STICKLERS.ORG

cleftline.org

Links R-W – Cleft Palate Foundation

http://www.cleftline.org/links/links-r-w

Parents & Individuals. Find Local Cleft/Craniofacial Specialists. Booklets & Factsheets. Grants & Awards. Tips for Hospital Nurseries. Support Organization Links Focusing on Cleft Lip, Cleft Palate, and Other Craniofacial Conditions:. Organization engaged in building parent speech training programs that complete the job that surgery begins. Earthspeak trains parents and other lay people to become the speech teachers their children need. Velo-Cardio-Facial (VCFS) Educational Foundation. Chapel Hill, NC 27...

techguy.org

History | Tech Support Guy

https://techguy.org/aboutus.html

March 22, 2006. My name is Mike Cermak. And I started Tech Support Guy in 1996. As we celebrate our 10 year anniversary, some have asked me about the history of Tech Support Guy and how it came to be the community it is today. 8221; or “How do I dial-up to the Internet in Windows 95? 8221; — and decided that it would be easier if I could say, “follow the directions on my web site! Suddenly, the site started to really grow. As luck would have it, I had my first retinal detachment around this time &#82...

pjroxburgh.tripod.com

Medical Interests

http://pjroxburgh.tripod.com/new_page_4.htm

I constantly look for new and better information about hypermobility syndrome and Ehlers-Danlos type III (hypermobility type) there has not been a lot of research related to this topic, nor it there a clear consensus about treatment or diagnosis. HMS and related disorders page. Restless Leg Syndrome -. National Institute of Neurological Disorders and Stroke. Science Makes Strides Against Restless Legs Syndrome. Related conditions to HMS/EDS III. Heritable Connective Tissue Disorders. HMS/EDS III Info Page.

marfanvic.org.au

Genetic Disorders | Marfan Syndrome | Marfan Association Victoria

http://www.marfanvic.org.au/marfan-syndrome/related-disorders

What is Marfan Syndrome. Diagnosis and Treatment-including Clinical Genetics services contacts. Resources- videos & links. Genetic and other disorders related to Marfan syndrome. Although Loeys-Dietz syndrome (LDS) symptoms overlap with other disorders such as Marfan Syndrome (MFS), Ehlers-Danlos Syndrome (EDS), Shprintzen-Goldberg syndrome (SGS) and others, a variety of differential features set LDS apart from other disorders. Ectopia Lentis (dislocation of the lens of the eye). Shprintzen-Goldberg synd...

burntgold.blogspot.com

Burnt Gold: The love of music... a gift and a curse

http://burntgold.blogspot.com/2010/08/love-of-music-gift-and-curse.html

I have been tried, as gold tried by fire, in my body and in my mind and in my soul. I am a bit crispy around the edges, and I kinda smell funny, and like a too wet log, I snap, crackle and pop. The love of music. a gift and a curse. Today, you cannot stand up to sing.  I won't allow you! I WAS EXCITED I . DISLOCATED SOMETHING LESS THAN EVERY 10 MINUTES. 160;I miss the days, before that! I understand your grieving. At the minute I am awake in the middle of the night when I should be asleep. Its my fau...

burntgold.blogspot.com

Burnt Gold: Silence

http://burntgold.blogspot.com/2010/12/silence.html

I have been tried, as gold tried by fire, in my body and in my mind and in my soul. I am a bit crispy around the edges, and I kinda smell funny, and like a too wet log, I snap, crackle and pop. While it is tempting to just leave a "blank" post (and with the topic, it would be appropriate), I suppose I should, as ironic as it might be, speak a few words about silence. Just wanted to give you an, Amen. And a hug in the silence. December 17, 2010 at 10:47 PM. Subscribe to: Post Comments (Atom). I quit smoki...

burntgold.blogspot.com

Burnt Gold: Another early to bed, but late to rise

http://burntgold.blogspot.com/2010/01/another-early-to-bed-but-late-to-rise.html

I have been tried, as gold tried by fire, in my body and in my mind and in my soul. I am a bit crispy around the edges, and I kinda smell funny, and like a too wet log, I snap, crackle and pop. Another early to bed, but late to rise. I am trying to take everything one day at a time, and I know that whatever decision I make, it isn't set in stone- that it can be changed depending on how I'm feeling. I just can't imagine not having both to attend on my Sundays. Subscribe to: Post Comments (Atom). I zonked ...

burntgold.blogspot.com

Burnt Gold: 2011/01

http://burntgold.blogspot.com/2011_01_01_archive.html

I have been tried, as gold tried by fire, in my body and in my mind and in my soul. I am a bit crispy around the edges, and I kinda smell funny, and like a too wet log, I snap, crackle and pop. Fighting against the cure (or what's the point? In the history of ribbon-wearing, awareness raising campaigns for diseases, how many have been cured? How many cases have been prevented? Ultimately, wearing a ribbon is like "clicking for a cure". Sure, it makes one feel good, perhaps others. Isn't it best served, i...

burntgold.blogspot.com

Burnt Gold: Them bones, them bones, them thin bones

http://burntgold.blogspot.com/2011/01/them-bones-them-bones-them-thin-bones.html

I have been tried, as gold tried by fire, in my body and in my mind and in my soul. I am a bit crispy around the edges, and I kinda smell funny, and like a too wet log, I snap, crackle and pop. Them bones, them bones, them thin bones. That I have osteoporosis. Dr. Henderson diagnosed me this past week when I saw him about my other neurological concerns that may or may not be connected with EDS. Im sorry. have they started you on calcium tablets vit d? January 4, 2011 at 4:02 PM. Im taking calcium and vit...