thehalodiaries2016.blogspot.com

The Halo Diaries

My name is Megan. This blog is a place for me to write about what it is like wearing a halo brace 24/7. I had cervical spine instability from skull-T2. One week after the halo was applied I had my first multilevel posterior cervical fusion & in August I had my second. I was never in an accident of any sort. My problem stems from an underlying connective tissue disorder called Ehlers-Danlos Syndrome. My goal is to raise awareness about EDS and give a realistic view of life in a halo brace.

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The Halo Diaries | thehalodiaries2016.blogspot.com Reviews

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My name is Megan. This blog is a place for me to write about what it is like wearing a halo brace 24/7. I had cervical spine instability from skull-T2. One week after the halo was applied I had my first multilevel posterior cervical fusion &amp; in August I had my second. I was never in an accident of any sort. My problem stems from an underlying connective tissue disorder called Ehlers-Danlos Syndrome. My goal is to raise awareness about EDS and give a realistic view of life in a halo brace.

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2 june 8th june 14th

3 do it

4 something

5 perspective

6 family

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The Halo Diaries | thehalodiaries2016.blogspot.com Reviews

https://thehalodiaries2016.blogspot.com

My name is Megan. This blog is a place for me to write about what it is like wearing a halo brace 24/7. I had cervical spine instability from skull-T2. One week after the halo was applied I had my first multilevel posterior cervical fusion &amp; in August I had my second. I was never in an accident of any sort. My problem stems from an underlying connective tissue disorder called Ehlers-Danlos Syndrome. My goal is to raise awareness about EDS and give a realistic view of life in a halo brace.

INTERNAL PAGES

thehalodiaries2016.blogspot.com

1

The Halo Diaries: April 2016

http://thehalodiaries2016.blogspot.com/2016_04_01_archive.html

Wednesday, April 27, 2016. 24 Hours After the Halo: April 6, 2016. I'm not saying that I had no pain in my. Body, but to have that horrid, sharp, stabbing,. Neck pain gone was unbelievable. The video below was taken in Fall 2014. My neck moved more "normal" in this video than it did up until surgery two weeks ago. This video shows how much motion I had in my R shoulder with my neck in a neutral position vs. a flexed position. What if I feel worse? What if I put myself through this all for nothing? This w...

2

The Halo Diaries: First Steps are the Hardest

http://thehalodiaries2016.blogspot.com/2016/06/first-step-is-hardest.html

Monday, June 27, 2016. First Steps are the Hardest. April 23, 2016. My nieces and I painting our birdhouses to hang in the trees. The highlight of my day was going to be watching the Chicago Blackhawks. This meant I needed to take a nap after painting the birdhouse so I would have a greater chance of staying awake during the hockey game. Practically all of my clothes don't fit with this halo. Words could not express how happy I was when I tried on my Blackhawks onesie and it fit! April 24, 2016. It felt ...

3

The Halo Diaries: One Month Post Neck Fusion

http://thehalodiaries2016.blogspot.com/2016/08/one-month-post-neck-fusion.html

Sunday, August 14, 2016. One Month Post Neck Fusion. May 12, 2016. It wasn't exactly the way I had envisioned the way things would be one month out from my multilevel posterior cervical fusion from C3-T2. My mom and I were actually on our way to Minnesota because I had an appointment with Dr. E the following day to evaluate my left scapula. The drive seemed exceptionally longer than normal but fortunately we made it there safely which is all we really care about. May 13, 2016. May 14, 2016. Subscribe to:...

4

The Halo Diaries: August 2016

http://thehalodiaries2016.blogspot.com/2016_08_01_archive.html

Sunday, August 14, 2016. One Month Post Neck Fusion. May 12, 2016. It wasn't exactly the way I had envisioned the way things would be one month out from my multilevel posterior cervical fusion from C3-T2. My mom and I were actually on our way to Minnesota because I had an appointment with Dr. E the following day to evaluate my left scapula. The drive seemed exceptionally longer than normal but fortunately we made it there safely which is all we really care about. May 13, 2016. May 14, 2016. Subscribe to:...

5

The Halo Diaries: Finding Hope Amidst Chaos

http://thehalodiaries2016.blogspot.com/2016/10/finding-hope-amidst-chaos.html

Wednesday, October 26, 2016. Finding Hope Amidst Chaos. When every which way you look feels like there is something bad happening, how do you stay hopeful? Where does the strength come from when oftentimes all you want to do is just give up? At this point in the year, every direction I looked felt like something bad was happening even though I knew a tremendous amount of progress had been made and I had come far. Pic below of infected pin. If you're squeamish just scroll past. June 16th at this point the...

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myimpossiblemedicaljourney.blogspot.com

My "IMpossible" Medical Journey: November 2014

http://myimpossiblemedicaljourney.blogspot.com/2014_11_01_archive.html

My "IMpossible" Medical Journey. Saturday, November 29, 2014. The Night My Right Shoulder Changed. August 15, 2012. My nieces and I taking our picture in front of the flight for life helicopter. After a wonderful time at the camp we went back to our hotel. We went to Timber Ridge Lodge in Lake Geneva. There is a waterpark there which my nieces thought was amazing. It's a great place for kids and I would highly recommend it. Smile for the camera :). There's a first for everything! The emergency room visit.

myimpossiblemedicaljourney.blogspot.com

My "IMpossible" Medical Journey: February 2014

http://myimpossiblemedicaljourney.blogspot.com/2014_02_01_archive.html

My "IMpossible" Medical Journey. Sunday, February 2, 2014. The Gut Feeling is Back 2014. As I watched the hours go by on the clock all I kept thinking was, "Come on! As you can see there is quite a difference in motion. Now the question is WHY? Honestly, I don't know. I've had no imaging of my neck so I don't know if there is any issue there. I'm seeing my physical therapist tomorrow to have him evaluate things. I already sent these pictures to my doctors and I'm waiting for a response. Thursday January ...

myimpossiblemedicaljourney.blogspot.com

My "IMpossible" Medical Journey: November 2013

http://myimpossiblemedicaljourney.blogspot.com/2013_11_01_archive.html

My "IMpossible" Medical Journey. Sunday, November 10, 2013. An Important Lesson 2013. Okay, I lied. This post was supposed to be about what happened in 2011. Before I do that, I have to discuss something more important first. I've learned a very hard lesson. Just because you are a relative to someone doesn't mean they have your back. Hopefully people can take an important lesson away from this post. Https:/ www.giveforward.com/fundraiser/cn33/my-impossible-medical-journey-fund. Subscribe to: Posts (Atom).

myimpossiblemedicaljourney.blogspot.com

My "IMpossible" Medical Journey: April 2014

http://myimpossiblemedicaljourney.blogspot.com/2014_04_01_archive.html

My "IMpossible" Medical Journey. Tuesday, April 29, 2014. Thankful for Dr. K. He picked it up and moved it over so he could evaluate my shoulder. After doing so, Dr. K asked me if he had to wait till Christmas morning to open up his gift or if he could open it now. I chuckled and said, "You have to open it now! On the plaque it says, "Dr. K thank you for walking. This journey with me". It ended up not being the last surgery on my right shoulder BUT I can still. Be a break from all this surgery. About 18 ...

myimpossiblemedicaljourney.blogspot.com

My "IMpossible" Medical Journey: January 2015

http://myimpossiblemedicaljourney.blogspot.com/2015_01_01_archive.html

My "IMpossible" Medical Journey. Wednesday, January 21, 2015. 2015: Let the "Fun" Begin. I've been contemplating on what I should write and I've decided to write a current update because I'm having surgery next week and writing is a coping tool for me; I know I'll "feel better" once I get it off my chest. As I reflect back on 2014 the first thing that comes to mind is: what a long, hard, crazy, exhausting roller-coaster year! Http:/ www.pinterest.com/pin/362047257519360343/. November 17, 2014. Apparently...

myimpossiblemedicaljourney.blogspot.com

My "IMpossible" Medical Journey: Trust Your Gut

http://myimpossiblemedicaljourney.blogspot.com/2014/12/trust-gut.html

My "IMpossible" Medical Journey. Tuesday, December 23, 2014. The pictures below are from March 6, 2013. Almost four months after surgery and that's the amount of motion I had with the "help" of the cortisone. I could/still can only move my arm this far. To this day, I can only raise my arm this high before I get the sharp/stabbing pain. I took the semester off from school because I had a ton of rehabilitation ahead of me. The lack of motion makes it really hard to do basic functional tasks. April 9, 2013...

myimpossiblemedicaljourney.blogspot.com

My "IMpossible" Medical Journey: 2015 A Special Kind of Strength

http://myimpossiblemedicaljourney.blogspot.com/2015/05/2015-special-kind-of-strength.html

My "IMpossible" Medical Journey. Saturday, May 16, 2015. 2015 A Special Kind of Strength. You know when you have certain medical tests done, or sometimes before being wheeled back to the operating room for surgery, patients sometimes choose to have a shot of medication to help them relax and block out their memory? It's very strange, isn't it? Feb 7, 2015. Let's not kid ourselves- not a flattering picture. Heat on my right so my shoulder unlocks, ice on. May be because I zoomed in and my eyes have. There...

myimpossiblemedicaljourney.blogspot.com

My "IMpossible" Medical Journey: December 2014

http://myimpossiblemedicaljourney.blogspot.com/2014_12_01_archive.html

My "IMpossible" Medical Journey. Tuesday, December 23, 2014. The pictures below are from March 6, 2013. Almost four months after surgery and that's the amount of motion I had with the "help" of the cortisone. I could/still can only move my arm this far. To this day, I can only raise my arm this high before I get the sharp/stabbing pain. I took the semester off from school because I had a ton of rehabilitation ahead of me. The lack of motion makes it really hard to do basic functional tasks. April 9, 2013...

myimpossiblemedicaljourney.blogspot.com

My "IMpossible" Medical Journey: January 2014

http://myimpossiblemedicaljourney.blogspot.com/2014_01_01_archive.html

My "IMpossible" Medical Journey. Friday, January 17, 2014. How Do You Deal With Pain? Over the past couple weeks, I've been contacted by some very nice people who have read my blog posts. One of the questions that keeps coming up is, "How do you deal with your pain? My mom offered to help me make my smoothie but. Sometimes it's harder to ask for help instead of doing it myself. Modifying at its best. My nephew Justin is too heavy. For me to hold with my arms. In order to hold him, I sit on. Find somethin...

myimpossiblemedicaljourney.blogspot.com

My "IMpossible" Medical Journey: February 2015

http://myimpossiblemedicaljourney.blogspot.com/2015_02_01_archive.html

My "IMpossible" Medical Journey. Wednesday, February 25, 2015. 2015 A Humbling Surgery. WARNING TO THE SQUEAMISH TYPES: FRESH INCISION PICS BELOW. I'LL POST A WARNING WHEN YOU GET CLOSER TO THEM. Below is how I ended up decorating my brace. I really love the encouraging words on the straps. I painted on HOPE. They're daily reminders. I think of it like putting on my straps of armor. Then of course I have some Chicago Blackhawks hockey pride! January 28, 2015. Weird fun fact- this was my first surgery EVE...

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Wednesday, October 26, 2016. Finding Hope Amidst Chaos. When every which way you look feels like there is something bad happening, how do you stay hopeful? Where does the strength come from when oftentimes all you want to do is just give up? At this point in the year, every direction I looked felt like something bad was happening even though I knew a tremendous amount of progress had been made and I had come far. Pic below of infected pin. If you're squeamish just scroll past. June 16th at this point the...

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