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Stephen's Journey

Tuesday, March 31, 2015. I'm so happy to report that Stephen is doing amazing and things couldn't be any better for our little Superman right now! Okay, now I'm off to go knock on every single wooden surface in our house because I probably just totally jinxed ourselves. Ha ha! Other than that, we've really been enjoying all sorts of fun activities around the DC area; despite the weird Spring weather we've had. It's a freakin' miracle! The one thing I've been dying for has finally happened! We did a coupl...

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Stephen's Journey | stephens-journey.blogspot.com Reviews
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Tuesday, March 31, 2015. I'm so happy to report that Stephen is doing amazing and things couldn't be any better for our little Superman right now! Okay, now I'm off to go knock on every single wooden surface in our house because I probably just totally jinxed ourselves. Ha ha! Other than that, we've really been enjoying all sorts of fun activities around the DC area; despite the weird Spring weather we've had. It's a freakin' miracle! The one thing I've been dying for has finally happened! We did a coupl...
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Stephen's Journey | stephens-journey.blogspot.com Reviews

https://stephens-journey.blogspot.com

Tuesday, March 31, 2015. I'm so happy to report that Stephen is doing amazing and things couldn't be any better for our little Superman right now! Okay, now I'm off to go knock on every single wooden surface in our house because I probably just totally jinxed ourselves. Ha ha! Other than that, we've really been enjoying all sorts of fun activities around the DC area; despite the weird Spring weather we've had. It's a freakin' miracle! The one thing I've been dying for has finally happened! We did a coupl...

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1

Stephen's Journey: July 2014

http://stephens-journey.blogspot.com/2014_07_01_archive.html

One little boys journey through kidney disease from birth to dialysis to transplant and beyond! Tuesday, July 8, 2014. And the little bugger is just so smart. He'll memorize a new library book in 2-3 days and he's got the Pledge of Allegiance and "God Bless America" down pat (his Daddy is way proud of that)! I keep saying it feels like he's "3 going on 10" in the blink of an eye. But most importantly, his health is fantastic! Tuesday, July 08, 2014. Subscribe to: Posts (Atom). Our Crazy Kidney Life.

2

Stephen's Journey: January 2015

http://stephens-journey.blogspot.com/2015_01_01_archive.html

One little boys journey through kidney disease from birth to dialysis to transplant and beyond! Sunday, January 4, 2015. Happy 4th Birthday to my little Superhero! Can you believe it's been 4 years since that crazy day when Stephen came into this world with one serious bang! It's hard to believe it's been that long, yet I can't believe it's only been that long. Weird, I know; but totally true! Oh, and he gives some pretty awesome kisses too (he'll love that when he's 13)! Thank you for continuing to shar...

3

Stephen's Journey: March 2015

http://stephens-journey.blogspot.com/2015_03_01_archive.html

One little boys journey through kidney disease from birth to dialysis to transplant and beyond! Tuesday, March 31, 2015. I'm so happy to report that Stephen is doing amazing and things couldn't be any better for our little Superman right now! Okay, now I'm off to go knock on every single wooden surface in our house because I probably just totally jinxed ourselves. Ha ha! Other than that, we've really been enjoying all sorts of fun activities around the DC area; despite the weird Spring weather we've had.

4

Stephen's Journey: It's Been a Rough Winter

http://stephens-journey.blogspot.com/2015/02/its-been-rough-winter.html

One little boys journey through kidney disease from birth to dialysis to transplant and beyond! Friday, February 13, 2015. It's Been a Rough Winter. January and February didn't disappoint and turned out to be yet another germ-ridden month. Meaning, Stephen got sick again.and then sick again this week. This Winter really has been terrible in terms of illness and I'm hoping that this year is just a fluke and we won't have this every year going forward! And Stephen had a blast with his grandparent's! These ...

5

Stephen's Journey: Fun Update!

http://stephens-journey.blogspot.com/2015/03/fun-update.html

One little boys journey through kidney disease from birth to dialysis to transplant and beyond! Tuesday, March 31, 2015. I'm so happy to report that Stephen is doing amazing and things couldn't be any better for our little Superman right now! Okay, now I'm off to go knock on every single wooden surface in our house because I probably just totally jinxed ourselves. Ha ha! Other than that, we've really been enjoying all sorts of fun activities around the DC area; despite the weird Spring weather we've had.

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and Charlie makes three...: March 2015

http://andcharliemakes3.blogspot.com/2015_03_01_archive.html

Tuesday, March 10, 2015. The Playroom - Part II. The playroom wall is finally finished! I was pleasantly surprised at how easy it was to work with vinyl. It adheres to the wall really well and peels off easily in case you need to re-position.which I did.several times. Naturally, it took a couple attempts to get the design right. After I put all the circles on the wall, I took a step back and asked Chris - "do you think they are too high? Monday, March 2, 2015. The Playroom Plan, Part I. Now, there are tw...

ellieandmi.blogspot.com ellieandmi.blogspot.com

Life this side of ARPKD: February 2014

http://ellieandmi.blogspot.com/2014_02_01_archive.html

Life this side of ARPKD. Wednesday, 5 February 2014. Happy 3rd birthday to my fairy princess. The Song of The Forget-me-not Fairy. Where do fairy babies lie. Till they're old enough to fly? Here's a likely place, I think. Mid these flowers, blue and pink,. Pink for girls and blue for boys:. Pretty things for babies' toys! Let us peep now, gently. Why,. Fairy babies, here you lie! Kicking there, with no one by. Baby dear, how good you lie! All alone, but O, you're not -. You could never be - forgot!

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Life this side of ARPKD: March 2015

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Life this side of ARPKD. Monday, 30 March 2015. Eventually, it is nearly April! I can feel my positivity slipping away and the stress beginning to build up. Luckily I have lots of assignments and music practice to do to try and while away the days and kids exam results to wait for as well as my usual lovely mornings and days out with Theo. Fingers crossed, as ever. Wednesday, 4 March 2015. The return of ARPKD. Its been ages since I was here. I really should update more. So, I am choosing to believe this ...

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Life this side of ARPKD: Who said time flies?!

http://ellieandmi.blogspot.com/2015/04/who-said-time-flies.html

Life this side of ARPKD. Wednesday, 22 April 2015. Who said time flies? I went for my CVS on Monday but it couldn't be done, the placenta was too thin. I have to return on Monday coming and the wait is becoming more and more suffocating. I have to pick how best to get this baby out and grieve and be expected to live my life as normal having lost 2 babies. And then potentially 3, or 4 or 5 depending on how the Russian Roulette falls. And so I wait, and pray the guardian angels are on my side.

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Life this side of ARPKD: April 2013

http://ellieandmi.blogspot.com/2013_04_01_archive.html

Life this side of ARPKD. Saturday, 27 April 2013. Well, for the most part of April, I have had a poorly baba, first with a really bad case of rotavirus and now recovering from cold/teething so, it's been a hard month but at least, unlike some babies, Theo has recovered so I am not too hung up on it. He is 7 and a half months, I really cannot believe it! Good taste in music anyway! We LOVE Kate Bush (well, mammy does! Subscribe to: Posts (Atom). View my complete profile. Bennett's ARPKD caring bridge site.

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Life this side of ARPKD: October 2014

http://ellieandmi.blogspot.com/2014_10_01_archive.html

Life this side of ARPKD. Wednesday, 15 October 2014. One more step to the top of the city. It's been a long time since I posted here. So much has happened. I was determined to make this year an awesome one, even better than the one before. I'm actually, with my health anxiety, a bit concerned I may have a terminal illness because the year has been SO great. Well, the day came round and during the 15 minutes it took to sell out, I GOT A TICKET! After seeing Dolly, I was like, Can Kate Bush live up to this?

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Life this side of ARPKD: December 2013

http://ellieandmi.blogspot.com/2013_12_01_archive.html

Life this side of ARPKD. Tuesday, 31 December 2013. Well, in just under 2 hours at least. This year has brought about the growth of my baby into a big boy, the buying of our own house and happiness. It has also brought more loss and sadness too. However, a new blank slate is starting again as we carry our memories forward. Also, Theo loved Xmas this year. He was thoroughly spoilt! Come at us 2014! Subscribe to: Posts (Atom). View my complete profile. Bennett's ARPKD caring bridge site. UK PKD charity site.

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Life this side of ARPKD: Bye bye baby Forrest

http://ellieandmi.blogspot.com/2015/05/bye-bye-baby-forrest.html

Life this side of ARPKD. Monday, 4 May 2015. Bye bye baby Forrest. Theo has been the saviour in all this. Waiting for my cvs and results was much harder this time because I know how amazing he is but the horrible bit after, he has made it so much easier because he is so perfect. So, here's hoping Friday goes smoothly and the next baby is in that 75%. Bye bye baby Forrest, you were wanted and there will be no suffering for you and no regret for us. Subscribe to: Post Comments (Atom). Bye bye baby Forrest.

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Life this side of ARPKD: November 2013

http://ellieandmi.blogspot.com/2013_11_01_archive.html

Life this side of ARPKD. Monday, 25 November 2013. I really cannot believe it's almost Xmas again! I am SOOOOOO excited haha, like a big kid. Theo won't really understand much but he likes toys so it is going to be really fun. Theo is the universe to me more and more everyday. He is so funny and smart, I'm so proud he is mine. That is not to say he isn't a monkey though! He has a proper little defiant look when he is is reprimanded! And now, I need to sleep! Subscribe to: Posts (Atom). UK PKD charity site.

ellieandmi.blogspot.com ellieandmi.blogspot.com

Life this side of ARPKD: One more step to the top of the city

http://ellieandmi.blogspot.com/2014/10/one-more-step-to-top-of-city.html

Life this side of ARPKD. Wednesday, 15 October 2014. One more step to the top of the city. It's been a long time since I posted here. So much has happened. I was determined to make this year an awesome one, even better than the one before. I'm actually, with my health anxiety, a bit concerned I may have a terminal illness because the year has been SO great. Well, the day came round and during the 15 minutes it took to sell out, I GOT A TICKET! After seeing Dolly, I was like, Can Kate Bush live up to this?

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Stephen's Journey

Tuesday, March 31, 2015. I'm so happy to report that Stephen is doing amazing and things couldn't be any better for our little Superman right now! Okay, now I'm off to go knock on every single wooden surface in our house because I probably just totally jinxed ourselves. Ha ha! Other than that, we've really been enjoying all sorts of fun activities around the DC area; despite the weird Spring weather we've had. It's a freakin' miracle! The one thing I've been dying for has finally happened! We did a coupl...

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