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Surviving After SUDEP

Tuesday, October 21, 2014. I Am So ******* Broken. Is what I said as I lay on the floor of my home office. Not because I had broken my left elbow, not because I had thrown my back out (again), not because I had managed to gain back all 80 lbs I lost last year. No, that is all physical. I'm looking at the metaphysical, I am broken. Doesn't mean I'm not broken. Just means I have an overdeveloped sense of responsibility. Done for J2 didn't get a chance to do it for Jeff. I could go on. I am reliving my mist...

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Surviving After SUDEP | survivingaftersudep.blogspot.com Reviews
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Tuesday, October 21, 2014. I Am So ******* Broken. Is what I said as I lay on the floor of my home office. Not because I had broken my left elbow, not because I had thrown my back out (again), not because I had managed to gain back all 80 lbs I lost last year. No, that is all physical. I'm looking at the metaphysical, I am broken. Doesn't mean I'm not broken. Just means I have an overdeveloped sense of responsibility. Done for J2 didn't get a chance to do it for Jeff. I could go on. I am reliving my mist...
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Surviving After SUDEP | survivingaftersudep.blogspot.com Reviews

https://survivingaftersudep.blogspot.com

Tuesday, October 21, 2014. I Am So ******* Broken. Is what I said as I lay on the floor of my home office. Not because I had broken my left elbow, not because I had thrown my back out (again), not because I had managed to gain back all 80 lbs I lost last year. No, that is all physical. I'm looking at the metaphysical, I am broken. Doesn't mean I'm not broken. Just means I have an overdeveloped sense of responsibility. Done for J2 didn't get a chance to do it for Jeff. I could go on. I am reliving my mist...

INTERNAL PAGES

survivingaftersudep.blogspot.com survivingaftersudep.blogspot.com
1

Surviving After SUDEP: Radio Silence

http://www.survivingaftersudep.blogspot.com/2014/10/radio-silence.html

Wednesday, October 15, 2014. I haven't written since February. Not that I haven't had a million things to write about and I have, in a way written so many blogs in my head this year. Unfortunately, I have spent most of this year feeling sorry for myself and not mustering the energy to transfer my thoughts from my head to the computer. In the ER I told my MIL two things. 1) this is a total game-changer and. 2) that I might have gotten it wrong with Jeff but I wasn't going to with J2. My family ordered EMF...

2

Surviving After SUDEP: January 2014

http://www.survivingaftersudep.blogspot.com/2014_01_01_archive.html

Tuesday, January 14, 2014. I was in my pediatrician's office a few weeks ago for J2's five year well check and after telling him the following story he asked "is there anything you don't do? My youngest has sensory processing disorder, ADHD, and a speech delay. He is also "off-the-charts" big in height and weight. Which means he is a good inch or so taller than kids a year older than himself. He is very bright, his delays in speech are improving dramatically and with his twice-weekly occupational therapy...

3

Surviving After SUDEP: The Persepective of Baseball

http://www.survivingaftersudep.blogspot.com/2013/09/the-persepective-of-baseball.html

Wednesday, September 18, 2013. The Persepective of Baseball. If you don't have a child with sensory processing disorder or another special need this may be hard to grasp, but I'm going to try to explain it. Even with the OT, speech therapy, diet changes, doctor appointments, and special needs preschool I seem to harbor the mindset that J2 can do it all, just as J1 has. It is interesting how our perspective can change. J1 and J2's Momma. September 28, 2013 at 5:34 AM. Allison, does he ike the water?

4

Surviving After SUDEP: Mistakes

http://www.survivingaftersudep.blogspot.com/2014/02/mistakes.html

Wednesday, February 5, 2014. January 30th is a hard day for me. It is a day that stands out in my mind because it was the date of Jeff's first seizure. Aside from the fact that the seizure itself was frightening, there are two things that are hard to accept from this day. One, that a healthy 42 year old man could suddenly have a seizure and two, the mistakes I made afterwards. We waited 3 weeks for an appointment with Jeff's pulmonologist. Why did I let his happen? Why when the cardiologist said 6 weeks ...

5

Surviving After SUDEP: J's Mother

http://www.survivingaftersudep.blogspot.com/2014/01/js-mother.html

Tuesday, January 14, 2014. I was in my pediatrician's office a few weeks ago for J2's five year well check and after telling him the following story he asked "is there anything you don't do? My youngest has sensory processing disorder, ADHD, and a speech delay. He is also "off-the-charts" big in height and weight. Which means he is a good inch or so taller than kids a year older than himself. He is very bright, his delays in speech are improving dramatically and with his twice-weekly occupational therapy...

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thenewmans.blogspot.com thenewmans.blogspot.com

Laughter Through Tears: SUDEP-What I wish I had done differently

http://thenewmans.blogspot.com/2012/04/sudep-what-i-wish-i-had-done.html

Saturday, April 28, 2012. SUDEP-What I wish I had done differently. I just returned from cleaning up Joshua's grave. Two hours of wiping down marble, weeding, mulching and planting. The entire time tears were streaming as I went through my constant "if only" questions. Sigh, this has been such a long journey. and yet. it is only the beginning. Partial frontal lobe epilepsy with gelastic seizures. Following some "issues" Josh had begun to show in the weeks preceeding. What is going on? We were very carefu...

thenewmans.blogspot.com thenewmans.blogspot.com

Laughter Through Tears: It's All Gone to the Dogs!

http://thenewmans.blogspot.com/2015/06/its-all-gone-to-dogs.html

Monday, June 29, 2015. It's All Gone to the Dogs! Everyone says it’s summer, but it takes me a moment to realize they're right! Wow, how life has changed! My summer used to be all about keeping the kids entertained, but now. It’s about going to work, and only baring those glowing white legs in shorts on the weekend while I clean the house and do chores. I haven’t seen the neighborhood pool in two years. This is a tradition that spans well over a decade. 8220;almost 16” year old Kayla joined us. For 25 ye...

thenewmans.blogspot.com thenewmans.blogspot.com

Laughter Through Tears: Another Angel in Heaven

http://thenewmans.blogspot.com/2013/06/another-angel-in-heaven.html

Friday, June 21, 2013. Another Angel in Heaven. I went into the store looking for a cardigan sweater to wear in my REALLY cold office, and came out stressed and in a really bad mood. On the drive home, I got really ticked off at all those drivers who seemed to cut me off, or who cut over way too short. They were sooooo aggressive! Oh, and it took way too long to get home tonight! Did make it home, and walked in my house, all I wanted to do was sit and stare at the ceiling fan. This is the third death in ...

thenewmans.blogspot.com thenewmans.blogspot.com

Laughter Through Tears: Stephi's Heart

http://thenewmans.blogspot.com/2013/05/stephis-heart.html

Sunday, May 5, 2013. My Stephi’s sadness has finally shown itself. My middle child; the sensitive one, the peacekeeper, has finally allowed herself to show her brokenness. It breaks my heart and yet it is also a relief. We have been concerned and watching for any signs of trouble since her little brother, Joshua died from SUDEP in 2010. I believe part of the delay of reality is a burden laid by well-meaning but misguided words. Of those who told Stephi to “ take care of your parents. How each of them wer...

thenewmans.blogspot.com thenewmans.blogspot.com

Laughter Through Tears: In a split second

http://thenewmans.blogspot.com/2010/12/in-split-second.html

Wednesday, December 15, 2010. In a split second. December 11, 2010. Today it has been exactly three weeks since Joshua left us to go to the heavens. The first few weeks have been surreal as we reacted with stunned shock and were walked through the motions of burying the earthly body of our youngest child and only son in a peaceful plot on the other side of what has become home. Friends continue to be so supportive and wanting to help in any way possible. I actually find some comfort in being at home alone.

thenewmans.blogspot.com thenewmans.blogspot.com

Laughter Through Tears: Anniversary versus Angelversary

http://thenewmans.blogspot.com/2012/11/anniversary-versus-angelversary.html

Tuesday, November 13, 2012. I'm glad I didn't know then what I know now. That four days later I would lose my youngest to epilepsy. That I would miss my baby boy every moment of every day and a life goal would be to survive.to persevere. It was just a normal family night with a normal family and I am so thankful I had that. On the other hand, four days later is the worst day of the year. Joshua's Angelversary. I'm sure someday it will not bother me as much as it does now with the close proximity ...I am ...

thenewmans.blogspot.com thenewmans.blogspot.com

Laughter Through Tears: Tis the Season

http://thenewmans.blogspot.com/2011/12/tis-season.html

Sunday, December 4, 2011. It has been crazy couple of weeks into this holiday season. We made it through the Angelversary, and headed right in to the season of giving! We're doing a little better this year. We put up some outside lights and even bought a tree and put it in the living room.where it has sat for a week now unadorned. One week before Joshua's Angelversary we received the devastating news "Bleu was full of cancer and had days to live" My girls were devastated! I pleaded with the doctor to hel...

thenewmans.blogspot.com thenewmans.blogspot.com

Laughter Through Tears: Out of the Mouth of Babes

http://thenewmans.blogspot.com/2013/11/out-of-mouth-of-babes.html

Tuesday, November 26, 2013. Out of the Mouth of Babes. It’s Thanksgiving week. Joshua was buried the day before Thanksgiving 2010, so this holiday is crazy hard on us. I hate not having him here, having his chair empty. Enjoying Thanksgiving Lunch with Josh at school - 2009. The 5K in his memory is right after Thanksgiving so the house is filling with family. Coming for both the holiday and the 5K;. I was suddenly inspired to find a puzzle for the fam to work on this Christmas Season. Mom #1 looked at me...

thenewmans.blogspot.com thenewmans.blogspot.com

Laughter Through Tears: When it's just easier to laugh

http://thenewmans.blogspot.com/2013/02/when-its-just-easier-to-laugh.html

Tuesday, February 26, 2013. When it's just easier to laugh. I'm writing today from the well worn spot in my bed. A spot that has seen me in it for about 5 days now. You see, I have been diagnosed with both the flu and whooping cough. I'm feeling very proud of my choice to have the flu shot last fall as it has obviously failed me miserably, and feeling ever the confused part of "I have what? On the pertussis claim from the doctor. Denny, Kyle's father, always understood the boys, and in a special way made...

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Surviving After SUDEP

Tuesday, October 21, 2014. I Am So Fucking Broken. Is what I said as I lay on the floor of my home office. Not because I had broken my left elbow, not because I had thrown my back out (again), not because I had managed to gain back all 80 lbs I lost last year. No, that is all physical. I'm looking at the metaphysical, I am broken. Doesn't mean I'm not broken. Just means I have an overdeveloped sense of responsibility. Done for J2 didn't get a chance to do it for Jeff. I could go on. I am reliving my mist...

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