specialmommyx2.com
8 years ago
http://specialmommyx2.com/2015/05/21/8-years-ago
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. May 21, 2015. 2007: year of diagnosis. I wonder if our diagnosis day was not so close to her birthday if I would still remember it each year? Early on….sure, of course – 1st year, second year, 5th year maybe. But now eight years later – should it still come to mind? Should my heart still hurt? And eight years…how can that even be possible? Cry the entire year but it was tough. Most ...
specialmommyx2.com
Girl Power 2 Cure
http://specialmommyx2.com/category/girl-power-2-cure
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Girl Power 2 Cure. Girl Power 2 Cure. October 12, 2015. Let that sink in for a second. How much hope does this statement give you? For me it is overwhelming! Click to share on Facebook (Opens in new window). Click to share on Twitter (Opens in new window). Click to share on Google (Opens in new window). Click to email this to a friend (Opens in new window). Girl Power 2 Cure. And ei...
specialmommyx2.com
Uncategorized
http://specialmommyx2.com/category/uncategorized
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. A Day Off (no, out – well off too! October 11, 2015. I apologize for not posting yesterday but I had a day Off I mean out….well I was “off” too. Kristin and I took off for Southbend. Unfortunately our game tickets fell through but Notre Dame on game day is always a fun place to be. It is a HUGE bonus that our aunt lives there […]. Click to share on Facebook (Opens in new window).
specialmommyx2.com
Prom and an attempt at normalcy
http://specialmommyx2.com/2015/04/16/prom-and-an-attempt-at-normalcy
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Prom and an attempt at normalcy. Prom and an attempt at normalcy. April 16, 2015. Suddenly turning ten and thinking about eight years with Rett Syndrome seems insignificant. Prom Ugh. Prom. I can’t bring myself to think that far ahead. To be honest because I can’t – it hurts WAY TO MUCH. Here is what she wrote:. A letter to the mom in the dressing room next to me,. I love you so muc...
specialmommyx2.com
Life with Our Tubie – Changes
http://specialmommyx2.com/2015/06/06/life-with-tubie-changes
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Life with Our Tubie – Changes. Life with Our Tubie – Changes. June 6, 2015. And so the change begins…. Webpage is the official place to keep up with all of the changes as well as a timeline for these changes. I also love the Feeding Tube Awareness Foundation. Website for helpful information. For now the only “new” part I have is the bag – I use the adapter that com...Click to share ...
specialmommyx2.com
Autism Awareness Month
http://specialmommyx2.com/2015/04/06/autism-awareness-month
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. April 6, 2015. We are six days into Autism Awareness Month and I have not blogged. (I know – you are not shocked – I have been quite the blog slacker the past few months) Anyway, this is a tough one. I feel like I just “celebrated” World Down Syndrome Day – oh…because we did…just last month! 8221; I would not hesitate for even a second. Yes. Yes please. This might sound harsh. Ahhhh...
specialmommyx2.com
feeding
http://specialmommyx2.com/category/feeding
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Life with Our Tubie – Changes. June 6, 2015. And so the change begins…. We received the “new” feeding pump bags this month. Those of you who have a kiddo with a feeding tube you know EXACTLY what I am talking about. For those of you who don’t, it seems that quite a few changes are coming down the road in terms of feeding […]. Click to share on Facebook (Opens in new window). Click t...
specialmommyx2.com
Ragnar 4 Rett
http://specialmommyx2.com/2015/04/08/ragnar-4-rett-2
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. April 8, 2015. This weekend six AMAZING women will we running 182 miles for 182 girls with Rett Syndrome in the #. They run because our girls can’t and because our hope is that one day they WILL! Brooklyn is mile 177 and her runner is Kristen, we will be cheering her on from here and hope you will join us! Be sure to stop over and “like” the Ragnar4Rett facebook page. Interested in ...
specialmommyx2.com
So Much to Say
http://specialmommyx2.com/2015/06/12/so-much-to-say
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. So Much to Say. So Much to Say. June 12, 2015. Seven years ago a friend of mine wrote this song for Brooklyn. Today it popped up in my facebook newsfeed for some reason and WOW – talk emotions flooding back! I wanted to share the beautiful words with all of you again today. Silent love, she quiets my soul. All my questions have taken their toll. She has so much to say. I am an ordin...
