hypotonicworld.blogspot.com
Sunshine in a Hypotonic World: September 2014
http://hypotonicworld.blogspot.com/2014_09_01_archive.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Wednesday, September 3, 2014. Upper EnDO or EnDON'T. We're at a crossroad again. I'm standing here ( actually sitting. Trying to make an educated decision about how to proceed. We've hit a few rough patches this summer including:. A battle with pneumonia ( a four letter word in our home. The end of...
hypotonicworld.blogspot.com
Sunshine in a Hypotonic World: Upper EnDO or EnDON'T
http://hypotonicworld.blogspot.com/2014/09/upper-endo-or-endont.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Wednesday, September 3, 2014. Upper EnDO or EnDON'T. We're at a crossroad again. I'm standing here ( actually sitting. Trying to make an educated decision about how to proceed. We've hit a few rough patches this summer including:. A battle with pneumonia ( a four letter word in our home. The end of...
hypotonicworld.blogspot.com
Sunshine in a Hypotonic World: Rae's Book Review: You Are Special
http://hypotonicworld.blogspot.com/2012/12/raes-book-review-you-are-special.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Thursday, December 6, 2012. Rae's Book Review: You Are Special. Awhile back, I ventured into my local Lifeway Christian Bookstore and while perusing the children's books, I came across the story of Punchinello, a Wemmick ( think Pinocchio after he came to life, but before he became a "real boy".
hypotonicworld.blogspot.com
Sunshine in a Hypotonic World: July 2014
http://hypotonicworld.blogspot.com/2014_07_01_archive.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Monday, July 28, 2014. Rae's Book Review: Just Because. Was written and illustrated by Rebecca Elliot. And he doesn't know why. "Just because.". Such a simple, no nonsense statement. Clemmie is a lot like a princess ( so is our Evie. She makes sweet noises and funny faces. Links to this post. Evie ...
hypotonicworld.blogspot.com
Sunshine in a Hypotonic World: January 2015
http://hypotonicworld.blogspot.com/2015_01_01_archive.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Tuesday, January 6, 2015. When There Are No Words. It seems weird to write a post about there being no words, but more often than not I find that there just aren't adequate words to express my sorrows and empathy to members of our Rett community. Nothing I can think of feels right. These are the on...
hypotonicworld.blogspot.com
Sunshine in a Hypotonic World: April 2014
http://hypotonicworld.blogspot.com/2014_04_01_archive.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Monday, April 28, 2014. The "R" Word and Beyond. Her small body goes rigid, her hands become manic, and she breathes heavily. As I sat there collecting myself after her episode, a sound I am all too familiar with made it's way to my ears. The sound of adult men (. Noises. I'm sure you can hear ...
hypotonicworld.blogspot.com
Sunshine in a Hypotonic World: April 2015
http://hypotonicworld.blogspot.com/2015_04_01_archive.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Tuesday, April 7, 2015. Accepting the Answer Given. A few weeks ago, when I managed to pull myself together, I attended church. I just sat there with my hands in my lap. Trapped in my own thoughts. Not focused on the sermon. I can't even tell you where my mind drifted off to during ...The message c...
hypotonicworld.blogspot.com
Sunshine in a Hypotonic World: Accepting the Answer Given
http://hypotonicworld.blogspot.com/2015/04/accepting-answer-given.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Tuesday, April 7, 2015. Accepting the Answer Given. A few weeks ago, when I managed to pull myself together, I attended church. I just sat there with my hands in my lap. Trapped in my own thoughts. Not focused on the sermon. I can't even tell you where my mind drifted off to during ...The message c...
hypotonicworld.blogspot.com
Sunshine in a Hypotonic World: When There Are No Words
http://hypotonicworld.blogspot.com/2015/01/when-there-are-no-words.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Tuesday, January 6, 2015. When There Are No Words. It seems weird to write a post about there being no words, but more often than not I find that there just aren't adequate words to express my sorrows and empathy to members of our Rett community. Nothing I can think of feels right. These are the on...
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