shesnotdown.blogspot.com
Can't Keep Me DOWN: Germ Fest...I Mean - Animal Day
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Can't Keep Me DOWN. A journey through life with Down Syndrome. Saturday, July 16, 2011. Germ Fest.I Mean - Animal Day. Our neighbor's brother has a farm and we went to see his lambs today before they grow up and aren't lambs any more. I know Averi looks pretty frightened in this picture, but she's really somewhere between intense excitement, extreme hesitation, and stimulus overload. Anyways, being out and about really wore Miss Averi out because she fell asleep mid-color on the way home. To finish off t...
shesnotdown.blogspot.com
Can't Keep Me DOWN: The Results Are In
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Can't Keep Me DOWN. A journey through life with Down Syndrome. Tuesday, July 5, 2011. The Results Are In. I've been avoiding this post because I don't quite know how to word it.here goes. I finally got 'the phone call' today. It only took them an entire week to get back with us, but at least now we have the final results and we can be done with it (in reality I'm bummed we didn't hear the preliminary results last week but I'm trying to stay positive). I love you Tiff! Just enjoy this moment. :). Scrub a ...
shesnotdown.blogspot.com
Can't Keep Me DOWN: Good Riddance Honey Bear
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Can't Keep Me DOWN. A journey through life with Down Syndrome. Monday, July 11, 2011. Good Riddance Honey Bear. We bought a new spoon and it is making a world of difference. The short handle and pointy end make Averi hold the spoon correctly. Now if we could only get her to stop flipping the spoon upside down when she gets it to her mouth. :). I think I can officially say that we are done with the honey bear - and the weird looks it solicits. :). I decided to give her more of a toddler's schedule and dec...
shesnotdown.blogspot.com
Can't Keep Me DOWN: Forward Facing
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Can't Keep Me DOWN. A journey through life with Down Syndrome. Saturday, July 2, 2011. Keeping Averi in the infant carrier has been very convenient. Not only does she weigh in at 19 pounds making it easy to still carry her around but I love that during the few weeks we're home between cycles I can put her carrier in the stroller and completely cover her with both visors (keeping the germs at bay). She looks so grown up in her big girl car seat. July 31, 2011 at 10:25 PM. Subscribe to: Post Comments (Atom).
shesnotdown.blogspot.com
Can't Keep Me DOWN: A Favor...
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Can't Keep Me DOWN. A journey through life with Down Syndrome. Monday, July 4, 2011. I know, I know.I have avoided the blog for far too long. Don't worry, I have a super awesome excuse. We took a month long family vacation, away from hospitals, central lines, vomiting, pain, and upside down lives. It was amazing! And now that we're home blog posts are sure to be coming soon :) ). In order to get our team name (Can't Keep Me DOWN) printed on the back of our shirts we have to raise at least $1,500 by Augus...
shesnotdown.blogspot.com
Can't Keep Me DOWN: July 2011
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Can't Keep Me DOWN. A journey through life with Down Syndrome. Monday, July 18, 2011. Averi went out with her man for breakfast this morning to celebrate his birthday. They were both very annoyed with my taking their picture during their special moment. :). Happy Birthday Sam. Averi loves you! Sunday, July 17, 2011. I Don't Need No Stinkin' Pump. Yesterday, it finally happened! She drank all 4 cups! I swear, I thought this day would never come! Are relaying to you how big a deal this is! Anyways, being o...
shesnotdown.blogspot.com
Can't Keep Me DOWN: May 2011
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Can't Keep Me DOWN. A journey through life with Down Syndrome. Tuesday, May 31, 2011. Today was momentous - the nurse took down Averi's last bag of chemo! Of course we still have to stick around until her counts do their thing, but there will be no more pumping poison into my baby's heart. Yes, we did take a picture of the bag coming down, special blue gloves and all.). Monday, May 30, 2011. Memorial Day… more like Labor Day. Friday night rolled by relatively quietly without any issues. What a relief...
shesnotdown.blogspot.com
Can't Keep Me DOWN: June 2011
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Can't Keep Me DOWN. A journey through life with Down Syndrome. Tuesday, June 28, 2011. Checking off the List. Monday, June 27, 2011. The doctor called on Friday to let us know that Averi's bone marrow biopsy is scheduled for tomorrow. The only stipulation is that we need to have her blood work done today to make sure her hemoglobin is over 10. If not, then she needs to have a transfusion of red blood cells tonight before going to the OR in the morning. Enjoying some much needed sunshine! I was a hot mess!
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Can't Keep Me DOWN: The End
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Can't Keep Me DOWN. A journey through life with Down Syndrome. Friday, July 8, 2011. The End has finally arrived. Averi had her central line port taken out today! We woke up early today for what should be her last trip to the OR for a very long time. It's funny, but we know one of the OR Nurse Practitioners by name and she always comes in to say hello and check up on Averi when she has a procedure done. She was SO glad to hear that we were finalizing the last step in being done with chemo. I am so thankf...
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Can't Keep Me DOWN: Scrub a Dub Dub
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Can't Keep Me DOWN. A journey through life with Down Syndrome. Friday, July 15, 2011. Scrub a Dub Dub. It's been a week since Averi had her central line taken out and we have been given the go ahead to take off her band-aids and give her a BATH! If you can't tell, I'm pretty excited about the BATH! She had a BLAST! It was so nice watching her enjoy herself while she splashed water all over the entire bathroom (and for once I didn't care). I have to admit, there isn't much that's cuter than a clean baby w...
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