stopsma.org
Stop SMAWe are volunteers—family, friends, friends of friends—who work hard and are passionate about funding a cure for SMA as soon as possible.
http://www.stopsma.org/
We are volunteers—family, friends, friends of friends—who work hard and are passionate about funding a cure for SMA as soon as possible.
http://www.stopsma.org/
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Stop SMA | stopsma.org Reviews
https://stopsma.org
We are volunteers—family, friends, friends of friends—who work hard and are passionate about funding a cure for SMA as soon as possible.
stopsma.org
Donate - Stop SMA
http://www.stopsma.org/donate
The best way to help us cure SMA is by making a generous donation. We have an all volunteer staff, so nearly 100 percent of your donation will be used for research and awareness. We make it easy and secure to give by processing transactions with PayPal, which accepts major credit cards. Update November 2015: Stop SMA is relocating. We will update this page when we have established a new mailing address. In addition to individual givers, sponsors are important in our fight against SMA. Our events. Take to...
News & Events - Stop SMA
http://www.stopsma.org/news
Tom Arnold and Henry Cho perform live for Laugh Away SMA 2015. August 12, 2015 by. Stop SMA is proud to partner with JWH Equipment to bring you Laugh Away SMA. Comedians Tom Arnold and Henry Cho will deliver a world-class show that’ll have your ribs aching from laughter. As always, we’ve worked to have some amazing autographed collectables available during the pre-show auction. Your support helps us fund critical SMA research and provide specialized wheelchairs to young children. Mdash; Kelly Cranford.
Manifesto - Stop SMA
http://www.stopsma.org/manifesto
We host an annual comedy show and other fun events to raise support for a singular goal: curing spinal muscular atrophy. We are volunteers family, friends, friends of friends who work hard and are passionate about funding a cure for SMA as soon as possible. We believe that this can and will happen soon. With the help of nice folks like you, we can achieve our goal. The National Institutes of Health agree, distinguishing SMA from a host of neurological diseases as being closest to a cure. Come out to Laug...
Our Story - Stop SMA
http://www.stopsma.org/our-story
In June 2008 Jeff and Dee Horton discovered that their daughter, Evie, had Spinal Muscular Atrophy. Few people that they talked to about SMA had ever heard of the devastating disease. Even many in the medical profession were not familiar with SMA. So we ask: what if SMA was well known and supported like other diseases? What would the treatment possibilities be like then? To the Hortons, the equation was simple:. Awareness Support = Treatments. Ashley Warren, Blake Watson, and Letitia Kennedy. We are non-...
What is SMA? - Stop SMA
http://www.stopsma.org/what-is-sma
Spinal Muscular Atrophy (SMA) is a genetic disease. It weakens the muscles, making it difficult or, in most cases, impossible for a person with SMA to move around and do routine physical tasks like getting dressed. People with SMA may be able to stand when they are very young, but few ever possess the ability to walk. And for those that do, the ability is short lived. SMA is fatal many times because of respiratory and pulmonary complications. SMA is the number one genetic killer of children under two.
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septiembre | 2010 | ATROFIA MUSCULAR ESPINAL | SMAespanol
https://smaespanol.wordpress.com/2010/09
ATROFIA MUSCULAR ESPINAL SMAespanol. Creando conciencia sobre la Atrofia Muscular Espinal. Que es AME (SMA)? Archive for 10 septiembre 2010. Equipo de investigación de la Atrofia Muscular Espinal recibe los Fondos obtenidos en el concurso de Pepsi Refresh por parte de Sophia’s Cure Foundation. Septiembre 10, 2010. El Nationwide Children’s Hospital recibe $250.000 para la investigación de la AME ( SMA Spinal Muscular Atrophy). Columbus, OH – 9/8/2010. SMA) , recibió recientemente $ 250.000. AFM – As...
agosto | 2010 | ATROFIA MUSCULAR ESPINAL | SMAespanol
https://smaespanol.wordpress.com/2010/08
ATROFIA MUSCULAR ESPINAL SMAespanol. Creando conciencia sobre la Atrofia Muscular Espinal. Que es AME (SMA)? Archive for 18 agosto 2010. La Atrofia Muscular Espinal puede afectar el corazón del paciente. Agosto 18, 2010. Un nuevo estudio sugiere que puede ser importante monitorear la función cardíaca en pacientes con atrofia muscular espinal (AME, SMA en inglés), junto con los músculos esqueléticos. El estudio, realizado por el Hospital Nationwide Children’s. Vota por 250k $. Http:/ www.fsma.org/. Généth...
Repligen recibe por parte de la FDA el estatus de “Fast-Track” (Aprobación por Vía Rápida) para un tratamiento contra la AME | ATROFIA MUSCULAR ESPINAL | SMAespanol
https://smaespanol.wordpress.com/2011/07/06/repligen-recibe-por-parte-de-la-fda-el-estatus-de-fast-track-aprobacion-por-via-rapida-para-un-tratamiento-contra-la-ame
ATROFIA MUSCULAR ESPINAL SMAespanol. Creando conciencia sobre la Atrofia Muscular Espinal. Que es AME (SMA)? Repligen recibe por parte de la FDA el estatus de “Fast-Track” (Aprobación por Vía Rápida) para un tratamiento contra la AME. Repligen recibe por parte de la FDA el estatus de “Fast-Track” (Aprobación por Vía Rápida) para un tratamiento contra la AME. Julio 6, 2011. Además, RG3039 ha recibido una opinión positiva para la designación de medicamento huérfano de la Agencia Europea de Medicamentos....
Atrofia Muscular Espinal | SMAespanol.: VOTA TODOS LOS DIAS HASTA EL 31 DE MAYO 2010
http://smaespanol.blogspot.com/2010/05/vota-todos-los-dias-hasta-el-31-de-mayo.html
Atrofia Muscular Espinal SMAespanol. Jueves, 6 de mayo de 2010. VOTA TODOS LOS DIAS HASTA EL 31 DE MAYO 2010. Tenemos hasta el 31 de Mayo del 2010. Para obtener BECAS para dos Campañas de PEPSI, una de STOPSMA ( www.stopsma.org. Para conseguir $25.000 y otra de SHOPHIA'S CURE FOUNDATION ( www.sophiascure.com. Para conseguir $250.000. VOTA TODOS LOS DIAS EN EL SIGUIENTE ENLACE:! Http:/ www.refresheverything.com/search/? SI YA LE DISTE CLICK AL LINK ANTES MENCIONADO, VAS A VER A TU DERECHA UN BOTON GRIS (.
Investigadores del CSHL demuestran la eficacia de la terapia antisentido para la Atrofia Muscular Espinal. | ATROFIA MUSCULAR ESPINAL | SMAespanol
https://smaespanol.wordpress.com/2010/07/12/investigadores-del-cshl-demuestran-la-eficacia-de-la-terapia-antisentido-para-la-atrofia-muscular-espinal
ATROFIA MUSCULAR ESPINAL SMAespanol. Creando conciencia sobre la Atrofia Muscular Espinal. Que es AME (SMA)? Investigadores del CSHL demuestran la eficacia de la terapia antisentido para la Atrofia Muscular Espinal. Investigadores del CSHL demuestran la eficacia de la terapia antisentido para la Atrofia Muscular Espinal. Julio 12, 2010. Oligonucleótidos antisentido liberados en la médula espinal de ratones adultos y neonatales, ofrecen una liberación a largo plazo de los síntomas de la enfermedad. Estamo...
Equipo de investigación de la Atrofia Muscular Espinal recibe los Fondos obtenidos en el concurso de Pepsi Refresh por parte de Sophia’s Cure Foundation | ATROFIA MUSCULAR ESPINAL | SMAespanol
https://smaespanol.wordpress.com/2010/09/10/equipo-de-investigacion-de-la-atrofia-muscular-espinal-recibe-los-fondos-obtenidos-en-el-concurso-de-pepsi-refresh-por-parte-de-sophias-cure-foundation
ATROFIA MUSCULAR ESPINAL SMAespanol. Creando conciencia sobre la Atrofia Muscular Espinal. Que es AME (SMA)? Equipo de investigación de la Atrofia Muscular Espinal recibe los Fondos obtenidos en el concurso de Pepsi Refresh por parte de Sophia’s Cure Foundation. Equipo de investigación de la Atrofia Muscular Espinal recibe los Fondos obtenidos en el concurso de Pepsi Refresh por parte de Sophia’s Cure Foundation. Septiembre 10, 2010. Columbus, OH – 9/8/2010. SMA) , recibió recientemente $ 250.000. De la ...
AME I | ATROFIA MUSCULAR ESPINAL | SMAespanol
https://smaespanol.wordpress.com/20100513que-es-la-atrofia-muscular-espinal-ame-sma/ame-i
ATROFIA MUSCULAR ESPINAL SMAespanol. Creando conciencia sobre la Atrofia Muscular Espinal. Que es AME (SMA)? Enfermedad de Werdning-Hoffman) :. La debilidad muscular puede resultar en problemas como alimentarse, deglutir, respirar y moverse. Los niños con este tipo de AME (SMA), generalmente son muy flexibles y se hace evidente con algunas semanas de nacidos. Muchas madres recuerdan que sus bebés presentaron pocos movimientos durante el embarazo. Aunque los niños con Atrofia Muscular Espinal tienen movim...
Nuevas vías terapéuticas para la Atrofia Muscular Espinal en Desarrollo por ISIS Pharmaceuticals, Inc. | ATROFIA MUSCULAR ESPINAL | SMAespanol
https://smaespanol.wordpress.com/2010/07/16/nuevas-vias-terapeuticas-para-la-atrofia-muscular-espinal-en-desarrollo-por-isis-pharmaceuticals-inc
ATROFIA MUSCULAR ESPINAL SMAespanol. Creando conciencia sobre la Atrofia Muscular Espinal. Que es AME (SMA)? Nuevas vías terapéuticas para la Atrofia Muscular Espinal en Desarrollo por ISIS Pharmaceuticals, Inc. Nuevas vías terapéuticas para la Atrofia Muscular Espinal en Desarrollo por ISIS Pharmaceuticals, Inc. Julio 16, 2010. PRWEB) Juio 16, 2010. 8212; (FSMA) – Elk Grove Village. Actualizacipon del Programa ISIS de Terapia Antisentido para la Atrofia Muscular Espinal. 8221; esta semana. Son usados co...
AME III | ATROFIA MUSCULAR ESPINAL | SMAespanol
https://smaespanol.wordpress.com/20100513que-es-la-atrofia-muscular-espinal-ame-sma/ame-iii
ATROFIA MUSCULAR ESPINAL SMAespanol. Creando conciencia sobre la Atrofia Muscular Espinal. Que es AME (SMA)? También conocida como Atrofia Muscular Espinal Leve. Y como la Enfermedad Kugelberg-Welander. Es usualmente diagnosticada entre los 18 meses y la adolescencia temprana. Esta es la forma mas leve de AME y su pronóstico es muy bueno. Curvatura de la Columna Vertebral) ocurre en algunos niños, debido a la debilidad de los músculos que soportan los huesos en la columna vertebral. Puede llegar a ne...
Que es AME (SMA) ? | ATROFIA MUSCULAR ESPINAL | SMAespanol
https://smaespanol.wordpress.com/20100513que-es-la-atrofia-muscular-espinal-ame-sma
ATROFIA MUSCULAR ESPINAL SMAespanol. Creando conciencia sobre la Atrofia Muscular Espinal. Que es AME (SMA)? Que es AME (SMA)? Es una enfermedad genética que ataca al Sistema Nervioso y afecta la parte que se encarga del control de los movimientos musculares voluntarios, esto complica acciones tales como caminar, tragar, mantener el cuello firme, etc. Consiste en la pérdida o desgaste del tejido muscular a causa de algún tipo de enfermedad o por inactividad. Es la mayor causa de muerte genética. Esta pro...
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Jean Tatum's site
The official website of. Jean S. Tatum. A little about Jean;. One of Jean's great passions is fighting to find a cure for SMA-SYNDROME she has devoted a large part of her life finding a cure all in an attempt to stop SMA, and this not just some charity or a fad for her, she is personally involved because her own grandson has SMA. To learn more about SMA-SYNDROME (Click Here).
Stop SMA
Laugh Away SMA 2015. Laugh Away SMA is a comedy event. It provides a fun evening out for the community and helps save the lives of children with Spinal Muscular Atrophy. Dave Coulier and Henry Cho give you a stand-up comedy performance to remember. Proceeds benefit Stop SMA. Learn more and get tickets. We are volunteers family, friends, friends of friends who work hard and are passionate about funding a cure for SMA as soon as possible. See what we’re about. SMA Safe Haven (Facebook). Of $5 or more today.
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