pattysoksofar.com
Medical | Ok, so far
https://pattysoksofar.com/category/medical
Ok, so far. Figuring out this ALS thing as I go. April 18, 2016. Kristina here, typing for my mom. You may also know me as Daughter #2. That’s it from me. The rest is mom’s. We went to our UCSD ALS clinic appointment the other day. I continue to lose weight, but I don’t recommend ALS as a weight-loss program. In the three and a half years we … Continue reading →. April 11, 2016. February 24, 2016. Zzzzz (Yawn) … I’m awake! January 31, 2016. My eyes are open! Really, I am awake now! January 22, 2016.
pattysoksofar.com
July News…and a Tribute | Ok, so far
https://pattysoksofar.com/2015/07/10/july-news-and-a-tribute
Ok, so far. Figuring out this ALS thing as I go. July News…and a Tribute. July 10, 2015. Summer is in full swing. It’s been a relatively mild one so far. The tourists are complaining about the persistent cloud cover at the beaches. We have sunny afternoons inland where we live, though, and that is enough to prove that, yes, it IS July in southern California. I want to tell the world about the brother I grew up with. I was a pesky little sister, I admit. But my brother has always been kindhearted....Doug ...
pattysoksofar.com
Faith | Ok, so far
https://pattysoksofar.com/category/faith-2
Ok, so far. Figuring out this ALS thing as I go. February 24, 2016. It is strange how sometimes I am able to use Tobii to write what’s on my mind despite all of the powerful drugs coursing through my veins. I am aware that many dear friends, and strangers too, are praying. That must be the reason. I have been thinking about our friend Betty, one of our … Continue reading →. To My Loving Creator. February 4, 2016. January 22, 2016. Trigger warning : panic attack, anxiety Terrifying? Is that the right word?
pattysoksofar.com
Sneaky Little Changes | Ok, so far
https://pattysoksofar.com/2015/04/14/sneaky-little-changes
Ok, so far. Figuring out this ALS thing as I go. April 14, 2015. Sneaky. This incredibly slow moving progression is so sneaky. I get lulled into thinking my ALS symptoms are pretty stable. Then…wham! Shortly before I got my feeding tube last fall, I had been experiencing some occasional choking episodes while taking pills. Of course, as soon as I had the tube, pills began sliding down my throat without a problem. Accompanied by a nice big spoonful of pudding! Soon we will begin using the g-tube for its i...
pattysoksofar.com
About ALS | Ok, so far
https://pattysoksofar.com/about-als
Ok, so far. Figuring out this ALS thing as I go. Here’s what happens: There is progressive degeneration of motor nerve cells in both the brain (upper motor neurons) and spinal cord (lower motor neurons). As a result, motor neurons lose the ability to communicate with muscles. When the muscles do not contract they begin to atrophy, or waste away. This results in weakness. ALS does not affect a person’s ability to move their eyes, or to hear, taste, smell, or sense touch. In most cases, the mind ...That...
pattysoksofar.com
GM604: It’s Complicated | Ok, so far
https://pattysoksofar.com/2015/04/06/gm604-its-complicated
Ok, so far. Figuring out this ALS thing as I go. GM604: It’s Complicated. April 6, 2015. The ALS community has been abuzz with some news about a potential new treatment called GM604. I have refrained from writing about this here for reasons I will explain later in this post. Just what is this drug? How did it come about? How does it affect disease progression? Where are we in the trial process? When can we PALS get it? Over-simplified Knowledge, Somewhat Organized, Fairly Accurate, Reduced. On the other ...
pattysoksofar.com
Speaking of Dogs | Ok, so far
https://pattysoksofar.com/2015/07/16/speaking-of-dogs
Ok, so far. Figuring out this ALS thing as I go. July 16, 2015. I really am spoiled rotten, you know. When I (greedily) asked if I could meet another of our hospice’s therapy dogs, I was surprised when they said, “Sure! 8221; So in addition to my regular visits from Buster, the treat-snarfing wonder schnoodle, I’ve also had two visits from sweet Indra. Was here somewhere. Her efforts were in vain. Henry spends most days in the garage. Especially if he knows there’s a dog in the house. Get licked in the f...
pattysoksofar.com
Ok, so far | Figuring out this ALS thing as I go | Page 2
https://pattysoksofar.com/page/2
Ok, so far. Figuring out this ALS thing as I go. To My Loving Creator. February 4, 2016. To my loving Creator You made the universe, vast and mysterious. You made this galaxy, set it in motion. You made this, our solar system, assigned our star, the sun, its duties, ordered each planet its own unique orbit and properties. You made the earth, filled it with geological wonders, an atmosphere that interacts with … Continue reading →. Zzzzz (Yawn) … I’m awake! January 31, 2016. My eyes are open! As has becom...
pattysoksofar.com
Happy | Ok, so far
https://pattysoksofar.com/2015/07/26/happy
Ok, so far. Figuring out this ALS thing as I go. July 26, 2015. We try to make the most of the little things. When it became pretty clear I had developed an ingrown toenail (. If you’re on my left, don’t assume I can see you.) But, not only did the missing lens cause the glasses to feel lopsided, it looked ridiculous. So off we went. Dollar stores are fun! And potentially hazardous to your wallet. After all, everything you see is only $1! Oh, I guess there may be some exceptions. But, wow. Now, I admit, ...
pattysoksofar.com
Got Your Bucket? | Ok, so far
https://pattysoksofar.com/2015/08/04/got-your-bucket
Ok, so far. Figuring out this ALS thing as I go. August 4, 2015. To be honest, I have been struggling with this post. Not that I did not want to address the return of the ALS Ice Bucket Challenge. But I have other concerns pressing on my heart. Things like complications after “routine” surgery necessitating a 2nd emergency surgery on someone I love. Things like cancer coming back after its apparent defeat, hurting a dear friend who has been such an encouragement to me. It does not require water or ice or...
