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October | 2009 | Fabry Disease Blog
https://fabrydisease.wordpress.com/2009/10
Just another WordPress.com weblog. Archive for October, 2009. Early access to second treatment for Fabry disease. October 21, 2009. The FDA has approved early access to Replagal , a second treatment for Fabry disease, as Shire prepares to apply for FDA approval to provide commercial treatment in the U.S. This measure offers physicians and patients an opportunity to receive Replagal under certain conditions while there is a shortage of the currently FDA approved treatment Fabrazyme . October 7, 2009.
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January | 2010 | Fabry Disease Blog
https://fabrydisease.wordpress.com/2010/01
Just another WordPress.com weblog. Archive for January, 2010. Next Fabrazyme shortage town hall. January 27, 2010. The next audio-conference town hall is tuesday, Feb 23rd at 6:00 PM Eastern. Stay tuned or visit www.TheNFDF.org. For call-in details. Jerry. Fabry disease education for Dermatologists. January 27, 2010. January 25, 2010. The NFDF will send our 2nd e-newsletter in the next couple of weeks. Sign up at http:/ www.TheNFDF.org. You are currently browsing the Fabry Disease Blog.
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Shire HGT Fabry disease patient summit | Fabry Disease Blog
https://fabrydisease.wordpress.com/2010/02/21/shire-hgt-fabry-disease-patient-summit
Just another WordPress.com weblog. Laquo; Fabrazyme shortage. Free Family Assistance Program for Fabry disease patients. Shire HGT Fabry disease patient summit. To learn about Shire HGT the manufacturers of Replagal, please participate in the Shire patient summit teleconference on Thursday, March 11, 2010 from 5:00 pm 6:30 pm EST. Details to follow on http:/ www.TheNFDF.org. This entry was posted on February 21, 2010 at 2:30 pm and is filed under Uncategorized. Feed You can leave a response.
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Fabry Disease Blog | Just another WordPress.com weblog | Page 2
https://fabrydisease.wordpress.com/page/2
Just another WordPress.com weblog. Next Fabrazyme shortage town hall. January 27, 2010. The next audio-conference town hall is tuesday, Feb 23rd at 6:00 PM Eastern. Stay tuned or visit www.TheNFDF.org. For call-in details. Jerry. Fabry disease education for Dermatologists. January 27, 2010. January 25, 2010. The NFDF will send our 2nd e-newsletter in the next couple of weeks. Sign up at http:/ www.TheNFDF.org. December 1, 2009. Charles Kleinschmidt Fabry Family Camp at Victory Junction Gang Camp, NC.
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December | 2009 | Fabry Disease Blog
https://fabrydisease.wordpress.com/2009/12
Just another WordPress.com weblog. Archive for December, 2009. December 1, 2009. The next Fabrazyme shortage Town Hall is scheduled for Thursday, Dec 3rd at 6-7 PM (EST). To participate, please call 1-888-790-3523 (Toll Free) or (U.S. Toll) 1-517-308-9177, Passcode: FABRY. More details at http:/ www.TheNFDF.org. You are currently browsing the Fabry Disease Blog. Blog archives for December, 2009. Create a free website or blog at WordPress.com. Follow “Fabry Disease Blog”.
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April 28th Genzyme Town Hall | Fabry Disease Blog
https://fabrydisease.wordpress.com/2010/04/22/april-28th-genzyme-town-hall
Just another WordPress.com weblog. Laquo; Expanded Access to Replagal. April 28th Genzyme Town Hall. Genzyme invites the Fabry community to a Town Hall meeting/Genzyme Supply Update on Wed, April 28 at 6:00 – 7:00 PM (EST) to discuss recent updates provided in the Press Release dated April 21, 2010. US Toll Free: 888 790 3347, US Toll: 212 519 0805, Passcode: Fabry. See the full press release and town hall invitation in the What’s Hot section of www.TheNFDF.org. Feed You can leave a response.
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November | 2009 | Fabry Disease Blog
https://fabrydisease.wordpress.com/2009/11
Just another WordPress.com weblog. Archive for November, 2009. Charles Kleinschmidt Fabry Family Camp at Victory Junction Gang Camp, NC. November 25, 2009. Jerry Walter, President, National Fabry Disease Foundation. November 20, 2009. The next Genzyme Town Hall meeting is scheduled for Monday, November 23 from 6-7 (Eastern). November 20, 2009. Also, register on the NFDF website to receive the upcoming expanded paper newsletter. Current news for Fabry disease. November 14, 2009. See www.TheNFDF.org. We de...
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Genzyme LSD Community Town Hall | Fabry Disease Blog
https://fabrydisease.wordpress.com/2010/03/25/genzyme-lsd-community-town-hall
Just another WordPress.com weblog. Laquo; Shire conference call details. Expanded Access to Replagal. Genzyme LSD Community Town Hall. Fabry disease patients and family members can hear about the FDA enforcement action at the Allston manufacturing plant. Genzyme LSD Community Town Hall. Wednesday, March 31, 2010. 6:00 pm- 7:00 pm (Eastern time). US Toll Free: # 888-469-0975. US Toll: # 517-308-9195. See www.TheNFDF.org. This entry was posted on March 25, 2010 at 7:51 pm and is filed under Uncategorized.
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Fabrazyme shortage | Fabry Disease Blog
https://fabrydisease.wordpress.com/2010/02/21/fabrazyme-shortage
Just another WordPress.com weblog. Laquo; Fabrazyme shortage Town Hall. Shire HGT Fabry disease patient summit. If you have Fabry disease or are a family member, please vist our Inspire page from the What Hot section of our website at http:/ www.TheNFDF.org. And tell us how the Fabrazyme shortage is affecting you. This entry was posted on February 21, 2010 at 2:26 pm and is filed under Uncategorized. You can follow any responses to this entry through the RSS 2.0. Feed You can leave a response. Please sig...