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My Brother Andrew

Fighting Progressive Bulbar Palsy A type of Lou Gehrig's Disease. MND - Motor Neurone Disease. Working with - www.mndassociation.org. Andrew's Story - Daily Post. Monday, 25 August 2014. Our family`s MND Ice bucket Challenge in Memory of Andrew. We have completed The MND Ice Bucket Challenge! Please donate by Text to ICED55. Any amount to] 70070 - every little bit helps! Http :www.justgiving.com/. And from http:/ www.ebay.co.uk/itm/161403917144. Thursday, 21 June 2012. To find out more about John`s battl...

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My Brother Andrew | supportingandrew.blogspot.com Reviews
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Fighting Progressive Bulbar Palsy A type of Lou Gehrig's Disease. MND - Motor Neurone Disease. Working with - www.mndassociation.org. Andrew's Story - Daily Post. Monday, 25 August 2014. Our family`s MND Ice bucket Challenge in Memory of Andrew. We have completed The MND Ice Bucket Challenge! Please donate by Text to ICED55. Any amount to] 70070 - every little bit helps! Http :www.justgiving.com/. And from http:/ www.ebay.co.uk/itm/161403917144. Thursday, 21 June 2012. To find out more about John`s battl...
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My Brother Andrew | supportingandrew.blogspot.com Reviews

https://supportingandrew.blogspot.com

Fighting Progressive Bulbar Palsy A type of Lou Gehrig's Disease. MND - Motor Neurone Disease. Working with - www.mndassociation.org. Andrew's Story - Daily Post. Monday, 25 August 2014. Our family`s MND Ice bucket Challenge in Memory of Andrew. We have completed The MND Ice Bucket Challenge! Please donate by Text to ICED55. Any amount to] 70070 - every little bit helps! Http :www.justgiving.com/. And from http:/ www.ebay.co.uk/itm/161403917144. Thursday, 21 June 2012. To find out more about John`s battl...

INTERNAL PAGES

supportingandrew.blogspot.com supportingandrew.blogspot.com
1

My Brother Andrew: August 2011

http://supportingandrew.blogspot.com/2011_08_01_archive.html

Fighting Progressive Bulbar Palsy A type of Lou Gehrig's Disease. MND - Motor Neurone Disease. Working with - www.mndassociation.org. Andrew's Story - Daily Post. Monday, 29 August 2011. Available Light #005 - Kathryn Calder - So Easily. Meet Kathryn Calder-she is a Canadian Indie rock musician who performs as a solo artist and is a member of the band The New Pornographers. I came across Kathryn on " Alistair The Optimists " facebook page [ scroll back a couple of posts -to meet Alistair! Andrew played i...

2

My Brother Andrew: Taking a break....

http://supportingandrew.blogspot.com/2012/04/taking-break.html

Fighting Progressive Bulbar Palsy A type of Lou Gehrig's Disease. MND - Motor Neurone Disease. Working with - www.mndassociation.org. Andrew's Story - Daily Post. Monday, 23 April 2012. Back in June 2010 at a family gathering [ the one pictured above actually ] I remember catching sight of a red wristband Andrew was wearing -turning it over I read " Fighting Lou Gehrig`s Disease " The ALS Association. To anyone thinking of fundraising -please go for it! We made him laugh. Thank you to everyone who su...

3

My Brother Andrew: June 2012

http://supportingandrew.blogspot.com/2012_06_01_archive.html

Fighting Progressive Bulbar Palsy A type of Lou Gehrig's Disease. MND - Motor Neurone Disease. Working with - www.mndassociation.org. Andrew's Story - Daily Post. Thursday, 21 June 2012. Bands now back in stock and available from John Saunders. I`am pleased to announce that John Saunders from the blog [ www.jaded-john.net/ ] has now received his new stock of motor neurone disease awareness bands to sell! And then on the tab labeled " team optimism ". Subscribe to: Posts (Atom). Linda Tamborine Valley Que...

4

My Brother Andrew: March 2012

http://supportingandrew.blogspot.com/2012_03_01_archive.html

Fighting Progressive Bulbar Palsy A type of Lou Gehrig's Disease. MND - Motor Neurone Disease. Working with - www.mndassociation.org. Andrew's Story - Daily Post. Tuesday, 27 March 2012. Coffee Morning and flower arranging for MND. The church will be open from 10 am to 11.30 am- and admission will be £1 per person. They work very hard to make the church look beautiful and are a very friendly bunch- always enjoying a good chat and much laughter over a cup of tea or coffee! A little bit of a news update now.

5

My Brother Andrew: Our family`s MND Ice bucket Challenge in Memory of Andrew

http://supportingandrew.blogspot.com/2014/08/our-familys-mnd-ice-bucket-challenge-in.html

Fighting Progressive Bulbar Palsy A type of Lou Gehrig's Disease. MND - Motor Neurone Disease. Working with - www.mndassociation.org. Andrew's Story - Daily Post. Monday, 25 August 2014. Our family`s MND Ice bucket Challenge in Memory of Andrew. We have completed The MND Ice Bucket Challenge! Please donate by Text to ICED55. Any amount to] 70070 - every little bit helps! Http :www.justgiving.com/. And from http:/ www.ebay.co.uk/itm/161403917144. Well done. specially for the little one. Can help you to st...

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steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: Regaining a little independence

http://steveevans35.blogspot.com/2015/06/regaining-little-independence.html

Tuesday, 2 June 2015. Regaining a little independence. The system comprises a mechanical hand which is moved by tiny servos. This was manufactured by Patrick using his 3D printer. Then there's a processing unit, again constructed and programmed by Patrick. The system connects to the eyegaze computer by USB. Finally a screen grid was made to allow eye selection. The system is still in its early stages of development but early tests are promising. The next video was made in the seafront carpark at my flat.

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: We Are Not Alone

http://steveevans35.blogspot.com/2015/04/we-are-not-alone.html

Monday, 6 April 2015. We Are Not Alone. Filming My Father In Life And Death. Click to watch on demand until March 2016. I know from other MND sufferers, the Isaac's and our experience isn't universal but I suspect it's representative of many families dealing with this disease. I am so grateful for your honesty - thank you does not begin to cover it but I dont know what else to say. Thank you. 12 April 2015 at 00:18. Subscribe to: Post Comments (Atom). For those of you who really want to, you can check ou...

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: November 2014

http://steveevans35.blogspot.com/2014_11_01_archive.html

Sunday, 16 November 2014. Perseverance, patience and acceptance” – PatientsLikeMe member Steve shares what it’s like to live with MND. Posted November 14th, 2014. Looking back over the last 7 years since your diagnosis with ALS/MND, is there anything you’d like to have known sooner that has helped you along your journey? You’ve documented your experiences in your film “My Motor Neuron Disease Made Easier” – can you share a little about your inspiration for the project? Eyegaze is undeniably an incredible...

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: August 2014

http://steveevans35.blogspot.com/2014_08_01_archive.html

Tuesday, 26 August 2014. Enduring Motor Neurone Disease. Monday, 25 August 2014. Daniel's and Tracy's ice bucket challenge. Thursday, 21 August 2014. Finally I was determined to make a 60 second version, with the view to getting it on TV as an ad campaign to raise awareness and funds. BUT the minimum cost of airtime for a realistic ad campaign is £25k. So if anyone knows of any organisations who could contribute a few grand, let me know. Wednesday, 6 August 2014. Jake Nailing Muse Again.

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: April 2014

http://steveevans35.blogspot.com/2014_04_01_archive.html

Thursday, 3 April 2014. Just like old times. Almost. So yesterday I decided to return. We drove to Hampton Court station where there are very conveniently placed disabled parking spaces, hopped on a train with the help of the train's guard and was at Waterloo 35 minutes later. We only spent about an hour looking around, not wanting to push our luck. It was nice having made it there again albeit not under my own steam anymore. As always I can't help feeling many of the exhibits fall into "The Empo...After...

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: Enduring Motor Neurone Disease

http://steveevans35.blogspot.com/2014/08/enduring-motor-neurone-disease.html

Tuesday, 26 August 2014. Enduring Motor Neurone Disease. Wow, thats stunned us. Good luck with the campaign. Anna P. 4 September 2014 at 23:55. A very moving video indeed. very moving. I hope youre doing OK at the moment. All the best, Adrian. Ember Gdns. 6 September 2014 at 08:09. Subscribe to: Post Comments (Atom). For those of you who really want to, you can check out my "status" on my web link. Finally, PLEASE leave comments, even if brief as its the only way I know its being read!

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: Quick update

http://steveevans35.blogspot.com/2015/03/quick-update.html

Sunday, 29 March 2015. Subscribe to: Post Comments (Atom). For those of you who really want to, you can check out my "status" on my web link. Finally, PLEASE leave comments, even if brief as its the only way I know its being read! View my complete profile. Pauline's life with MND.

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: December 2014

http://steveevans35.blogspot.com/2014_12_01_archive.html

Wednesday, 10 December 2014. Subscribe to: Posts (Atom). For those of you who really want to, you can check out my "status" on my web link. Finally, PLEASE leave comments, even if brief as its the only way I know its being read! View my complete profile. Pauline's life with MND.

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: June 2015

http://steveevans35.blogspot.com/2015_06_01_archive.html

Tuesday, 2 June 2015. Regaining a little independence. The system comprises a mechanical hand which is moved by tiny servos. This was manufactured by Patrick using his 3D printer. Then there's a processing unit, again constructed and programmed by Patrick. The system connects to the eyegaze computer by USB. Finally a screen grid was made to allow eye selection. The system is still in its early stages of development but early tests are promising. The next video was made in the seafront carpark at my flat.

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: September 2014

http://steveevans35.blogspot.com/2014_09_01_archive.html

Thursday, 11 September 2014. The last event of the summer was Wheels and Wings at Dunsfold Aerodrome. Tracy had advised them of my situation and they offered complementary VIP parking and access to the covered veterans enclosure if it was raining. Totally opposite experience to Farnborough. The highlight of the show was the two remaining airworthy Lancaster bombers flying together. Although when the Vulcan is flying it always steals the show. Subscribe to: Posts (Atom). View my complete profile.

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My Brother Andrew

Fighting Progressive Bulbar Palsy A type of Lou Gehrig's Disease. MND - Motor Neurone Disease. Working with - www.mndassociation.org. Andrew's Story - Daily Post. Monday, 25 August 2014. Our family`s MND Ice bucket Challenge in Memory of Andrew. We have completed The MND Ice Bucket Challenge! Please donate by Text to ICED55. Any amount to] 70070 - every little bit helps! Http :www.justgiving.com/. And from http:/ www.ebay.co.uk/itm/161403917144. Thursday, 21 June 2012. To find out more about John`s battl...

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