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Just A Mom

Wednesday, July 24, 2013. Cooling off at the mall. When you are on the 16th day in a row of over 100 degrees it's very very nice to have a mall. With an amazing children's play area. The kids played for about an hour on all of the slides. The floor is about 10 inches of soft foam padding. So many things to play with. The mountain was Rohnin's favorite to climb and slide down. Everything looks like a hard plastic but it's actually a soft rubber material - so even if they fall on it they don't get hurt.

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Just A Mom | stonedibbs.blogspot.com Reviews

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Wednesday, July 24, 2013. Cooling off at the mall. When you are on the 16th day in a row of over 100 degrees it's very very nice to have a mall. With an amazing children's play area. The kids played for about an hour on all of the slides. The floor is about 10 inches of soft foam padding. So many things to play with. The mountain was Rohnin's favorite to climb and slide down. Everything looks like a hard plastic but it's actually a soft rubber material - so even if they fall on it they don't get hurt.

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Just A Mom | stonedibbs.blogspot.com Reviews

https://stonedibbs.blogspot.com

Wednesday, July 24, 2013. Cooling off at the mall. When you are on the 16th day in a row of over 100 degrees it's very very nice to have a mall. With an amazing children's play area. The kids played for about an hour on all of the slides. The floor is about 10 inches of soft foam padding. So many things to play with. The mountain was Rohnin's favorite to climb and slide down. Everything looks like a hard plastic but it's actually a soft rubber material - so even if they fall on it they don't get hurt.

INTERNAL PAGES

stonedibbs.blogspot.com

1

Just A Mom: Overpasses for Obama's Impeachment

http://www.stonedibbs.blogspot.com/2013/07/overpasses-for-obamas-impeachment.html

Wednesday, July 10, 2013. Overpasses for Obama's Impeachment. COMING SOON TO UTAH! OR FIND YOUR STATE AND LOCATION! Subscribe to: Post Comments (Atom). CHICKS ON THE RIGHT. Cooling off at the mall. Whats Wrong With Brother. Despicable Me 2 - Hope Kids. Overpasses for Obamas Impeachment. The 4th of July. Senators Mike Lee (UT), Rand Paul (KY), and Ted Cr. View my complete profile. Simple template. Powered by Blogger. Syndromes without a name.

2

Just A Mom: July 2013

http://www.stonedibbs.blogspot.com/2013_07_01_archive.html

Wednesday, July 24, 2013. Cooling off at the mall. When you are on the 16th day in a row of over 100 degrees it's very very nice to have a mall. With an amazing children's play area. The kids played for about an hour on all of the slides. The floor is about 10 inches of soft foam padding. So many things to play with. The mountain was Rohnin's favorite to climb and slide down. Everything looks like a hard plastic but it's actually a soft rubber material - so even if they fall on it they don't get hurt.

3

Just A Mom: April 2009

http://www.stonedibbs.blogspot.com/2009_04_01_archive.html

Saturday, April 25, 2009. Where I've Been in 34 Years. Hong Kong, China. Cabo San Lucas, Mexico. Flagstaff, AZ, USA. Aliso Viejo, CA, USA. Joshua Tree National Park, CA, USA. Colorado Springs, CO, USA. Moab, UT, USA. St George, UT, USA. Create your own travel map. Wednesday, April 1, 2009. How life threatening does your child have to be to get help? Does my child need to be on a vent to get help? But then really what is living? I will also keep checking in to the other areas where we originally thought H...

4

Just A Mom: Senators Mike Lee (UT), Rand Paul (KY), and Ted Cruz (TX)

http://www.stonedibbs.blogspot.com/2013/06/senators-mike-lee-ut-rand-paul-ky-and.html

Tuesday, July 2, 2013. Senators Mike Lee (UT), Rand Paul (KY), and Ted Cruz (TX). My three favorite men in DC.happily signed the Petition Senator Lee! Subscribe to: Post Comments (Atom). CHICKS ON THE RIGHT. Cooling off at the mall. Whats Wrong With Brother. Despicable Me 2 - Hope Kids. Overpasses for Obamas Impeachment. The 4th of July. Senators Mike Lee (UT), Rand Paul (KY), and Ted Cr. View my complete profile. Simple template. Powered by Blogger. Syndromes without a name.

5

Just A Mom: Cooling off at the mall

http://www.stonedibbs.blogspot.com/2013/07/cooling-off-at-mall.html

Wednesday, July 24, 2013. Cooling off at the mall. When you are on the 16th day in a row of over 100 degrees it's very very nice to have a mall. With an amazing children's play area. The kids played for about an hour on all of the slides. The floor is about 10 inches of soft foam padding. So many things to play with. The mountain was Rohnin's favorite to climb and slide down. Everything looks like a hard plastic but it's actually a soft rubber material - so even if they fall on it they don't get hurt.

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haveyroo.blogspot.com

Haven: Neuroblastoma Cancer and ROHHAD Syndrome: Photos never posted

http://haveyroo.blogspot.com/2009/10/photos-never-posted.html

Saturday, October 10, 2009. I found some photos that we had taken but never posted. Flushing the Hickman Line before the removal. Tubey - or the old Hickman Line - after being removed from Haven's chest. Building stuff with her dad. Haven loves to work with the tools and help dad build things. Haven's Prayer Blanket from Barbara in California. Haven's zodiac quilt from Jackie Bennett and Kim Lewis with Love Quilts to Make a Child Smile. Haven in clinic with Bongo her monkey. January 13, 2011 at 3:58 AM.

haveyroo.blogspot.com

Haven: Neuroblastoma Cancer and ROHHAD Syndrome: Letters From Haven

http://haveyroo.blogspot.com/p/letters-from-haven.html

Haven has decided to create her own blog.once it is ready to go we will update all of you. Subscribe to: Posts (Atom). Johns Hopkins about Haven. Our Fight For ROHHAD. Promotion, Josh Graduates, New Baby on the Way, IPV Letter and Much More. You may have noticed I've been absent on my blog page for the last what . almost 2 years? Sorry I have been incredibly busy and neglected my duty :). Cooling off at the mall. My Son's Rare Medical Condition. What are you doing? A cute film about Autism. We will conti...

haveyroo.blogspot.com

Haven: Neuroblastoma Cancer and ROHHAD Syndrome: Allergic to what????

http://haveyroo.blogspot.com/2011/05/allergic-to-what.html

Tuesday, May 17, 2011. At age 1 Haven had some zucchini bread that my friend made - I didn't know it had hazelnuts in it. We found out about 10 minutes later when Haven developed hives and blisters that covered her body for days. We ended up getting an epi-pen and keeping her away from nuts. This was within 15 minutes of eating the cherries and right after the Benadryl. The only blister not scratched open by my daughter.because I was able to stop her. BUT HE IS AWESOME! He wrote back immediately and was ...

haveyroo.blogspot.com

Haven: Neuroblastoma Cancer and ROHHAD Syndrome: March 2014

http://haveyroo.blogspot.com/2014_03_01_archive.html

Friday, March 7, 2014. I spoke with pre-registration for Haven's surgery today. We are ready to go! First I have to say I don't remember paying $100 for every surgery before……anyway. Haven is ready for surgery. She has been informed that she cannot have anything to eat after midnight and nothing to drink after 7:15am. She has to be at the hospital by 8:45am to meet with anesthesia and her surgeon. I will update everyone on Monday as we finish surgery and settle into recovery. Thank you to all of you ...

haveyroo.blogspot.com

Haven: Neuroblastoma Cancer and ROHHAD Syndrome: Foundations

http://haveyroo.blogspot.com/p/foundations.html

Due to lack of funding Matt's Helpers closed it's doors at the end of 2011. Subscribe to: Posts (Atom). Johns Hopkins about Haven. Our Fight For ROHHAD. Promotion, Josh Graduates, New Baby on the Way, IPV Letter and Much More. You may have noticed I've been absent on my blog page for the last what . almost 2 years? Sorry I have been incredibly busy and neglected my duty :). Cooling off at the mall. What are you doing? A cute film about Autism. My Son's Rare Medical Condition. We will continue to wear gol...

haveyroo.blogspot.com

Haven: Neuroblastoma Cancer and ROHHAD Syndrome: ROHHAD

http://haveyroo.blogspot.com/p/rohhad.html

ROHHAD = Rapid-Onset Obesity, Hypthalamic Dysfunction, Hypoventilation, and Autonomic Dysregulation. The variable presentation of ROHHAD includes the following main symptoms:. Large weight gain in a short amount of time (15 to 20 lbs in a 6- to 12-month period with onset between 1.5 and 10 years of age.). Hyperphagia and obesity by age of 10years - (median age 3 years). Alveolar Hypoventilation (median onset age 6.2 years). Reduced Carbon Dioxide Ventilatory Response. Failed Growth Hormone Stimulation.

haveyroo.blogspot.com

Haven: Neuroblastoma Cancer and ROHHAD Syndrome: February 2015

http://haveyroo.blogspot.com/2015_02_01_archive.html

Sunday, February 22, 2015. Mystery Diagnosis - ROHHAD and Haven. Links to this post. Subscribe to: Posts (Atom). Johns Hopkins about Haven. Our Fight For ROHHAD. Promotion, Josh Graduates, New Baby on the Way, IPV Letter and Much More. You may have noticed I've been absent on my blog page for the last what . almost 2 years? Sorry I have been incredibly busy and neglected my duty :). Cooling off at the mall. What are you doing? A cute film about Autism. My Son's Rare Medical Condition. We will continue to...

haveyroo.blogspot.com

Haven: Neuroblastoma Cancer and ROHHAD Syndrome: Our Villa at Give Kids The World

http://haveyroo.blogspot.com/2010/02/our-villa-at-give-kids-world.html

Tuesday, February 2, 2010. Our Villa at Give Kids The World. Our beautiful 2 bedroom / 2 bath home. Dining room and kitchen - fridge was filled with drinks and table covered in gifts. Haven's bathroom was huge with pink tiling that she loved! Bubble jet bath tub and extra large shower! Thank you again Give Kids the World and Make-A-Wish! Labels: Give Kids The World Villiage. February 2, 2010 at 9:26 PM. Hello, Princess Haven! What beautiful photos your mom put on your site! With love and prayers,. Email ...

haveyroo.blogspot.com

Haven: Neuroblastoma Cancer and ROHHAD Syndrome: Haven's Timeline

http://haveyroo.blogspot.com/2014/03/havens-timeline.html

Thursday, March 6, 2014. Below is a short story about Haven's life after being diagnosed with cancer and a rare syndrome called ROHHAD. When I was 2 I was a normal healthy girl. I liked to help my dad work on mountain bikes. Then in one month I gained 25 pounds and my mom took me to the doctor to get an MRI. Which is a picture of my insides. They took a picture of my brain. Which was fine. After a few more months I gained more weight and they did another MRI. Finally my 3rd birthday and I got a Chinchilla.

haveyroo.blogspot.com

Haven: Neuroblastoma Cancer and ROHHAD Syndrome: Ganglioneuroblastoma

http://haveyroo.blogspot.com/2008/02/ganglioneuroblastoma.html

Monday, February 11, 2008. A little more about Haven's type of cancer. As I said previously (or maybe I didn't, can't remember) there are 3 types of Neuroblastoma. They are listed below in the Pathophysiology section. Haven is confirmed to have Ganglioneuroblastoma (the middle type). The histologic difference between ganglioneuroma, ganglioneuroblastoma. Consists of surgery and, usually, chemotherapy. Despite recent advances in treatment, including bone marrow. Causes, incidence, and risk factors:. Becau...

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Just A Mom

Wednesday, July 24, 2013. Cooling off at the mall. When you are on the 16th day in a row of over 100 degrees it's very very nice to have a mall. With an amazing children's play area. The kids played for about an hour on all of the slides. The floor is about 10 inches of soft foam padding. So many things to play with. The mountain was Rohnin's favorite to climb and slide down. Everything looks like a hard plastic but it's actually a soft rubber material - so even if they fall on it they don't get hurt.

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