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Controlled Chaos!

Thursday, July 16, 2015. We are not consumed. This I recall to my mind, therefore have I hope. It is of the Lord's mercies that we are not consumed, because his compassions fail not. - Lamentations 3:21-22. I write from a different place today than i did a few weeks ago. Shea's pain is much better, and our little courageous fighter can now try new things, accept new challenges and push himself because he isn't drowning in pain. This makes mom very happy. Since my little man is more comfortable, and makin...

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Controlled Chaos! | thekulpchronicles.blogspot.com Reviews
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Thursday, July 16, 2015. We are not consumed. This I recall to my mind, therefore have I hope. It is of the Lord's mercies that we are not consumed, because his compassions fail not. - Lamentations 3:21-22. I write from a different place today than i did a few weeks ago. Shea's pain is much better, and our little courageous fighter can now try new things, accept new challenges and push himself because he isn't drowning in pain. This makes mom very happy. Since my little man is more comfortable, and makin...
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Controlled Chaos! | thekulpchronicles.blogspot.com Reviews

https://thekulpchronicles.blogspot.com

Thursday, July 16, 2015. We are not consumed. This I recall to my mind, therefore have I hope. It is of the Lord's mercies that we are not consumed, because his compassions fail not. - Lamentations 3:21-22. I write from a different place today than i did a few weeks ago. Shea's pain is much better, and our little courageous fighter can now try new things, accept new challenges and push himself because he isn't drowning in pain. This makes mom very happy. Since my little man is more comfortable, and makin...

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Controlled Chaos!: Shea's progress ( June 18th )

http://thekulpchronicles.blogspot.com/2015/06/sheas-progress-june-18th.html

Wednesday, June 17, 2015. Shea's progress ( June 18th ). Today's "good things to report". Foley cath was removed. Although groggy shea enjoyed some visitors. Pain is still present, but he is doing well on a pca pump and oral pain meds.continuous morphine has been dc'ed. No longer in need of iv hydration, but does still have iv for meds. In am he was allowed to have a liquid diet and by dinner regular food. Vitals have been stable. New "toys" for shea's future- I've started the process of ordering a wheel...

2

Controlled Chaos!: June 2015

http://thekulpchronicles.blogspot.com/2015_06_01_archive.html

Sunday, June 21, 2015. He's rounded a corner! I am over the moon. I feel like discharge could be within the next day or two now. We do still have consistant vertigo when he sits up and then looks down, from neutral head into any cervical flexion. but it is so much improvement. Answered prayers! It looks like he has a bit of a UTI growing. and he has a low grade fever tonight on tylenol. but that is something we're staying on top of and hopefully wouldn't prolong a hospital stay. Tomorrow brings morning m...

3

Controlled Chaos!: July 2013

http://thekulpchronicles.blogspot.com/2013_07_01_archive.html

Tuesday, July 23, 2013. Not what I'm having an abundance of right now. But what I need prayers for! I will start with saying I am completely and utterly blessed beyond measure in life and really have no right to complain at all. But I need to do a little bit of therapuetic whining. and ask for prayers for our home. So please pray that for us. Phew, that run on fragmented sentence makes me out of breath just reading it. Subscribe to: Posts (Atom). When he proposed, I asked him a question before I said yes...

4

Controlled Chaos!: April 2014

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Wednesday, April 16, 2014. My husband for a decade! April 17th,2014 Happy Tenth Anniversary Dan! 10 years. sometimes it doesn't seem possible. Sometimes it seems like we just walked down the aisle yesterday. Sometimes it seems like we've lived life together forever. 10 years. the adventures we've shared in this time frame, doesn't quite fit the average curve . ehh? 10 years. I'm so glad I chose just the right mate to share this time with, and the future years to come as well. That's a decade! I don't kno...

5

Controlled Chaos!: October 2013

http://thekulpchronicles.blogspot.com/2013_10_01_archive.html

Sunday, October 13, 2013. Danielle's next 24 hours. Her EEG has to be a "sleep deprived" test to have a better chance of seeing seizure activity if it's occurring. We are only allowed to let her sleep for 4 to 5 hours tonight. I'm not really sure how we are going to pull this one off! I have a feeling we will be having a 10 pm trip to Mc Donalds or something along those lines. Thanks for taking the time to read. and we'll keep you updated. Friday, October 11, 2013. BOOK AUCTION FOR MERCY. She has spina b...

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Dancing in the Rain: August 2011

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August 24, 2011. Nathan's first day of school was Tuesday. It was a rough day for all. He cried. He screamed. He asked for his mom and dad repeatedly. But he made it through his first day and his first bus ride home. His teacher's note from his first day:. Oh, boy. I thought we had our work cut out for us. So Nate and I talked A LOT that night about school and what to expect. And about being brave and not crying at school. Once he got off the bus he was all smiles. His note from today:. Nathan had a much.

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Dancing in the Rain: October 2011

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October 31, 2011. October is spina bifida awareness month. I'll admit, I've slacked this month (yes, I do realize this is the very last. You should be aware that having a child with SB may cause increased motivation to help others, a new-found perspective in times of trial, a desire to enjoy the little things and commitment to change the way the world defines "disability". Studies show that raising a child with SB will induce strong feelings of gratitude for. I think that says it all. October 26, 2011.

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Dancing in the Rain: April 2012

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April 02, 2012. No, I have not fallen off the face of the Earth. I know, I know. I have lots of catching up to do. I see a blogging marathon in my future. More to come soon! Subscribe to: Posts (Atom). Keep up to date with Nate's progress and doctor visits here. Our brave little boy. Will be three in a couple weeks,. Is starting to read words,. And just got a big boy bed. He loves trains, dinosaurs,. The Wonder Pets, and. Can't get enough of books. Are growing, and he is getting. He is so excited to start.

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Dancing in the Rain: Practice

http://burnettdancingintherain.blogspot.com/2012/01/practice.html

January 03, 2012. Subscribe to: Post Comments (Atom). Keep up to date with Nate's progress and doctor visits here. Our brave little boy. Will be three in a couple weeks,. Is starting to read words,. And just got a big boy bed. He loves trains, dinosaurs,. The Wonder Pets, and. Can't get enough of books. Are growing, and he is getting. Around so well in his chair. He is so excited to start. Pre school in the fall. And welcome a baby brother. Our newest little addition. View my complete profile.

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Journey of a Lifetime: September 2012

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Journey of a Lifetime. The story of Zachary. Sep 20, 2012. My little man turned 6 today.I truly can hardly believe it! 6 feels like such a grown up kid age and now my second little boy has reached that milestone. He is still a passionate, melting, loud, witty, talking, fast boy. And he sure loves his birthday. Carter, you are loved beyond measure. Happy Birthday! I will add one soon. Links to this post. Sep 19, 2012. How do you define this word? I just think it's wrong. So I am determined to do what ...

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Journey of a Lifetime: March 2012

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Journey of a Lifetime. The story of Zachary. Mar 17, 2012. Hi, it's me again.not sure if anyone even still reads this lol. I'm sorry it's been so long, but what can I say, I've been busy :). We've had Christmas, a rockstart turning 2! And a lot of life in between. I'm starting this post from work, but I will attempt to add pictures when I get home.but fear that will delay me in hitting the "post" button. So we'll see how that goes. Not completely healed, but well on it's way! I actually did put on his br...

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Journey of a Lifetime: March 2011

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Journey of a Lifetime. The story of Zachary. Mar 2, 2011. I have spent the last 20 minutes typing and retyping what I thought was going to be a quick post. One reflecting on Zachary's arrival home 1 year ago. And part of the retyping was because I started that post last week when the actual anniversary was, but because of an awful stomach bug it was put on hold. Sitting on the Potty! Zachary always looking for someone else's food. Links to this post. Subscribe to: Posts (Atom). View my complete profile.

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Journey of a Lifetime: October 2013

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Journey of a Lifetime. The story of Zachary. Oct 9, 2013. How do you begin a comeback blog post. How do you sum up a years worth of memories. How is it possible that so long has past since I have sat at my computer to even think about putting thoughts on a page for the blogging world to read. Once again I'm inspired by those blogs that I love to read and catch up on, beyond a Facebook status. So I won't look to past experiences to fill my new blogging adventure. Getting Zachary ready for school. So I rea...

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People who haven't made me mad!

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A top notch Christian relief Organization. Please consider sposoring a child. Offering hope to families around the world willing to adopt, Showhope has been instrumental in the adoption of my two children! Find a child for somebody just like you! They are an incredible ministry to help you with needed funds to adopt. Please check out these beautiful children. My wife has a pretty fantastic blog. Good reading if you're curious about our family.

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Dancing in the Rain: April 2011

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April 05, 2011. Nate is talking up a storm these days. And I've been trying to write down some of the things he says because they are so cute! Ryan puts Nate in his wheel chair after breakfast. A few minutes later he wheels up to Ryan. What we got goin' on today? Nate is sitting on my lap and we are snuggling and talking. He starts stroking my hair, looks up at me and says,. Mommy, you're my best friend. I tell Nate we are going to Target later. What am I going to get there? What's daddy's favorite store?

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Controlled Chaos!

Thursday, July 16, 2015. We are not consumed. This I recall to my mind, therefore have I hope. It is of the Lord's mercies that we are not consumed, because his compassions fail not. - Lamentations 3:21-22. I write from a different place today than i did a few weeks ago. Shea's pain is much better, and our little courageous fighter can now try new things, accept new challenges and push himself because he isn't drowning in pain. This makes mom very happy. Since my little man is more comfortable, and makin...

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