic Quadriplegic Cerebral Palsy: How to Convert Zevex Infinity Pump bag for gravity feeding

http://www.sqcp.blogspot.com/2014/04/how-to-convert-zevex-infinity-pump-bag.html

Saturday, April 19, 2014. How to Convert Zevex Infinity Pump bag for gravity feeding. I took all this info from http:/ agirlandhertube.blogspot.com/2011/08/how-to-use-zevex-enteralite-infinity.html? M=1 just decided I would try it out and repost for those searching for a solution like this. Very clever for anyone that needs to gravity feed in a pinch when a pump had no way to charge or breaks. Subscribe to: Post Comments (Atom). My son has spastic quadriplegic cerebral palsy.

3

Spastic Quadriplegic Cerebral Palsy: Medical Equipment

http://www.sqcp.blogspot.com/p/medical-equipment.html

I thought I would make a list of what my son uses on a daily bases past and current and what we think about it. Many of these images were taken from website and google search*. The Rifton Toddler Chair is designed to encourage normal sitting posture. It has adjustments for varying degrees of abduction and knee flexion. The Toddler Chair is designed for use indoors on level, dry surfaces. Http:/ www.rifton.com/products/sitting/toddlerchairs/. Taken from the website: www.charleywrap.com. Every aspect of th...

4

Spastic Quadriplegic Cerebral Palsy: March 2013

http://www.sqcp.blogspot.com/2013_03_01_archive.html

Sunday, March 31, 2013. Andrew, Ava, Hannah, and Jacob. My surviving triplets :-) We miss you so much Logan. Jacob thinks looking at TV is more fun than letting mommy take his picture. The Easter Baskets L to R. Hannah, Ava, Andrew, Jacob. I bought this Carseat for Jacob in Feburay. It is graco. Not sure of the name off hand, but this gives him MUCH better support than the nataulus he had before. That is A LOT of manatees! Subscribe to: Posts (Atom). My son has spastic quadriplegic cerebral palsy.

5

Spastic Quadriplegic Cerebral Palsy: Rifton Corner Chair and a new hammock chair

http://www.sqcp.blogspot.com/2014/04/rifton-corner-chair-and-new-hammock.html

Saturday, April 19, 2014. Rifton Corner Chair and a new hammock chair. Found this little gem on craigslist. Love it! This is a size small Rifton corner chair for anyone looking he is 43 lbs and 44 inches tall. Also bought him a hammock chair to hang out in while we are out side. It was around $35 on amazon.com. Subscribe to: Post Comments (Atom). My son has spastic quadriplegic cerebral palsy. Spastic Quadriplegic Cerebral Palsy. Rifton Corner Chair and a new hammock chair.

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darwanie.blogspot.com

bicara ibu Q

http://darwanie.blogspot.com/2014/12/entah-kenapa-hati-ini-begitu-sebak.html

A story about my Angel-Cerebral Palsy due to Microcephaly with Symptomatic Epilepsy Secondary to Lissencephaly with GDD and Bronchial Asthma. Tuesday, December 2, 2014. Entah kenapa hati ini begitu sebak tatkala stiap kala membaca ucapan Selamat Hari Ibu beserta dgn ayat² yg indah dan hebat, ditujukan khas utk sang ibu. Terdetik dihati kecil; cukup hebatkah aku utk disanjung sebagai seorang ibu sejati? Posted by Darwani Dinix. Subscribe to: Post Comments (Atom). View my complete profile. BEST NYA BLOG NI.

darwanie.blogspot.com

bicara ibu Q: November 2013

http://darwanie.blogspot.com/2013_11_01_archive.html

A story about my Angel-Cerebral Palsy due to Microcephaly with Symptomatic Epilepsy Secondary to Lissencephaly with GDD and Bronchial Asthma. Tuesday, November 26, 2013. Cucu ke 15 Atok Din. Ikutkan baby ni adik Kak Yang sebab Adik adalah bunda angkat kepada Kak Yang. Oklah.Jom tengok pic baby gurl yg comei ni. Posted by Darwani Dinix. Sunday, November 24, 2013. Penjelasan mengenai Fibrele Fits. Artikel berkenaan demam sawan atau fibrele fit. Selamat Datang ke Blog Dr. Azwan. Tuesday, February 26, 2008.

darwanie.blogspot.com

bicara ibu Q: September 2013

http://darwanie.blogspot.com/2013_09_01_archive.html

A story about my Angel-Cerebral Palsy due to Microcephaly with Symptomatic Epilepsy Secondary to Lissencephaly with GDD and Bronchial Asthma. Monday, September 23, 2013. Aku diuji lagi.Adik Aimi diserang sawan. Hari ni tetiba ibu buat keputusan x nak bwk Adik Aimi ke klinik stimula. Sebab pikir senang sket nak observe dan study Mak Ija buat stimula. So memang seharian ibu dalam bilik rawatan bersama Mak Ija. Memerhati sambil menimba ilmu. After 2 hours barulah Adik admit ke Wad 6B Hospital Klang. Mujurla...

darwanie.blogspot.com

bicara ibu Q: May 2013

http://darwanie.blogspot.com/2013_05_01_archive.html

A story about my Angel-Cerebral Palsy due to Microcephaly with Symptomatic Epilepsy Secondary to Lissencephaly with GDD and Bronchial Asthma. Sunday, May 12, 2013. Kisah kami di Harian Metro. Hari ni Ibu tumpang glamer Kak Yang.kisah Kak Yang diabadikan dalam Harian Metro. Sebak dan terharu kerana niat menyatukan semua bidadari syurga terlaksana.moga dapat membuka mata masyarakat. Http:/ www.hmetro.com.my/myMetro/articles/2013051301035720130513010357/Article/index html. Posted by Darwani Dinix. Titik-tit...

darwanie.blogspot.com

bicara ibu Q: March 2013

http://darwanie.blogspot.com/2013_03_01_archive.html

A story about my Angel-Cerebral Palsy due to Microcephaly with Symptomatic Epilepsy Secondary to Lissencephaly with GDD and Bronchial Asthma. Saturday, March 30, 2013. Apa itu Demam Sawan (Febrile Fits). Sawan Demam, mari memahami apa itu. Sawan Demam @ Febrile Fits). Sawan yang berlaku apabila suhu melebihi 38' c. Ia biasanya berlaku pada hari pertama atau kedua demam. Lingkungan umur adalah antara 6 bulan hingga 6 tahun. Ya 30% Sawan Demam boleh berulang. Adakah Sawan Demam Mengakibatkan Kecacatan Otak?

darwanie.blogspot.com

bicara ibu Q: April 2015

http://darwanie.blogspot.com/2015_04_01_archive.html

A story about my Angel-Cerebral Palsy due to Microcephaly with Symptomatic Epilepsy Secondary to Lissencephaly with GDD and Bronchial Asthma. Wednesday, April 22, 2015. Hepi belated besday Abah. Last week balik kampung, celebrate besday Abah. Tiup lilin ja sebab cucu-cucu asyik tanya nape x dak celebrate untuk Atuk. Besday Atuk 16 April.ni dah 65 tahun dah. Sabtu 18hb baru berkesempatan semua balik sana. Pak Anjang sponsor kek Secret Recipe hehehe. SELAMAT HARI JADI, ABAH. MOGA ABAH TERUS KUAT. MAK, kita...

zaneleland.wordpress.com

8th International Costello Conference, Orlando, FL 2013 | Mr. Snuggles- Zane Leland Madaus

https://zaneleland.wordpress.com/2013/08/10/8th-international-costello-conference-orlando-fl-2013

Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. 8th International Costello Conference, Orlando, FL 2013. August 10, 2013. In 2013 Costello Conference. Thank you so much to everyone who helped get us to the Costello conference in Florida! Thank you to ...

zaneleland.wordpress.com

Dental & Nutrition Workshops- 2013 Orlando FL Costello Conference | Mr. Snuggles- Zane Leland Madaus

https://zaneleland.wordpress.com/2013/08/08/dental-nutrition-workshops-2013-orlando-fl-costello-conference

Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Dental and Nutrition Workshops- 2013 Orlando FL Costello Conference. August 8, 2013. In 2013 Costello Conference. By Dr Skip Dolt, DDS RASodontis. Challenges to CS teeth:. Tooth enamel dissolves below 5&...

zaneleland.wordpress.com

Zane is doing soooo well! | Mr. Snuggles- Zane Leland Madaus

https://zaneleland.wordpress.com/2014/04/30/zane-is-doing-soooo-well

Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Zane is doing soooo well! April 30, 2014. I am so sorry I have not updated Zane’s webpage in a very long time! Then I had issues with my battery cord not working! I thought we would never see the day&#82...

zaneleland.wordpress.com

ShannonK | Mr. Snuggles- Zane Leland Madaus

https://zaneleland.wordpress.com/author/zanesmom

Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. OMSLife Foundation Conference in Cinncinati, OH 2015. April 13, 2015. Read Article →. Zane is doing soooo well! April 30, 2014. I am so sorry I have not updated Zane’s webpage in a very long time! These ...

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Spastic Quadriplegic Cerebral Palsy

Tuesday, May 12, 2015. Our Spastic Quad CP son in Macclaren Major stroller. I like to make sure things will work before ai spend big money on them. I'm working on buying accessories so he can sit in the stroller without the tomato seat. His head just above the back rest of the stroller when sitting in it without the seat. Saturday, April 11, 2015. About to check out Eye Gaze and found an Awesome Tooth Brush. I'm going to buy 1 very soon. Special needs tooth brush. Wheel chair ramp hitch. I bought this fo...

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