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Association for Frontotemporal Degeneration: Opening the gateway to help and a cure

  AFTD is the place to turn for accurate information, compassion and hope when lives are touched by frontotemporal degeneration (FTD).  We are glad you found us. Whether you are diagnosed, are a family member or friend of someone who is, or work in the field, AFTD is here for you.   Resources: Newly Diagnosed Disease Overview Understanding the FTD Disorders About [...]

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The Association for Frontotemporal Degeneration

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The Association for Frontotemporal Degeneration

Michelle Leahy

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US

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ml●●●●@theaftd.org

View this contact

The Association for Frontotemporal Degeneration

Michelle Leahy

Radnor Statio●●●●●●●●●●●●● Suite 320

Ra●●or , Pennsylvania, 19087

US

1.26●●●●7221
ml●●●●@theaftd.org

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Association for Frontotemporal Degeneration: Opening the gateway to help and a cure | theaftd.org Reviews
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&nbsp; AFTD is the place to turn for accurate information, compassion and hope when lives are touched by frontotemporal degeneration (FTD).  We are glad you found us. Whether you are diagnosed, are a family member or friend of someone who is, or work in the field, AFTD is here for you.   Resources: Newly Diagnosed Disease Overview Understanding the FTD Disorders About [...]
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Association for Frontotemporal Degeneration: Opening the gateway to help and a cure | theaftd.org Reviews

https://theaftd.org

&nbsp; AFTD is the place to turn for accurate information, compassion and hope when lives are touched by frontotemporal degeneration (FTD).  We are glad you found us. Whether you are diagnosed, are a family member or friend of someone who is, or work in the field, AFTD is here for you.   Resources: Newly Diagnosed Disease Overview Understanding the FTD Disorders About [...]

INTERNAL PAGES

theaftd.org theaftd.org
1

Behavioral Variant FTD (bvFTD) | Association for Frontotemporal Degeneration

http://www.theaftd.org/understandingftd/disorders/bv-ftd

Behavioral Variant FTD (bvFTD). FTD with Motor Neuron Disease (FTD/MND). Nonfluent / Agrammatic variant Primary Progressive Aphasia. Semantic variant Primary Progressive Aphasia. Logopenic variant Primary Progressive Aphasia. Evaluation & Diagnosis. Talking about Genetics with Children. Hot Topics in Science. Glossary of FTD Terms. My Experience – In Words. My Experience – In Images. Strategies From People With FTD. Hospice – End of Life. How to Arrange Hospice. Legal & Financial Planning. FTD in the News.

2

First Person Accounts | Association for Frontotemporal Degeneration

http://www.theaftd.org/support-resources/sharing-our-stories/from-those-with-ftd

Behavioral Variant FTD (bvFTD). FTD with Motor Neuron Disease (FTD/MND). Nonfluent / Agrammatic variant Primary Progressive Aphasia. Semantic variant Primary Progressive Aphasia. Logopenic variant Primary Progressive Aphasia. Evaluation & Diagnosis. Talking about Genetics with Children. Hot Topics in Science. Glossary of FTD Terms. My Experience – In Words. My Experience – In Images. Strategies From People With FTD. Hospice – End of Life. How to Arrange Hospice. Legal & Financial Planning. FTD in the News.

3

Current Initiatives | Association for Frontotemporal Degeneration

http://www.theaftd.org/about/advocacy/current-initiatives

Behavioral Variant FTD (bvFTD). FTD with Motor Neuron Disease (FTD/MND). Nonfluent / Agrammatic variant Primary Progressive Aphasia. Semantic variant Primary Progressive Aphasia. Logopenic variant Primary Progressive Aphasia. Evaluation & Diagnosis. Talking about Genetics with Children. Hot Topics in Science. Glossary of FTD Terms. My Experience – In Words. My Experience – In Images. Strategies From People With FTD. Hospice – End of Life. How to Arrange Hospice. Legal & Financial Planning. FTD in the News.

4

Donate Online – Spring Appeal 2016 | Association for Frontotemporal Degeneration

http://www.theaftd.org/about/get-involved/donate

Behavioral Variant FTD (bvFTD). FTD with Motor Neuron Disease (FTD/MND). Nonfluent / Agrammatic variant Primary Progressive Aphasia. Semantic variant Primary Progressive Aphasia. Logopenic variant Primary Progressive Aphasia. Evaluation & Diagnosis. Talking about Genetics with Children. Hot Topics in Science. Glossary of FTD Terms. My Experience – In Words. My Experience – In Images. Strategies From People With FTD. Hospice – End of Life. How to Arrange Hospice. Legal & Financial Planning. FTD in the News.

5

Nonfluent / Agrammatic variant Primary Progressive Aphasia | Association for Frontotemporal Degeneration

http://www.theaftd.org/frontotemporal-degeneration/disorders/progressive-aphasia

Behavioral Variant FTD (bvFTD). FTD with Motor Neuron Disease (FTD/MND). Nonfluent / Agrammatic variant Primary Progressive Aphasia. Semantic variant Primary Progressive Aphasia. Logopenic variant Primary Progressive Aphasia. Evaluation & Diagnosis. Talking about Genetics with Children. Hot Topics in Science. Glossary of FTD Terms. My Experience – In Words. My Experience – In Images. Strategies From People With FTD. Hospice – End of Life. How to Arrange Hospice. Legal & Financial Planning. FTD in the News.

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LINKS TO THIS WEBSITE

mapwellness.blogspot.com mapwellness.blogspot.com

MAP Wellness Blog: Thriving Through Chaos and Dancing Into Bliss

http://mapwellness.blogspot.com/2013/07/thriving-through-chaos-and-dancing-into.html

Mindful Musings from Meg of MAP Wellness. Recipes, stories, and life. Thursday, July 4, 2013. Thriving Through Chaos and Dancing Into Bliss. Whenever I meet new people, they always seem curious about why and how I got to where I am today; what happened in my world to motivate such massive shifts in my life's direction. So today I want to share the Cole's Notes version of my journey. So, lets start at the beginning. And then in 2009. And on December 3rd of 2009. I did just that. Then, in February 2010.

therookiecaregiver.blogspot.com therookiecaregiver.blogspot.com

The Rookie Caregiver: When the Caregiver Needs Care

http://therookiecaregiver.blogspot.com/2012/07/when-caregiver-needs-care.html

True stories of love, *language, panic, and patience. Primary Progressive Aphasia, a degeneration of the part of the brain that affects speech. Tuesday, July 24, 2012. When the Caregiver Needs Care. 8220;Do it sooner rather than later,” my neighbor, the physical therapist, advised. Others chimed in with supportive quotes like, “wish I had done it 10 years earlier,” “I feel like a teenager again.”. Laundry, grocery shopping, and this-and-that, kept me postponing a visit to a surgeon. I relaxed even more w...

therookiecaregiver.blogspot.com therookiecaregiver.blogspot.com

The Rookie Caregiver: The Ambivalent Widow

http://therookiecaregiver.blogspot.com/2012/11/the-ambivalent-widow.html

True stories of love, *language, panic, and patience. Primary Progressive Aphasia, a degeneration of the part of the brain that affects speech. Monday, November 12, 2012. At first, sleeping on Tommy's side of the bed seemed like a good idea: It was a quicker trip to the bathroom and would eliminate the nightly toe stubs endured during my darkened path from my side. Then, I scooted onto my side, pulled up the covers, and bawled. My partner was gone. His side of the bed was empty. He would neve...This new ...

therookiecaregiver.blogspot.com therookiecaregiver.blogspot.com

The Rookie Caregiver: An Untroubled Brow

http://therookiecaregiver.blogspot.com/2012/10/an-untroubled-brow.html

True stories of love, *language, panic, and patience. Primary Progressive Aphasia, a degeneration of the part of the brain that affects speech. Tuesday, October 30, 2012. This is what you look for in a hospice patient: the brow must be untroubled. Smooth, free of lines. There should be no grimacing. The face of the patient must be serene, peaceful. Regularly scheduled doses of Morphine and Haldol, with an occasional drop of Atropine, are keeping my husband pain-free and tranquil, the goal of hospice.

therookiecaregiver.blogspot.com therookiecaregiver.blogspot.com

The Rookie Caregiver: How To Suction A Tracheotomy

http://therookiecaregiver.blogspot.com/2012/10/how-to-suction-tracheotomy.html

True stories of love, *language, panic, and patience. Primary Progressive Aphasia, a degeneration of the part of the brain that affects speech. Tuesday, October 23, 2012. How To Suction A Tracheotomy. My last blog post was Sept. 18, two days before I was to undergo a total hip replacement. That was a lifetime ago. The following morning, Stuart - a CNA (Certified Nursing Assistant) who had been driving Tommy to the YMCA several days a week - and I took him to Northwestern's ER. He was admitted with se...

drbarnas.com drbarnas.com

NJ Memory and Behavioral Care | Links

http://www.drbarnas.com/Links.html

Ph: 973.295.6335. Cedar Knolls, NJ 07927. Springfield, NJ 07081. Lewy body dementia assn). Assn for frontotemporal degeneration). Here are links that can provide additional information regarding clinical trials for age-related dementias, Psychiatry, Geriatric Psychiatry, Alzheimer's Disease, Lewy Body Dementia and Frontemporal Degeneration:. The Cognitive Research Center of New Jersey (CRCNJ). The American Psychiatric Associations. The American Association for Geriatric Psychiatry. AAGP) is the only nati...

drbarnas.com drbarnas.com

NJ Memory and Behavioral Care | Dr. Matthew Barnas

http://www.drbarnas.com/Forms.html

Ph: 973.295.6335. Cedar Knolls, NJ 07927. Springfield, NJ 07081. Lewy body dementia assn). Assn for frontotemporal degeneration). Download link for Intake Packet for confirmed new patients (already being scheduled for an appointment with Dr Barnas). Download PDF Form. Download link for Brief Questionnaire to provide background information (for prospective patients seeking an appointment with Dr Barnas). Download PDF Form. For "mental health services".

therookiecaregiver.blogspot.com therookiecaregiver.blogspot.com

The Rookie Caregiver: The Kids Are All Right

http://therookiecaregiver.blogspot.com/2012/08/the-kids-are-all-right.html

True stories of love, *language, panic, and patience. Primary Progressive Aphasia, a degeneration of the part of the brain that affects speech. Tuesday, August 14, 2012. The Kids Are All Right. I do have flesh-and-blood daughters. But since they live on either coast, they can’t be at our beck-and-call. As for Tommy, he entered this second marriage sans children; hence my designation of this new adopted duo as “our kids.”. After Tommy gave the plan two thumbs up, I gave Stuart this checklist: “Befor...

therookiecaregiver.blogspot.com therookiecaregiver.blogspot.com

The Rookie Caregiver: June 2012

http://therookiecaregiver.blogspot.com/2012_06_01_archive.html

True stories of love, *language, panic, and patience. Primary Progressive Aphasia, a degeneration of the part of the brain that affects speech. Tuesday, June 26, 2012. All For One, One For All. It’s a perfect day for golf. The sun is shining and the temperature is in the 70’s. There is no wind. Although I’m not a player, the weather delights me because it means Tommy will be hitting the links with his three friends. 8221; Barry says as he approaches my bench. His golf bag is slung over one shoulder l...

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Association for Frontotemporal Degeneration: Opening the gateway to help and a cure

Behavioral Variant FTD (bvFTD). FTD with Motor Neuron Disease (FTD/MND). Nonfluent / Agrammatic variant Primary Progressive Aphasia. Semantic variant Primary Progressive Aphasia. Logopenic variant Primary Progressive Aphasia. Evaluation & Diagnosis. Talking about Genetics with Children. Hot Topics in Science. Glossary of FTD Terms. My Experience – In Words. My Experience – In Images. Strategies From People With FTD. Hospice – End of Life. How to Arrange Hospice. Legal & Financial Planning. FTD in the News.

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The Australian Fronto-Temporal Dementia Association. Contact & Links. The Australian Fronto-temporal Dementia Association (AFTDA). AFTDA is a newly formed Association for Frontotemporal Degeneration of Australia with similar goals as the AFTD in the USA. The AFTDA is a registered non-profit carer driven organisations whose mission is to:. Establish Carer groups where ever there is a need in Australia – if you know someone in Australia with FTD we invite their Carers to register here. This entry was poste...

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