the-brain-pain-blog.blogspot.com
The IH Brain Pain Blogs: It's Called a "Wet" Brain
http://the-brain-pain-blog.blogspot.com/2011/04/its-called-wet-brain.html
THE IH BRAIN PAIN BLOGS - Life with Intracranial Hypertension writings by Karla, Victoria, Pamela, Laura and Nicole. Thursday, April 7, 2011. It's Called a "Wet" Brain. Sometimes I go browsing through the internet for any new news about Intracranial Hypertension, Pseudotumor Cerebri, or perhaps a new treatment. I've done all the things that the average parent will do when first confronted with the fact that I now have a chronically ill child. Turn to the Internet. This article is from 1933! Well, this is...
the-brain-pain-blog.blogspot.com
The IH Brain Pain Blogs: February 2012
http://the-brain-pain-blog.blogspot.com/2012_02_01_archive.html
THE IH BRAIN PAIN BLOGS - Life with Intracranial Hypertension writings by Karla, Victoria, Pamela, Laura and Nicole. Tuesday, February 21, 2012. RARE DISEASE DAY 29-2-2012. RARE DISEASE DAY 29-2-2012. Links to this post. Friday, February 3, 2012. Keep the School Informed - Repeatedly. Medical information - What's the latest news from the doctors? How do the eyes look? What are the less obvious symptoms that you see at home regularly? Ask for input from the school. Sometimes, a teacher or learning con...
the-brain-pain-blog.blogspot.com
The IH Brain Pain Blogs: December's IH Story: Hope Hugel
http://the-brain-pain-blog.blogspot.com/2011/12/decembers-ih-story-hope-hugel.html
THE IH BRAIN PAIN BLOGS - Life with Intracranial Hypertension writings by Karla, Victoria, Pamela, Laura and Nicole. Tuesday, December 6, 2011. December's IH Story: Hope Hugel. Click the banner to DONATE. Every patient with IH has a face (as we proudly display on our facebook Wall of Hope. But every patient also has a story! Here on The IH Brain Pain Blogs I plan to bring you the stories of those patients who are willing to share them with you. December's IH Story: Hope Hugel. 1 When were you diagnosed?
the-brain-pain-blog.blogspot.com
The IH Brain Pain Blogs: November's IH Story: Kim Aponte-Ortiz
http://the-brain-pain-blog.blogspot.com/2011/11/novembers-ih-story-kim-aponte-ortiz.html
THE IH BRAIN PAIN BLOGS - Life with Intracranial Hypertension writings by Karla, Victoria, Pamela, Laura and Nicole. Friday, November 4, 2011. November's IH Story: Kim Aponte-Ortiz. Click the banner to DONATE. Every patient with IH has a face (as we proudly display on our facebook Wall of Hope. But every patient also has a story! Here on The IH Brain Pain Blogs I plan to bring you the stories of those patients who are willing to share them with you. November's IH Story: Kim Aponte-Ortiz. Then I started g...
the-brain-pain-blog.blogspot.com
The IH Brain Pain Blogs: Support a Fellow IH-er
http://the-brain-pain-blog.blogspot.com/2011/11/support-fellow-ih-er.html
THE IH BRAIN PAIN BLOGS - Life with Intracranial Hypertension writings by Karla, Victoria, Pamela, Laura and Nicole. Monday, November 7, 2011. Support a Fellow IH-er. I just saw this book trailer myself and I have to say, I am pretty curious. I'll let you watch before I go on. You may or may not remember me mentioning Pandora Poikilos before. In case you don't, I'll refresh your memory. Why You Should Know Who Pandora Poikilos is. On my post about IH Awareness month. Why Am I So Pushy About This? The pro...
the-brain-pain-blog.blogspot.com
The IH Brain Pain Blogs: December 2011
http://the-brain-pain-blog.blogspot.com/2011_12_01_archive.html
THE IH BRAIN PAIN BLOGS - Life with Intracranial Hypertension writings by Karla, Victoria, Pamela, Laura and Nicole. Tuesday, December 6, 2011. December's IH Story: Hope Hugel. Click the banner to DONATE. Every patient with IH has a face (as we proudly display on our facebook Wall of Hope. But every patient also has a story! Here on The IH Brain Pain Blogs I plan to bring you the stories of those patients who are willing to share them with you. December's IH Story: Hope Hugel. 1 When were you diagnosed?
the-brain-pain-blog.blogspot.com
The IH Brain Pain Blogs: Adopting a Rare Disease
http://the-brain-pain-blog.blogspot.com/2011/11/adopting-rare-disease.html
THE IH BRAIN PAIN BLOGS - Life with Intracranial Hypertension writings by Karla, Victoria, Pamela, Laura and Nicole. Saturday, November 5, 2011. Adopting a Rare Disease. Well I just had another idea. Sadly, there isn't enough time left in this century for me to follow through with all of my ideas. Perhaps some others will think it's a good idea, grab the ball and run with it. I used a football analogy because the charitable organization called Uplifting Athletes. December 21, 2011 at 9:39 PM. Well, this ...
the-brain-pain-blog.blogspot.com
The IH Brain Pain Blogs: The Stories of IH: Nicole Rivera
http://the-brain-pain-blog.blogspot.com/2011/10/stories-of-ih-nicole-rivera.html
THE IH BRAIN PAIN BLOGS - Life with Intracranial Hypertension writings by Karla, Victoria, Pamela, Laura and Nicole. Wednesday, October 5, 2011. The Stories of IH: Nicole Rivera. Intracranial Hypertension is a rare disease. When I first heard this and read about it, two things occurred to me: I felt very alone and I thought it would be nearly impossible to find anyone else with this disease. However, since being diagnosed in 2009, I have discovered exactly how large a rare community can be! I had an opti...
the-brain-pain-blog.blogspot.com
The IH Brain Pain Blogs: Keep the School Informed - Repeatedly
http://the-brain-pain-blog.blogspot.com/2012/02/keep-school-informed-repeatedly.html
THE IH BRAIN PAIN BLOGS - Life with Intracranial Hypertension writings by Karla, Victoria, Pamela, Laura and Nicole. Friday, February 3, 2012. Keep the School Informed - Repeatedly. So the next step was to increase her IH meds. Then the next step was to let her school know about the new problems. Then the next step and the next . All of you parents of IH kids know that there is ALWAYS another step that has to be taken. Medical information - What's the latest news from the doctors? How do the eyes look?
