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Can I get a Witness?

Can I get a Witness? Thursday, September 22, 2011. I was just informed by my UCLA study representative (we've moved into an extension study) that Otsuka will be using the Riverside Data to present to the FDA successful results in the Tolvaptan Trial. They are hoping for a fast track for the drug since it is currently in use for heart patients. Friday, October 16, 2009. Discouragement or results anxiety? No one knows. Just like the famous quote about the movie business - "nobody knows anything". Y...Remis...

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Can I get a Witness? | syringesoldier.blogspot.com Reviews

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Can I get a Witness? Thursday, September 22, 2011. I was just informed by my UCLA study representative (we've moved into an extension study) that Otsuka will be using the Riverside Data to present to the FDA successful results in the Tolvaptan Trial. They are hoping for a fast track for the drug since it is currently in use for heart patients. Friday, October 16, 2009. Discouragement or results anxiety? No one knows. Just like the famous quote about the movie business - nobody knows anything. Y...Remis...

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Can I get a Witness? | syringesoldier.blogspot.com Reviews

https://syringesoldier.blogspot.com

Can I get a Witness? Thursday, September 22, 2011. I was just informed by my UCLA study representative (we've moved into an extension study) that Otsuka will be using the Riverside Data to present to the FDA successful results in the Tolvaptan Trial. They are hoping for a fast track for the drug since it is currently in use for heart patients. Friday, October 16, 2009. Discouragement or results anxiety? No one knows. Just like the famous quote about the movie business - "nobody knows anything". Y...Remis...

INTERNAL PAGES

syringesoldier.blogspot.com

1

Can I get a Witness?: May 2007

http://www.syringesoldier.blogspot.com/2007_05_01_archive.html

Can I get a Witness? Thursday, May 31, 2007. Which one do I want? Seem silly, doesn't it? Taking a sugar pill for 3 and a half years. Today I get the Tolvaptan. But which one do I want? I really can't answer that. Seems enough right now just to participate, be close to the heat. I actually feel like I'm doing something to fight this disease and that. Friday, May 25, 2007. I'm convinced they rounded up. Study, hard to hear. I really wanted Lovely to tell me that mistakes had been made! Enough, I'll be fine.

2

Can I get a Witness?: It took my breath away

http://www.syringesoldier.blogspot.com/2007/09/it-took-my-breath-away.html

Can I get a Witness? Tuesday, September 4, 2007. It took my breath away. Gossip. I have some. It is medical gossip. I can't verify it's truth. Don't know the people who uttered it. Couldn't tell you on which end of the telephone. Line this tidbit lies,. Dare I be the purveyer? Sit closer and hear this. In a chat room, someone said that. Lovely Lorie said that. A participant who had been on Tolvaptan. For a year has. Show a reduction in his kidney size,. A lessening of pain and a shrinkage of cysts. PKD, ...

3

Can I get a Witness?: August 2008

http://www.syringesoldier.blogspot.com/2008_08_01_archive.html

Can I get a Witness? Sunday, August 17, 2008. Remiss in posting my test results. Wish I could offer remission as an excuse for my being remiss, but really I just checked out for a while. On May 21, 2008 I underwent to immersion into the MRI. Not as annoying the 2nd time, I got an extra pillow for my arms. Here is the results:. No growth in the size of the kidneys". Number of cysts is probably slightly increased from previous examination". Subscribe to: Posts (Atom). Remiss in posting my test results.

4

Can I get a Witness?: She's back.

http://www.syringesoldier.blogspot.com/2009/10/shes-back.html

Can I get a Witness? Friday, October 16, 2009. I decided to ignore this annoying aspect of my life by not blogging for the past year. I have to say it was a relief. I've got a lot going on . Discouragement or results anxiety? Of course I have no way of knowing is my results are considered a success or failure as progression of this disease has never been measured via MRI cyst count. So we really don't know. Skippy sls@yahoo.com said. Even if it slows down the cysts, Id happily take it the rest of my life.

5

Can I get a Witness?: October 2009

http://www.syringesoldier.blogspot.com/2009_10_01_archive.html

Can I get a Witness? Friday, October 16, 2009. I decided to ignore this annoying aspect of my life by not blogging for the past year. I have to say it was a relief. I've got a lot going on . Discouragement or results anxiety? Of course I have no way of knowing is my results are considered a success or failure as progression of this disease has never been measured via MRI cyst count. So we really don't know. Subscribe to: Posts (Atom). PKD, my timebomb. It is not how I define myself but it is why I am...

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soulmatesoflove.blogspot.com

SoulMates Of Love: April 2008

http://soulmatesoflove.blogspot.com/2008_04_01_archive.html

Send your letter to anyone you feel at: writealetteraboutthat@hotmail.com Names, dates, places and times can be changed for your protection. I would like to remind you that once you send in your letter to me, it can be posted anywhere unless you request otherwise. Warning: Anyone who sends a letter and is under 18 years of age will have their information changed for their safety. View my complete profile. Monday, April 21, 2008. Http:/ www.pkdcure.org/site/PageServer? Part of the DaVita.com network.

pkdnotes.wordpress.com

Cure vs Support | PKD Notes

https://pkdnotes.wordpress.com/2009/05/08/cure-vs-support

Updates, information, news and comments on polycystic kidney disease. May 8, 2009. There’s a fair bit of talk in patients rights and disability rights activist circles on the nature of charities and foundations that heavily and nearly almost solely promote and fund research towards a cure, versus funding support for people living with illness and disability. Duncan Cross has a post titled Don’t Walk. About how he has. Some problems with the research/fund-raising agenda most disease organizations pursue.

h2elppkd.com

About | h2elp PKD

https://h2elppkd.com/about

Water Loading for PKDers. It is assumed that if you found this website that you are versed in Polycystic Kidney Disease, a potentially fatal genetic disorder that wreaks devastation on entire families. You probably know that it is estimated that PKD affects 600,000 Americans, with approximately 5,000 PKDers on the kidney transplant waiting list. The cost to taxpayers runs more than $2 billion per year. Now for the disclaimers:. Here is what we are not:. But here is what we are:. Leave a Reply Cancel reply.

soulmatesoflove.blogspot.com

SoulMates Of Love: PKD!

http://soulmatesoflove.blogspot.com/2008/04/pkd.html

Send your letter to anyone you feel at: writealetteraboutthat@hotmail.com Names, dates, places and times can be changed for your protection. I would like to remind you that once you send in your letter to me, it can be posted anywhere unless you request otherwise. Warning: Anyone who sends a letter and is under 18 years of age will have their information changed for their safety. View my complete profile. Monday, April 21, 2008. Http:/ www.pkdcure.org/site/PageServer? Part of the DaVita.com network.

pkdnotes.wordpress.com

Online resources for PKD people | PKD Notes

https://pkdnotes.wordpress.com/2009/05/04/online-resources-for-pkd-people

Updates, information, news and comments on polycystic kidney disease. Online resources for PKD people. May 4, 2009. Online communities can be a great source of support and help for those living with illness or disability. So what’s out there for PKD people? The Polycystic Kidney Disease Foundation has started an online community called Hope Square. It’s in beta at the moment, so go on over, join up and offer your constructive criticism. It looks a little bit like a Ning. Another Yahoo Group is PKD Care.

pkdnotes.wordpress.com

Welcome to PKD Notes | PKD Notes

https://pkdnotes.wordpress.com/2009/05/03/welcome

Updates, information, news and comments on polycystic kidney disease. Welcome to PKD Notes. May 3, 2009. I’ll be posting news, information, and other updates on Polycystic Kidney Disease. On Twitter too: follow @PKDnotes. I know the PKD Foundation. Has a great site including news on PKD, but this blog is from a patient’s perspective. And readers can comment directly on the posts and talk to me via Twitter if they want. I also consider myself an ‘ e-patient. From → General posts. Leave a Reply Cancel reply.

pkdnotes.wordpress.com

Your eGFR might be a little inaccurate | PKD Notes

https://pkdnotes.wordpress.com/2009/05/26/your-egfr-might-be-a-little-inaccurate

Updates, information, news and comments on polycystic kidney disease. Your eGFR might be a little inaccurate. May 26, 2009. However, like many pathology tests, they have their limitations. Here are some reasons why it could be a good idea to discuss your results more fully with your doctor:. The MDRD and Cockroft-Gault equations can also be inaccurate in those with reasonably good kidney function (Stage 1 or 2). The Mayo Quadratic equation is argued to be best in those people. I should also note that doi...

pkdnotes.wordpress.com

How do cysts grow in polycystic kidneys? How can we stop them? | PKD Notes

https://pkdnotes.wordpress.com/2009/05/21/how-do-cysts-grow-in-polycystic-kidneys

Updates, information, news and comments on polycystic kidney disease. How do cysts grow in polycystic kidneys? How can we stop them? May 21, 2009. There’s a lot of very interesting clinical trials going on a the moment, and most are sounding quite promising. There are 34 listed at clinicaltrials.gov. Substance which stimulates the accumulation of cyclic adenosine monophosphate. Source: Therapuetic approaches to ADPKD. We also now know that the hypertension seen in most PKD people is probably. Edit: Comme...

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Can I get a Witness?

Can I get a Witness? Thursday, September 22, 2011. I was just informed by my UCLA study representative (we've moved into an extension study) that Otsuka will be using the Riverside Data to present to the FDA successful results in the Tolvaptan Trial. They are hoping for a fast track for the drug since it is currently in use for heart patients. Friday, October 16, 2009. Discouragement or results anxiety? No one knows. Just like the famous quote about the movie business - "nobody knows anything". Y...Remis...

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