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Life In The NICU. Our Life With Carter. February 11, 2014. My Words Will Be Your Light - To Carry You To Me. I get so caught up in all of the good stuff we try to do for you, that it seems like something has to give.and the blog has been the thing to give. I can promise to try harder to update, but just can't be sure if I can keep it, so I'll just say that I'm going to just keep on keepin' on and know that you understand. I tend to think that it is a blessing that I know to wake up at that moment. I sat ...

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Team Carter | teamcarterjay.blogspot.com Reviews
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Life In The NICU. Our Life With Carter. February 11, 2014. My Words Will Be Your Light - To Carry You To Me. I get so caught up in all of the good stuff we try to do for you, that it seems like something has to give.and the blog has been the thing to give. I can promise to try harder to update, but just can't be sure if I can keep it, so I'll just say that I'm going to just keep on keepin' on and know that you understand. I tend to think that it is a blessing that I know to wake up at that moment. I sat ...
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Team Carter | teamcarterjay.blogspot.com Reviews

https://teamcarterjay.blogspot.com

Life In The NICU. Our Life With Carter. February 11, 2014. My Words Will Be Your Light - To Carry You To Me. I get so caught up in all of the good stuff we try to do for you, that it seems like something has to give.and the blog has been the thing to give. I can promise to try harder to update, but just can't be sure if I can keep it, so I'll just say that I'm going to just keep on keepin' on and know that you understand. I tend to think that it is a blessing that I know to wake up at that moment. I sat ...

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1

Team Carter: From The Beginning

http://teamcarterjay.blogspot.com/p/from-beginning.html

Life In The NICU. Our Life With Carter. I knew that I was prone to miscarriage, but it still hit me very hard. We found out a couple of weeks later that the pregnancy had actually been a Molar Pregnancy. Doesn't that sound awful? But as we all know, God has a plan. We felt his calling to try and get pregnant one more time, and it's a good thing we listened because it wasn't long before I was pregnant with Carter. The good news is that our baby has a brain? The heart, the kidneys, the lip. The knot in my ...

2

Team Carter: 06/01/2013 - 07/01/2013

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Life In The NICU. Our Life With Carter. June 11, 2013. What's Been Goin' On? Here is an article I recently wrote for your Daddy's newsletter:. Having a newborn in the NICU and with complex medical issues was much different than what we had been used to with Carter’s healthy brother and sister. It wasn’t very often that we would hear somebody say something positive about our little guy. Of course, we always ALWAYS fought for Carter, and fought to stay on the positive side of things. We were surprised beca...

3

Team Carter: 11/01/2012 - 12/01/2012

http://teamcarterjay.blogspot.com/2012_11_01_archive.html

Life In The NICU. Our Life With Carter. November 30, 2012. Last summer, we were surprised to find a couple of very odd birds hanging out right by our driveway. Every time somebody would walk by them on the sidewalk, the birds would run away and act as though their wings were broken. After a bit of research, we realized that these birds were called Killdeer, and they use this act to entice you away from their eggs. These birds will put on a crazy show to get the predator away from their nest. It was a mom...

4

Team Carter: Life In The NICU

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Life In The NICU. Our Life With Carter. Life In The NICU. Carter's story began on March 27, 2009. This is the very condensed version since I have practically a day by day account of Carter's entire life. If you want to read my actual posts from that time you can check out The Day Carter Was Born. I felt so helpless. This wasn't how it was supposed to be. This is not how it was supposed to be. He was one of THOSE guys. You know the ones. The one who's got a HUGE ego. The one who is NEVER wrong. I remember...

5

Team Carter: My Words Will Be Your Light - To Carry You To Me

http://teamcarterjay.blogspot.com/2014/02/my-words-will-be-your-light-to-carry.html

Life In The NICU. Our Life With Carter. February 11, 2014. My Words Will Be Your Light - To Carry You To Me. I get so caught up in all of the good stuff we try to do for you, that it seems like something has to give.and the blog has been the thing to give. I can promise to try harder to update, but just can't be sure if I can keep it, so I'll just say that I'm going to just keep on keepin' on and know that you understand. I tend to think that it is a blessing that I know to wake up at that moment. I sat ...

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The 4 Smith Boys: The little devils

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The 4 Smith Boys. Thursday, November 15, 2012. As our morning went on, I hear Bekham giggling like crazy in the living room. At this point, I'm just happy that this littlest monster is not screaming or banging his head on the hard floor and I leave him be. After a bit he runs to get me to show me what he's been laughing about and this is what I find. YES, that is our cat shoved into the book case with the door closed and YES, Bekham put her in there. Thursday, November 15, 2012. Bonnie By the Bay.

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Compatible With Joy-Trisomy18: Time to Throw in the Towel

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/time-to-throw-in-towel.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Saturday, May 2, 2015. Time to Throw in the Towel. Yep, that kinda says it all. I called his ped yesterday morning and they changed his med to a different one, a hopefully better one. But by afternoon, "stuff" was just pouring out of him. Almost literally pouring out. But that's not where he is right now. Four weeks ago, he weighed 20&#...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Trisomy 18 Awareness Day

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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Wednesday, March 18, 2015. Trisomy 18 Awareness Day. I've tried for days to come up with something "important" or "profound" to say about today, and it just hasn't happened. Words can't convey the sorrow we feel when a child passes on, even if we haven't met them in person, the grief that rips at our soul, or the niggling of guilt that ...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: We Just Don't Know...

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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Monday, May 4, 2015. We Just Don't Know. This kid is a mystery. He's not playing by the rules, which is often a good thing, but kinda perplexing. Here's what we know:. His first test was positive, his second (and third 'cause they were so surprised at the results) were negative. But this kiddo has a real sense of humor. The nasty di...

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Compatible With Joy-Trisomy18: The "Go" Bag

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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Here's what we travel with for Aaron. It seems really complicated, but it's not, because we only had to organize it once. Then when we use something, we just make sure to replace it. Except there was the one time when I forgot to replace diapers and ended up without any. Arg! The one staple of EVERY baby's "go" bag. Suction catheters (B...

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Compatible With Joy-Trisomy18: Medical History Template

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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Page 1 - this is the most important page. MEDICAL ACTION (full code, dnr, no cpr, whatever). In this text box put:. Insurance Co and policy #. EGA (gestational age @ birth). Birth weight and blood type. Current weight and date last weighed. Trach size, vent settings. G-tube size, etc that would. Be needed ASAP in an. Anytown, ST 00000.

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Compatible With Joy-Trisomy18: What Is Trisomy 18?

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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. What Is Trisomy 18? Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy. Subscribe to: Posts (Atom).

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Laugh-Love-Lose: September 2010

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Thursday, September 23, 2010. Here we are at day. 1 Is it day 61 or is it day 1 all over again? Just a thought to ponder! Now, I am off to work. Sometimes I walk a lot at work. Today I am going to put on my pedometer for fun and just see what it tells me because I am curious sometimes just how many steps I take at work! Tonight Natalie has dance but my plan is to ride my bike afterward. I will TRY to accomplish that goal. Wednesday, September 22, 2010. Subscribe to: Posts (Atom). View my complete profile.

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Compatible With Joy-Trisomy18: Happy 11 Months!

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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Friday, May 13, 2011. BUT, come Thursday, his tummy had stretched and his meds had kicked in and lowered his lung pressures. Lo and behold, we're back down low on his oxygen usage and high on the smiles! He's still taking his antibiotics, but those will be done tomorrow. The weather is also gorgeous so I'm going to try to take him t...

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Compatible With Joy-Trisomy18: Pertinent Medical History

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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. This is by no means exhaustive. It can be used to help others who want to know what can be done for our little ones. Aaron is a 25 month old male with full Trisomy 18 diagnosed prenatally. He was born via C-section at 37 weeks, 2 days due to persistent heart decelerations with delayed recovery. He was not breathing at birth. Intubation ...

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Team Carter

Life In The NICU. Our Life With Carter. February 11, 2014. My Words Will Be Your Light - To Carry You To Me. I get so caught up in all of the good stuff we try to do for you, that it seems like something has to give.and the blog has been the thing to give. I can promise to try harder to update, but just can't be sure if I can keep it, so I'll just say that I'm going to just keep on keepin' on and know that you understand. I tend to think that it is a blessing that I know to wake up at that moment. I sat ...

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