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Jen & Jerrad | Congential TTP | Navy Veteran | Family

He's made some progress in beating this flair up! Kyin's levels have been so great (platelets 400k, and hemoglobin 12.2 on Tuesday the 4th) that Dr. Kurt has taken him off the Prednisone! He's definitely 100% back to himself. He's decided that he wants to play soccer again this spring. I'm hoping he will enjoy it, and doesn't have a flair up get in the way. He is still getting labs done twice a week, and we're still planning on doing plasma infusions every 2 weeks. So far, so good! While waiting for Dr&#...

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Jen & Jerrad | Congential TTP | Navy Veteran | Family | thechristopher-family.blogspot.com Reviews
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He's made some progress in beating this flair up! Kyin's levels have been so great (platelets 400k, and hemoglobin 12.2 on Tuesday the 4th) that Dr. Kurt has taken him off the Prednisone! He's definitely 100% back to himself. He's decided that he wants to play soccer again this spring. I'm hoping he will enjoy it, and doesn't have a flair up get in the way. He is still getting labs done twice a week, and we're still planning on doing plasma infusions every 2 weeks. So far, so good! While waiting for Dr&#...
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Jen & Jerrad | Congential TTP | Navy Veteran | Family | thechristopher-family.blogspot.com Reviews

https://thechristopher-family.blogspot.com

He's made some progress in beating this flair up! Kyin's levels have been so great (platelets 400k, and hemoglobin 12.2 on Tuesday the 4th) that Dr. Kurt has taken him off the Prednisone! He's definitely 100% back to himself. He's decided that he wants to play soccer again this spring. I'm hoping he will enjoy it, and doesn't have a flair up get in the way. He is still getting labs done twice a week, and we're still planning on doing plasma infusions every 2 weeks. So far, so good! While waiting for Dr&#...

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thechristopher-family.blogspot.com thechristopher-family.blogspot.com
1

Jen & Jerrad | Congential TTP | Navy Veteran | Family: Going Strong!

http://thechristopher-family.blogspot.com/2014/01/going-strong.html

Rebecca called when we were on our way home today around 5:00. She said she was walking out to her car and turned around to call me because she forgot. She's so awesome. Because his levels are so great Kyin gets to drop his Pred down to 5mg every other day, instead of every day. He is still getting labs done twice a week, and we're still planning on doing plasma infusions every 2 weeks. So far, so good! Subscribe to: Post Comments ( Atom ). Elf on the Shelf. Plasma Infusion #2.done!

2

Jen & Jerrad | Congential TTP | Navy Veteran | Family: February 2010

http://thechristopher-family.blogspot.com/2010_02_01_archive.html

Big day for the kids. I've put my foot down with Ky and the potty. He doesn't get to watch cartoons unless he uses the potty. He went a FULL day without any cartoons (kinda a big deal with Ky). Today he finally came around to it and only had 2 accidents :). 1lb chicken breast (doesn't have to be boneless/skinless). 2 table spoons butter. Place chicken and bouillon. When the chicken is almost done combine the bisquick. And milk, mix until a soft dough forms. Recipe also had you boil 4 eggs and chop the wh...

3

Jen & Jerrad | Congential TTP | Navy Veteran | Family: November 2010

http://thechristopher-family.blogspot.com/2010_11_01_archive.html

Fall pics of the kiddos :). I know.fall pictures but you're at the beach! It was gorgeous out yesterday.around 70 and the kids NEEDED to get out and play, so I figured I'd kill two birds with one stone, so to speak. Love the attitude in this one! This one will be hanging on the wall for sure! As well as this one! Sophie looking JUST like her Aunt Cassie! Subscribe to: Posts ( Atom ). Elf on the Shelf. Fall pics of the kiddos :). View my complete profile.

4

Jen & Jerrad | Congential TTP | Navy Veteran | Family: December 2010

http://thechristopher-family.blogspot.com/2010_12_01_archive.html

Playing in the 'snow'. Kyin, Sophie, and Kyins buddy Jordan playin in the fake snow in the ice castle while waiting to see Santa. Soph had that stuff in her hair for days! Skip to the following Tuesday, the line was less than 30 minutes long and the kids had a blast watching the video screens and playing in the fake snow in the Ice Castle! Sophie freaked and just said "No Santa, No." and wouldn't go near him. Kyin on the other hand, hopped right up and said "Hi Santa! USS Fort McHenry Christmas Party.

5

Jen & Jerrad | Congential TTP | Navy Veteran | Family: Found These Little Gems

http://thechristopher-family.blogspot.com/2014/01/found-these-little-gems.html

Found These Little Gems. Considering it's so hard finding anything on TTP, I was super happy to find these! A woman on the TTP Support Facebook Group is selling these. $3 each with .50 from each going to TTP research. Subscribe to: Post Comments ( Atom ). Elf on the Shelf. Plasma Infusion #2.done! Found These Little Gems. 1092014. The day that it was made official. Im a full time working momma to 4 kids, 6 and under.  Navy wife (soon to be medically retired), and photographer. . View my complete profile.

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Jen & Jerrad | Congential TTP | Navy Veteran | Family

He's made some progress in beating this flair up! Kyin's levels have been so great (platelets 400k, and hemoglobin 12.2 on Tuesday the 4th) that Dr. Kurt has taken him off the Prednisone! He's definitely 100% back to himself. He's decided that he wants to play soccer again this spring. I'm hoping he will enjoy it, and doesn't have a flair up get in the way. He is still getting labs done twice a week, and we're still planning on doing plasma infusions every 2 weeks. So far, so good! While waiting for Dr&#...

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