teamkennedy.org

Team Kennedy

Our beautiful baby girl has been diagnosed with Spinal Muscular Atrophy, Type 1. SMA is a genetic disorder, recessively inherited, which means both parents would have to carry the faulty gene. There is no family history of this disorder on either side. The prognosis is grim and there is no cure, but there is hope as research is advancing quickly. Here is more information on the disorder: http:/ www.smafoundation.org/faq. Please keep our baby girl in your thoughts. Jennifer and Christian Swann.

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Our beautiful baby girl has been diagnosed with Spinal Muscular Atrophy, Type 1. SMA is a genetic disorder, recessively inherited, which means both parents would have to carry the faulty gene. There is no family history of this disorder on either side. The prognosis is grim and there is no cure, but there is hope as research is advancing quickly. Here is more information on the disorder: http:/ www.smafoundation.org/faq. Please keep our baby girl in your thoughts. Jennifer and Christian Swann.

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Team Kennedy | teamkennedy.org Reviews

https://teamkennedy.org

Our beautiful baby girl has been diagnosed with Spinal Muscular Atrophy, Type 1. SMA is a genetic disorder, recessively inherited, which means both parents would have to carry the faulty gene. There is no family history of this disorder on either side. The prognosis is grim and there is no cure, but there is hope as research is advancing quickly. Here is more information on the disorder: http:/ www.smafoundation.org/faq. Please keep our baby girl in your thoughts. Jennifer and Christian Swann.

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teamkennedy.org

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Team Kennedy

http://www.teamkennedy.org/legislation.html

Thank you to all those who call, faxed, emailed, and wrote to their Congressional leaders in the fall of 2010 . we gained more momentum because of your efforts.

2

Team Kennedy

http://www.teamkennedy.org/help.html

In lieu of donations to the family, the Swann's would like all funds to go to Sophia's Cure Foundation. This foundation is currently providing significant funding and research efforts on new gene therapies that are looking very positive for SMA kids. Click on the logo below to make a donation in Kennedy's name to Sophia's Cure. We are hoping to provide a variety of options for those that live far and near to provide assistance in the immediate, near, and long term. Calendared items needed include:.

3

Team Kennedy

http://www.teamkennedy.org/team.html

Kennedy has a team of family, friends, and cheerleaders who have lovingly joined, what is now dubbed Team Kennedy. We know that we will need to rely on friends and family as the treatments, therapies, and time progress. Thank you in advance for helping support all the Swanns, Schlotterbecks, Woodsons, and Longs through this. Mom - Jennifer Swann. Dad - Christian Swann. Big Brother - Jacob Swann. Kerry Long Aunt Kerry. Tony Long Uncle Tony. Nathan Schlotterbeck Unca Nate. Isabella Long Cousin Bella.

4

Team Kennedy

http://www.teamkennedy.org/photos.html

Below are photos from the various events, fundraisers, and activities we've had through Team Kennedy and other SMA organizations. October 2010 - Garage Sale. November 2010 - Garage Sale. November 2010 - SMA Walk. December 2010 - Birthday Celebration. December 2011 - Birthday Celebration. December 2011 - Christmas Day. March 2012 - Crystal Cove Trip. April 2012 - Descanso Gardens Trip. December 2012 - Crystal Cove Trip. August 2013 - Disney Cruise to Alaska. October 2013 - Disney Cruise to Caribbean.

5

Team Kennedy

http://www.teamkennedy.org/sma.html

Spinal Muscular Atrophy (SMA) is the number one genetic killer of children under the age of two, but have you ever heard of it? SMA is an inherited and often fatal disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing. It is in the family Muscular Dystrophies which involves muscles that become weak and lose muscle tissue over time. Basic Scien ce Research.

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Our beautiful baby girl has been diagnosed with Spinal Muscular Atrophy, Type 1. SMA is a genetic disorder, recessively inherited, which means both parents would have to carry the faulty gene. There is no family history of this disorder on either side. The prognosis is grim and there is no cure, but there is hope as research is advancing quickly. Here is more information on the disorder: http:/ www.smafoundation.org/faq. Please keep our baby girl in your thoughts. Jennifer and Christian Swann.

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