thexlhnetwork.blogspot.com

The XLH Network, Inc.

The XLH Network, Inc. Wednesday, August 12, 2015. The Network’s Board of Directors held its annual in-person meeting the first weekend of August this year, and while words are inadequate to convey the degree of dedication, excitement and anticipation in the air, I can give you a taste of the projects we’re currently working on or have planned for the rest of the year. I look forward to moving ahead with the plans made at this meeting and sharing the details of the new initiatives as they are finalized.

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The XLH Network, Inc. | thexlhnetwork.blogspot.com Reviews

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The XLH Network, Inc. Wednesday, August 12, 2015. The Network’s Board of Directors held its annual in-person meeting the first weekend of August this year, and while words are inadequate to convey the degree of dedication, excitement and anticipation in the air, I can give you a taste of the projects we’re currently working on or have planned for the rest of the year. I look forward to moving ahead with the plans made at this meeting and sharing the details of the new initiatives as they are finalized.

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2 becky mock

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The XLH Network, Inc. | thexlhnetwork.blogspot.com Reviews

https://thexlhnetwork.blogspot.com

The XLH Network, Inc. Wednesday, August 12, 2015. The Network’s Board of Directors held its annual in-person meeting the first weekend of August this year, and while words are inadequate to convey the degree of dedication, excitement and anticipation in the air, I can give you a taste of the projects we’re currently working on or have planned for the rest of the year. I look forward to moving ahead with the plans made at this meeting and sharing the details of the new initiatives as they are finalized.

INTERNAL PAGES

thexlhnetwork.blogspot.com

1

The XLH Network, Inc.: November 2014

http://www.thexlhnetwork.blogspot.com/2014_11_01_archive.html

The XLH Network, Inc. Tuesday, November 25, 2014. This year has been a busy one, with lots of firsts, like our recent Midwest XLH Day. Now it's time for another first: our first year participating in #GivingTuesday. If you appreciate the work the Network has been doing, here are a few ways you can give back on #GivingTuesday. We understand that not everyone is in a position to make even a small financial contribution, but there are other ways to give back. Wednesday, November 19, 2014. The second opportu...

2

The XLH Network, Inc.: Why donate appreciated stock

http://www.thexlhnetwork.blogspot.com/2015/07/why-donate-appreciated-stock.html

The XLH Network, Inc. Wednesday, July 22, 2015. Why donate appreciated stock. You may recall that last year we announced that the XLH Network is now set up to receive donations of appreciated securities (stock). Perhaps you're already more financially savvy than most, and understand why that can be a useful financial planning tool, but for the rest of us, we've got a bit of explanation. Why Making a Gift of Appreciated Securities Makes Sense. How It Works to Your Advantage. How It Works at the XLH Network.

3

The XLH Network, Inc.: May 2015

http://www.thexlhnetwork.blogspot.com/2015_05_01_archive.html

The XLH Network, Inc. Wednesday, May 27, 2015. Meet Director Chris Younger. 1 How did you get involved with the XLH Network, and then how did you become a member of the Board of Directors? Through the network I found out about and participated in several clinical trials at Yale, which is where I finally met another real live XLHer in the flesh. This only took 40-some years! 2 What's your "super power" - the special skill, knowledge or experience that you bring to the board? I'm also an exercise enthusias...

4

The XLH Network, Inc.: Administrative Assistant

http://www.thexlhnetwork.blogspot.com/2015/07/administrative-assistant.html

The XLH Network, Inc. Tuesday, July 7, 2015. The Network is hiring its first-ever employee (part-time, virtual administrative assistant), thanks to the generous financial assistance of Ultragenyx Pharmaceutical. If you're interested in applying, or know someone with the right skill set, the details are at the link below. We will accept applications through July 24th. http:/ www.xlhnetwork.org/index.php/adminjob. Note: Only a member of this blog may post a comment. Subscribe to: Post Comments (Atom).

5

The XLH Network, Inc.: President's message

http://www.thexlhnetwork.blogspot.com/2015/08/presidents-message.html

The XLH Network, Inc. Wednesday, August 12, 2015. The Network’s Board of Directors held its annual in-person meeting the first weekend of August this year, and while words are inadequate to convey the degree of dedication, excitement and anticipation in the air, I can give you a taste of the projects we’re currently working on or have planned for the rest of the year. I look forward to moving ahead with the plans made at this meeting and sharing the details of the new initiatives as they are finalized.

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XLH Network: March 2014

http://xlhnetwork.blogspot.com/2014_03_01_archive.html

Sunday, March 9, 2014. You can find us here: thexlhnetwork.blogspot.com. Subscribe to: Posts (Atom). Simple template. Powered by Blogger.

xlhnetwork.blogspot.com

XLH Network: We've moved

http://xlhnetwork.blogspot.com/2014/03/weve-moved.html

Sunday, March 9, 2014. You can find us here: thexlhnetwork.blogspot.com. Simple template. Powered by Blogger.

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thexlhnetwork.blogspot.com

The XLH Network, Inc.

The XLH Network, Inc. Wednesday, August 12, 2015. The Network’s Board of Directors held its annual in-person meeting the first weekend of August this year, and while words are inadequate to convey the degree of dedication, excitement and anticipation in the air, I can give you a taste of the projects we’re currently working on or have planned for the rest of the year. I look forward to moving ahead with the plans made at this meeting and sharing the details of the new initiatives as they are finalized.

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