ayudaparaxgj.org
Ayuda para Xantogranuloma Juvenil (XGJ): August 2010
http://www.ayudaparaxgj.org/2010_08_01_archive.html
Ayuda Para Xantogranuloma Juvenil (XGJ). Unete a la lucha. Sunday, August 15, 2010. REACCIONES AL BLOG (17 semanas de edad). 8220;Solos somos raros. Juntos somos fuertes” fue el slogan del “Día Mundial de las Enfermedades Raras 2010” y este blog es prueba de ello. Cerca de un mes y medio atrás, cuando comencé a escribir, jamás imaginé que el blog de Apoyo Online de Xanthogranuloma Juvenil conseguiría tantos logros en tan poco tiempo, pero lo hizo! Posted by Maria Diaz Myers. EL BLOG (16 SEMANAS DE EDAD).
sydneyfund.blogspot.com
Sydney Salem Golding Fund Blog: New HHRF Video
http://sydneyfund.blogspot.com/2010/01/new-hhrf-video.html
Sydney Salem Golding Fund Blog. Updates on awareness, educational and fund raising efforts supporting histiocytosis, pediatric cancer and neonatal disease. Saturday, January 30, 2010. We wanted to share the new video (with awesome original music) that Bridget Colby has prepared for the Histio Heroes Research Fund (HHRF). Histio Heroes Research Fund - http:/ www.cause.com/histioheroes. TCCC Histiocytosis Program - http:/ www.txccc.org/content.cfm? Sydney Salem Golding Fund. Ride The Rainbow Gala (April 17).
sydneyfund.blogspot.com
Sydney Salem Golding Fund Blog: Help With Holiday Cards
http://sydneyfund.blogspot.com/2009/12/we-wanted-to-provide-links-for-holiday.html
Sydney Salem Golding Fund Blog. Updates on awareness, educational and fund raising efforts supporting histiocytosis, pediatric cancer and neonatal disease. Tuesday, December 1, 2009. Help With Holiday Cards. We wanted to provide links for holiday cards that you can purchase which will support several great causes and help to raise awareness along with spreading season's greetings:. Alex's Lemonade Stand Foundation). Connor's House Holiday Cards. Rainbow Babies and Children's Hospital). A Spark of Hope.
sydneyfund.blogspot.com
Sydney Salem Golding Fund Blog: Rare Disease Day 2010
http://sydneyfund.blogspot.com/2010/02/rare-disease-day-2010.html
Sydney Salem Golding Fund Blog. Updates on awareness, educational and fund raising efforts supporting histiocytosis, pediatric cancer and neonatal disease. Sunday, February 28, 2010. Rare Disease Day 2010. On the last day of February each year, the rare disease community comes together to raise awareness and celebrate its shared strength. NORD (National Organization for Rare Disorders) and its partner organizations proudly sponsor U.S. Rare Disease Day. Some facts from NORD about rare diseases:. Evan's R...
sydneyfund.blogspot.com
Sydney Salem Golding Fund Blog: Histio Heroes In The News
http://sydneyfund.blogspot.com/2010/02/histio-heroes-in-news.html
Sydney Salem Golding Fund Blog. Updates on awareness, educational and fund raising efforts supporting histiocytosis, pediatric cancer and neonatal disease. Monday, February 15, 2010. Histio Heroes In The News. We wanted to highlight several recent stories about brave histio warriors who are currently battling against histiocytosis:. Seward Youth Football Players Huddle To Help One Of Their Own. Sister Gives Her Brother A Miracle. Make-A-Wish Makes Dream Bedroom For 12 Year Old. Sydney Salem Golding Fund.
sydneyfund.blogspot.com
Sydney Salem Golding Fund Blog: Histio In The Headlines
http://sydneyfund.blogspot.com/2009/12/histio-in-headlines.html
Sydney Salem Golding Fund Blog. Updates on awareness, educational and fund raising efforts supporting histiocytosis, pediatric cancer and neonatal disease. Tuesday, December 1, 2009. Histio In The Headlines. We wanted to highlight several recent stories about brave histio warriors who are currently battling against histiocytosis:. A Brother Requests A Helping Hand For His Little Girl. Illness Inspires Boy To Collect Toys For Children In Hospital. It's Been A Tough Year. A Season Of Wishes. Kylie Jane Lon...
sydneyfund.blogspot.com
Sydney Salem Golding Fund Blog: Tanner's Obituary
http://sydneyfund.blogspot.com/2009/11/tanners-obituary.html
Sydney Salem Golding Fund Blog. Updates on awareness, educational and fund raising efforts supporting histiocytosis, pediatric cancer and neonatal disease. Monday, November 23, 2009. We are posting the following obituary that was written by Tanner's father, Alexis Bertauche, and appreciate his family allowing us to share his story. Sydney Salem Golding Fund. Subscribe to: Post Comments (Atom). Pin Oak Charity Horse Show (March 17-28). Imagine A Cure Reception and Silent Auction (March 27). Cinco de Mayo ...
sydneyfund.blogspot.com
Sydney Salem Golding Fund Blog: Liam's Lighthouse Foundation Holiday Ornament Fundraiser
http://sydneyfund.blogspot.com/2009/11/liams-lighhouse-foundation-holiday.html
Sydney Salem Golding Fund Blog. Updates on awareness, educational and fund raising efforts supporting histiocytosis, pediatric cancer and neonatal disease. Monday, November 23, 2009. Liam's Lighthouse Foundation Holiday Ornament Fundraiser. Knowing that people will continue to remember a 20 month old little boy and the number of lessons he has taught us all, brings tears to my eyes. Not only is it a fundraising opportunity for his foundation, but I would feel beyond honored that these lighthouses wil...
sydneyfund.blogspot.com
Sydney Salem Golding Fund Blog: Questions & Answers -- Histio Heroes Research Fund
http://sydneyfund.blogspot.com/2010/01/questions-answers-histio-heroes.html
Sydney Salem Golding Fund Blog. Updates on awareness, educational and fund raising efforts supporting histiocytosis, pediatric cancer and neonatal disease. Saturday, January 30, 2010. Questions and Answers - Histio Heroes Research Fund. We have received questions from a number of histio parents about the Histio Heroes Research Fund (HHRF). And wanted share our response to a recent set of questions which hopefully will provide more information about HHRF, its structure, its goal and future plans. HHRF has...
sydneyfund.blogspot.com
Sydney Salem Golding Fund Blog: Rainbow Radiothon
http://sydneyfund.blogspot.com/2009/11/rainbow-radiothon.html
Sydney Salem Golding Fund Blog. Updates on awareness, educational and fund raising efforts supporting histiocytosis, pediatric cancer and neonatal disease. Monday, November 23, 2009. The WDOK 102.1-FM Rainbow Radiothon was held on November 12 and 13. This year's radiothon raised raised $325,011 to benefit the family and child life programs at Rainbow Babies and Children's Hospital. Sydney Salem Golding Fund. Subscribe to: Post Comments (Atom). Pin Oak Charity Horse Show (March 17-28). A Spark of Hope.
