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teamtilda | Living with Batten DiseaseLiving with Batten Disease
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Living with Batten Disease
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Living with Batten Disease
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End of 2014 | teamtilda
https://teamtilda.wordpress.com/2014/12/17/end-of-2014
Living with Batten Disease. I also broke my ankle last week! I have 6 weeks in a cast which is absolutely not fun at all, especially given that I live up a steep, slippery, narrow little staircase! Again, my friends and family have rallied so I am being taken care of. I started off very poorly but I am getting MUCH better at manoeuvring myself about on crutches and Maggie has proved herself to be very useful, fetching my phone and carrying plates to the table. Thoughts from this week. Best love, Louise.
The Tilda Effect | teamtilda
https://teamtilda.wordpress.com/2014/02/06/the-tilda-effect
Living with Batten Disease. I cannot fathom how she could possibly just be gone. No more. Ended. Over. How can Tilda suddenly not be? I do not forgive Batten disease. I do not believe that she needed to go through any of it so that I could learn a profound lesson. I am still angry and sad and missing her every minute. But The Tilda Effect, my balm, soothes some of my aching heart. The last photo capturing that beautiful smile. A return to study and a return to Darwin →. February 7, 2014 at 7:46 am. Absol...
October | 2014 | teamtilda
https://teamtilda.wordpress.com/2014/10
Living with Batten Disease. Archive October, 2014. I had the privilege and heartbreak of meeting a whole bunch of Batten families over the weekend. Families with children who were still here and families with children who had passed away. It was surreal and challenging and emotional and wonderful and terrible. I went with Nicole and Maggie. Nicole met and fell in love with Max, a beautiful boy born 6 days after her own Jack. It was uncanny how similar they were. On Sunday, there was a memorial service.
November | 2014 | teamtilda
https://teamtilda.wordpress.com/2014/11
Living with Batten Disease. Archive November, 2014. Thoughts from this week. I wish that I had washed her body after she died. Sometimes I feel so fucking rational. Unable to let go with the passion and ferocity that would feel like a release. Wailing. Screaming. Ranting. Writing soothes. Takes the twisted thoughts and sets them down. This year has gone too fast. I miss that smile. Enter your email address to subscribe to this blog and receive notifications of new posts by email. Join 854 other followers.
teamtilda | Living with Batten Disease | Page 2
https://teamtilda.wordpress.com/page/2
Living with Batten Disease. I also broke my ankle last week! I have 6 weeks in a cast which is absolutely not fun at all, especially given that I live up a steep, slippery, narrow little staircase! Again, my friends and family have rallied so I am being taken care of. I started off very poorly but I am getting MUCH better at manoeuvring myself about on crutches and Maggie has proved herself to be very useful, fetching my phone and carrying plates to the table. Thoughts from this week. Devastated to hear ...
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a canvas or a cold? | karla akehurst
https://karlaakehurst.wordpress.com/2014/09/24/a-canvas-or-a-cold
Byron bay abstract artist. GOLD COIN ART SALE! Leas than 12 hrs away! A canvas or a cold? September 24, 2014. And I say this because, well simply, it is true! I love what I do and I do what I love and I want to share it with you! View all posts by karla akehurst →. This entry was posted in art. And tagged abstract art. GOLD COIN ART SALE! Leas than 12 hrs away! A canvas or a cold? September 24, 2014 at 5:29 pm. Leave a Reply Cancel reply. Enter your comment here. Address never made public). An Internatio...
the art of miscarriage | karla akehurst
https://karlaakehurst.wordpress.com/2015/02/27/the-art-of-miscarriage
Byron bay abstract artist. Leas than 12 hrs away! The art of miscarriage. February 27, 2015. Http:/ www.karlaakehurstart.com/blog. And I say this because, well simply, it is true! I love what I do and I do what I love and I want to share it with you! View all posts by karla akehurst →. This entry was posted in art. Leas than 12 hrs away! Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). Follow Blog via Email. Art, Phot...
gallery | karla akehurst
https://karlaakehurst.wordpress.com/gallery
Byron bay abstract artist. 8216;finding my thing’ 2014. 8216;the wonderland effect’ 2014. 8216;existing like we don’t exist’ 2014. 8216;persistent inspiration’ 2013. 8216;black as day and as bright as night’ 2013. 8216;road to recovery’ 2013. 8216;the girl in her final flight’ 2013. 8216;trendy to copy and paste’ 2013. 8216;confidence of a bumblebee’ 2013. 8216;alive in living’ 2013. 8216;exposed’ 2013. 8216;chaos’ 2013. 8216;he’ 2013. 8216;she’ 2013. 8216;no such thing as too much’ 2013. Fill in your de...
karla akehurst | karla akehurst
https://karlaakehurst.wordpress.com/author/karlaakehurst
Byron bay abstract artist. Author Archives: karla akehurst. And I say this because, well simply, it is true! I love what I do and I do what I love and I want to share it with you! The art of miscarriage. February 27, 2015. Http:/ www.karlaakehurstart.com/blog. Leas than 12 hrs away! September 30, 2014. To be a part of the GOLD COIN ART SALE you MUST read the how to here: http:/ www.karlaakehurstart.com/blog/less-than-12hrs. A canvas or a cold? September 24, 2014. September 24, 2014. GOLD COIN ART SALE!
leas than 12 hrs away!!! | karla akehurst
https://karlaakehurst.wordpress.com/2014/09/30/leas-than-12-hrs-away
Byron bay abstract artist. A canvas or a cold? The art of miscarriage →. Leas than 12 hrs away! September 30, 2014. To be a part of the GOLD COIN ART SALE you MUST read the how to here:. Http:/ www.karlaakehurstart.com/blog/less-than-12hrs. And I say this because, well simply, it is true! I love what I do and I do what I love and I want to share it with you! View all posts by karla akehurst →. This entry was posted in art. And tagged abstract art. A canvas or a cold? The art of miscarriage →. Robert J Bu...
karla akehurst | byron bay abstract artist | Page 2
https://karlaakehurst.wordpress.com/page/2
Byron bay abstract artist. Newer posts →. Press ‘print’. August 28, 2014. NEW RANGE of limited edition prints launching titled ‘simplicity.’. Head over to my blog to hear the full story or select artonprint. To view the new range. Http:/ www.karlaakehurstart.com/1/post/2014/08/press-print.html. August 15, 2014. Thank you everyone for this support and continued interest. It is greatly appreciated and keeps me going xxx. Forever and ever, Amen. August 15, 2014. August 3, 2014. July 21, 2014. If I had to pr...
Links | Holding on to Kate
http://www.holdingontokate.com/links-2
Holding on to Kate. To Create Awareness Of, And Work Towards A Cure For Batten Disease. Skip to primary content. A Walk Down Memory Lane. BDSRA Christmas party 2011. 5k registration form 2014. Batten Disease Support & Research Association. Hudson and Leila Mimlitsch. Leave a Reply Cancel reply. Your email address will not be published. Required fields are marked *. Proudly powered by WordPress.
Our Debut – a journey south of the border | THE BEST BATCH
https://thebestbatch.wordpress.com/2014/09/05/our-debut-a-journey-south-of-the-border
Shaun the Sheep…. Get Your Curd on! Plenty More where this came from. Our Debut – a journey south of the border. Cook authentic Tex-Mex (and impress your friends). Questionable in parts but plenty of healthy bits. Some fancy tricks but mostly pretty simple. Texas wet ribs and pecan pie. We decided to debut our blog with. Tex Mex from Scratch. Chunky Guacamole with Corn Chips. Texas Wet Ribs with Poblano Potato Salad, Elotes (Grilled Corn on the Cob) and Apple Coleslaw. Game day – we gave ourselves ...
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Team Tilby Realty - Bryan College Station Real Estate Services. Buying, Selling, and Leasing Bryan College Station. 2801 Earl Rudder Freeway South. College Station, TX. Search for a Home. Find your Home's Value. Get a free comparative market analysis of your home's value sent to you with no obligations. Welcome to Keller Williams Realty the home of Team Tilby! This is about more than real estate. It is about your life and your dreams. Turning houses into HAPPY HOMES! How we can help? We Do Business in Ac...
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Sidan du försöker nå är för tillfället avstängd. Om du är innehavaren av sidan, vänligen kontakta Binero AB för att lösa problemet. Varför är sidan avstängd? Orsaken till avstängningen kan variera, sidan kan ha stängts av på grund av att sidan har blivit hackad, en faktura har missats att betala, sidan tar för mycket resurser. Varför välja oss? Välj oss som din webbhotells- och domännamnsleverantör om du vill ha:. Snabb och skicklig telefon- och e-postsupport. Stora webbpaket och billiga domännamn. Piper...
teamtilda | Living with Batten Disease
Living with Batten Disease. It has been a year and a half since Tilda died. 569 days actually. And there is now a feeling of being back in this world. Outside that bubble. And I’m not sure how I feel about it. This world seems grittier, harsher and tainted with sadness. Politics seems meaner. Closer to home, the faded bubble sees The Tilda effect. A recognition of the importance of family and friends and love and support? These things matter. Hang on to them. 5 months into 2015. Such an innocent question...
Team Tilden
A peek at the more interesting parts of our lives. Wednesday, October 27, 2010. 2008 was my year of accidents. 2009 was my year of recovery. 2010 my year of letting nothing stop me! Last October I participated in an all woman sprint in San Diego. The race was my first race after my accident; my goal was to do a race within a year of getting hurt. This race seemed to be the perfect one, and it was. This race was my kick-start to the upcoming year. Dessert Tri – Olympic. CA 703 - Half-Ironman. With all the...
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