sudepaware.org
SUDEP Aware www.sudepaware.orgSUDEP Aware, SUDEP Knowledge Repository
http://www.sudepaware.org/
SUDEP Aware, SUDEP Knowledge Repository
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SUDEP Aware www.sudepaware.org | sudepaware.org Reviews
https://sudepaware.org
SUDEP Aware, SUDEP Knowledge Repository
sudepaware.org
About SUDEP
http://www.sudepaware.org/about_sudep.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). Refers to the unexpected death of an individual, with a diagnosis of epilepsy, who dies suddenly, in benign circumstances, without a structural or toxicological cause for death being found at autopsy. It is not a condition or disease, but rather the category to which these types of unexplained deaths are assigned. SUDEP definition per Nashef 1997.
Further SUDEP Information
http://www.sudepaware.org/sudep_documentation.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). Further information regarding SUDEP. May be found under the following:. Publications, audio clips & web-videos. Or call: 416 556-8770/toll free in US and Canada: 1-855-85-SUDEP (78337).
SUDEP Campaign: how you can help
http://www.sudepaware.org/msos_you_can_help.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). Help us Make Sense of SUDEP. To the Making Sense of SUDEP campaign eNewsletter. And keep up-to-date with the latest:. SUDEP information and campaign news. Upcoming awareness or fundraising events near you. The new Making Sense of SUDEP campaign eBrochures. Young adults with epilepsy. Parents of children with epilepsy. People bereaved by epilepsy.
Campaign materials & events
http://www.sudepaware.org/msos_materials.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). The eToolkit is a set of documents designed to improve understanding of SUDEP and to facilitate its discussion among families, healthcare providers, death investigation professionals and researchers. If you would like to add your organizations logo/details to these brochures, please contact us. Rather than download it to your site. The first compo...
SUDEP Aware www.sudepaware.org
http://www.sudepaware.org/index.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). Welcome to SUDEP Aware. A Canadian charity dedicated to raising awareness and understanding of Sudden Unexpected Death in Epilepsy (SUDEP), with the ultimate goal of finding its cause(s) and prevention. If you would like to include your loved one in the. SUDEP In Memoriam Calendar. Or have any questions,.
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Resources – North American SUDEP Registry (NASR)
http://sudep-registry.org/resources
North American SUDEP Registry (NASR). Please forgive our site's appearance. We are currently undergoing site maintenance. Research & Tissue Donation. Coordinated by the Epilepsy Foundation of America, the SUDEP Institute is a collaboration of nonprofit organizations, medical professionals, parent advocates, and government agencies. It offers SUDEP education for families and doctors; counseling for bereaved families; and supports research into the causes of and ways to prevent SUDEP. PAME is a four-day le...
epilepsyreallystinks.blogspot.com
Epilepsy Really Stinks: September 2012
http://epilepsyreallystinks.blogspot.com/2012_09_01_archive.html
My thoughts, rants, and experiences regarding epilepsy and the stigma attached to those who have it. Seven years ago, my daughter was diagnosed with epilepsy, and it has been a wild ride. I decided my experiences and knowledge just has to be able to help someone, so here I am. Friday, September 7, 2012. Liz continues to do well, which is such a blessing. She’s living a normal 9 year old life, and I love that she gets to. . Tuesday, September 4, 2012. Good News, And Yet, Im Annoyed. Now, why am I annoyed?
epilepsyreallystinks.blogspot.com
Epilepsy Really Stinks: Check Out This Video
http://epilepsyreallystinks.blogspot.com/2014/11/check-out-this-video.html
My thoughts, rants, and experiences regarding epilepsy and the stigma attached to those who have it. Seven years ago, my daughter was diagnosed with epilepsy, and it has been a wild ride. I decided my experiences and knowledge just has to be able to help someone, so here I am. Sunday, November 9, 2014. Check Out This Video. Ted Talk in Boulder About Medical Marijuana and Epilepsy. Subscribe to: Post Comments (Atom). Mom, high school teacher, parent to a child with epilepsy. View my complete profile.
epilepsyreallystinks.blogspot.com
Epilepsy Really Stinks: March 2013
http://epilepsyreallystinks.blogspot.com/2013_03_01_archive.html
My thoughts, rants, and experiences regarding epilepsy and the stigma attached to those who have it. Seven years ago, my daughter was diagnosed with epilepsy, and it has been a wild ride. I decided my experiences and knowledge just has to be able to help someone, so here I am. Thursday, March 28, 2013. Want to play a game? Great Pretend your child has epilepsy, but is 100% controlled on medication. Then pretend that your child has an EEG ran, and it's abnormal. Got it? That was my daughter today.
epilepsyreallystinks.blogspot.com
Epilepsy Really Stinks: Ugh. I'm an epic fail.
http://epilepsyreallystinks.blogspot.com/2014/01/ugh-im-epic-fail.html
My thoughts, rants, and experiences regarding epilepsy and the stigma attached to those who have it. Seven years ago, my daughter was diagnosed with epilepsy, and it has been a wild ride. I decided my experiences and knowledge just has to be able to help someone, so here I am. Monday, January 27, 2014. Ugh I'm an epic fail. She started music therapy through her school last week, and I couldn't be more excited. It's called The Listening Program. And it's through Advanced Brain Technologies.
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SUDEP Action | Making every epilepsy death count
Skip to main content. Making every epilepsy death count. Call us now on 01235 772850. International Epilepsy Day 2015. 30th International Epilepsy Congress. A long hard road. A mother’s determined fight against SUDEP. Charity dinner and auction in memory of Arwyn Williams raises 8,275. Giving bereaved people the chance to drop the mask. Jan Burns speaking at the Houses of Parliament 4 June 2013. Lets Dance for Ellis and SUDEP Action. Loving brother bangs drum about SUDEP. National Epilepsy Week 2014.
Epilepsy Australia
Welcome to Epilepsy Australia. Epilepsy Australia provides education, information andassistance to the 400,000 Australians living with epilepsy. The social consequences of epilepsy are often more difficult to overcom e than the seizures themselves." World Health Organization. Epilepsy Australia is the national coalition of Australian Epilepsy Associations raising our voices as one to advance the cause of all Australians living with epilepsy. Help us reach our goal. Download a Seizure First Aid Poster.
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SUDEP Aware www.sudepaware.org
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). Welcome to SUDEP Aware. A Canadian charity dedicated to raising awareness and understanding of Sudden Unexpected Death in Epilepsy (SUDEP), with the ultimate goal of finding its cause(s) and prevention. If you would like to include your loved one in the. SUDEP In Memoriam Calendar. Or have any questions,.
SUDEP Awareness Day | 23RD OCTOBER | sudepawarenessday.org - Home - sudepawarenessday.org/home - Wantage - Oxfordshire
Welcome to SUDEP Awareness Day, an annual event aimed at raising awareness of Sudden Unexpected Death in Epilepsy. This day is the brainchild of SUDEP Action and is part of our Call for Openness campaign that has attracted global support. Resources and information about how you can get involved in the campaign will be available on this site closer to 23rd October, 2017.
sudepawarenessteamdiane.wordpress.com
sudepawarenessteamdiane | Just another WordPress.com site
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SUDEP Global Conversation
