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The End of Eczema

Wednesday, June 12, 2013. A day in the life. The next time you tell a mama who has a child or children with severe eczema "it's just. Eczema," remember this post. On Or in other words, I tortured my child by removing his ability to feel with his hands. It kills my soul a little every day, but given that the alternative is ripped open skin and a case of "potentially fatal" skin infection. I will take torture. My heart is not settled or at ease about it, though. Then it was breakfast for my littlest and my...

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The End of Eczema | theendofeczema.blogspot.com Reviews

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Wednesday, June 12, 2013. A day in the life. The next time you tell a mama who has a child or children with severe eczema it's just. Eczema, remember this post. On Or in other words, I tortured my child by removing his ability to feel with his hands. It kills my soul a little every day, but given that the alternative is ripped open skin and a case of potentially fatal skin infection. I will take torture. My heart is not settled or at ease about it, though. Then it was breakfast for my littlest and my...

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The End of Eczema | theendofeczema.blogspot.com Reviews

https://theendofeczema.blogspot.com

Wednesday, June 12, 2013. A day in the life. The next time you tell a mama who has a child or children with severe eczema "it's just. Eczema," remember this post. On Or in other words, I tortured my child by removing his ability to feel with his hands. It kills my soul a little every day, but given that the alternative is ripped open skin and a case of "potentially fatal" skin infection. I will take torture. My heart is not settled or at ease about it, though. Then it was breakfast for my littlest and my...

INTERNAL PAGES

theendofeczema.blogspot.com

1

The End of Eczema: Turning a corner

http://www.theendofeczema.blogspot.com/2013/05/turning-corner.html

Wednesday, May 29, 2013. Since posting last week about my son getting eczema herpeticum, things got even worse when my daughter came down with the same thing. I felt nothing short of desperate. To know both of my children now may battle with this scary infection for life kills my mama heart. My daughter's personality has changed so drastically in the last week. She has these fits of, well, I don't even know how to describe it. Rage? What's wrong with your face? What did you eat? Ew, look at your face!

2

The End of Eczema: The scariest week as a mom to-date

http://www.theendofeczema.blogspot.com/2013/05/the-scariest-week-as-mom-to-date.html

Friday, May 24, 2013. The scariest week as a mom to-date. I'm just copying and pasting this from my personal blog, so if you follow both, you've read this already. :). We made some massive strides in improving Adalyn’s eczema this week. I turned the air up and clothed them, mostly from head-to-toe, in eczema gear. Pants with attached “feet,” onesies with built-in mittens, and Scratch Me Not mitten sleeves. Friday night, as I was letting go of some tension and anxiety knowing that Tim would be home the fo...

3

The End of Eczema: Our story

http://www.theendofeczema.blogspot.com/2013/04/our-story.html

Monday, April 29, 2013. My children have had eczema their whole lives. We have three kids, and none of them were spared this disease that sucks away at quality of life. My first son got his at around 12 months, and his was contained mostly to his face and diaper area. We tried all we knew, but nothing except time helped. He "outgrew" his eczema for the most part, but on occasion a minor face rash will reappear. So I dug in, to page 10, page 15, page 20.and eventually, I found it. I found one blog. Writte...

4

The End of Eczema: May 2013

http://www.theendofeczema.blogspot.com/2013_05_01_archive.html

Wednesday, May 29, 2013. Since posting last week about my son getting eczema herpeticum, things got even worse when my daughter came down with the same thing. I felt nothing short of desperate. To know both of my children now may battle with this scary infection for life kills my mama heart. My daughter's personality has changed so drastically in the last week. She has these fits of, well, I don't even know how to describe it. Rage? What's wrong with your face? What did you eat? Ew, look at your face!

5

The End of Eczema: A day in the life...

http://www.theendofeczema.blogspot.com/2013/06/a-day-in-life.html

Wednesday, June 12, 2013. A day in the life. The next time you tell a mama who has a child or children with severe eczema "it's just. Eczema," remember this post. On Or in other words, I tortured my child by removing his ability to feel with his hands. It kills my soul a little every day, but given that the alternative is ripped open skin and a case of "potentially fatal" skin infection. I will take torture. My heart is not settled or at ease about it, though. Then it was breakfast for my littlest and my...

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zoeynjh.wordpress.com

After NJH-what happens? | zoeynjh

https://zoeynjh.wordpress.com/2013/08/19/173

Ending the relentless itch. August 19, 2013. In After National Jewish Health. We’re home and anxious to find out if NJH really was the holy grail of emollient, and see if we can continue the healing with everything we’ve learned. Dr. Leung insisted I keep an eczema journal. I was always curious what the days following treatment at NJH looked like for other parents. I’m back to work later this week, and next week the real test will begin. Follow Blog via Email. Join 15 other followers. First flare →.

zoeynjh.wordpress.com

Day 8 (Friday) last day at NJH | zoeynjh

https://zoeynjh.wordpress.com/2013/08/16/147

Ending the relentless itch. Day 8 (Friday) last day at NJH. August 16, 2013. In Eczema Treatment at National Jewish Health. Zoey and I woke up in a wonderful mood after sleeping until 7:30. Wet wrapped her face last night and she slept right through without pawing at her face once. I know this because I am unable (despite earplugs) to sleep through scratching. My confidence, mood and her skin is restored. This comes as a huge relief after years of intense worrying that avoiding eggs, milk, wheat and nuts...

zoeynjh.wordpress.com

Filaggrin | zoeynjh

https://zoeynjh.wordpress.com/2013/08/23/204

Ending the relentless itch. August 23, 2013. In After National Jewish Health. Dr Lanser from NJH called this afternoon to follow up on results on the filaggrin mutation tests. Since Zoey has had pretty severe and reactive skin since birth, and fits the descent profile, they decided to test the 5 most common mutations ( there are more than 40). Tests showed that she has two heterozygous filaggrin mutations. Dr. Lanser kindly took the time to explain, and re-explain what that was. Follow Blog via Email.

zoeynjh.wordpress.com

We don’t miss the misery | zoeynjh

https://zoeynjh.wordpress.com/2013/08/30/244

Ending the relentless itch. We don’t miss the misery. August 30, 2013. In After National Jewish Health. The first 3 days back to Zoey’s regular classroom were wonderful and without incident thanks to Ms Heather. On Thursday Zoey transitioned to a new class, with new teachers and students within the daycare center. I picked Zoey up to take her home for the day a couple hours after that, and she was clear with no redness, was told by her teachers she didn’t itch once (RECORD), cheerful and felt prett...

zoeynjh.wordpress.com

Out of the bubble and into the woods | zoeynjh

https://zoeynjh.wordpress.com/2013/08/26/216

Ending the relentless itch. Out of the bubble and into the woods. August 26, 2013. In After National Jewish Health. First day out of our allergen-free bubble. Hauled Zoey to daycare along with my new care plan (courtesy of NJH) tub o’ Vanicream, pile of washcloths, change of clothes, lunch, snack, 1/2 gallon of soy milk, nap sheet and blanket washed in our detergent. I really struggle in my attempts to communicate clear and completed instructions, without over complicating. Her hands are my litmus, and t...

zoeynjh.wordpress.com

The New Normal | zoeynjh

https://zoeynjh.wordpress.com/2013/10/27/the-new-normal

Ending the relentless itch. October 27, 2013. In After National Jewish Health. We’ve been in the clear for about 3 weeks now, and it seems that the biggest challenge of all was the flares in and around colds and infections. We are still giving baths once daily and haven’t needed topical steroids for almost a full month. Our typical day without flares still feels challenging, but the adherence to routine is worth the lack of itching. We’re looking forward to Halloween, easily Garland and Z’s f...7 respons...

zoeynjh.wordpress.com

Day 4 (Monday) | zoeynjh

https://zoeynjh.wordpress.com/2013/08/13/day-4-monday

Ending the relentless itch. August 13, 2013. In Eczema Treatment at National Jewish Health. Woke at 6:30 to get our wet wraps out of the way before heading off to NJH to meet with doctors. When we arrived Nurse Amy thought her skin looked so good that we would be able to skip the mid-day wet wrap (yay! Nurse Amy mixed whole pine nuts with chocolate syrup and started with 4 slowly increasing doses 20 minutes apart. And …by 2 pm she was officially cleared to eat pine nuts! After her nap we moved right on t...

zoeynjh.wordpress.com

Day 7 ( Thursday) | zoeynjh

https://zoeynjh.wordpress.com/2013/08/16/133

Ending the relentless itch. Day 7 ( Thursday). August 16, 2013. In Eczema Treatment at National Jewish Health. Zoey had a long night of discomfort and itching, I am assuming from the delayed reactions to the baked milk (which technically doesn’t happen). It could be from the first night without wraps on her face. Whatever it was , I was really dissapointed when she woke up a bit flared on her face. I went to a group meeting for parents, which I wish I had more opportunities to attend. 2 responses to &ldq...

zoeynjh.wordpress.com

Saturday and Sunday (break days) | zoeynjh

https://zoeynjh.wordpress.com/2013/08/11/64

Ending the relentless itch. Saturday and Sunday (break days). August 11, 2013. In Eczema Treatment at National Jewish Health. The blessed weekend is here, and though we need to continue the treatment we’ve learned so far ( all by ourselves-eek) they give you the weekend to relax. We were able to get into the Denver Zoo for free with our Ronald McDonald passes and like any kid, she loved it. During a Q& A, Z told them that she was one of the uncrowned kings of Ireland (long story) and she should be dancin...

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theendofeczema.blogspot.com

The End of Eczema

Wednesday, June 12, 2013. A day in the life. The next time you tell a mama who has a child or children with severe eczema "it's just. Eczema," remember this post. On Or in other words, I tortured my child by removing his ability to feel with his hands. It kills my soul a little every day, but given that the alternative is ripped open skin and a case of "potentially fatal" skin infection. I will take torture. My heart is not settled or at ease about it, though. Then it was breakfast for my littlest and my...

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