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This Stefanie Matters

A happy family is but an earlier heaven." - george bernard shaw. Tuesday, September 3, 2013. Is this a waste of my time? To write of the days leading up to the night that Anna died? Should I just walk away from this and be content with the spiritual understanding that she is at peace? That she was a really sick little girl and was ready to die? That she is our Saint who prays for Manny, Gabriel and me and is with us everyday? That this was the best resolution for her? During the past week, I have hung in...

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This Stefanie Matters | thisstefaniematters.blogspot.com Reviews
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A happy family is but an earlier heaven. - george bernard shaw. Tuesday, September 3, 2013. Is this a waste of my time? To write of the days leading up to the night that Anna died? Should I just walk away from this and be content with the spiritual understanding that she is at peace? That she was a really sick little girl and was ready to die? That she is our Saint who prays for Manny, Gabriel and me and is with us everyday? That this was the best resolution for her? During the past week, I have hung in...
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1 this stefanie matters
2 reflecting
3 august 22nd
4 but then
5 august 24th
6 august 29th
7 and then
8 sept 1st
9 and then moses
10 no comments
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This Stefanie Matters | thisstefaniematters.blogspot.com Reviews

https://thisstefaniematters.blogspot.com

A happy family is but an earlier heaven." - george bernard shaw. Tuesday, September 3, 2013. Is this a waste of my time? To write of the days leading up to the night that Anna died? Should I just walk away from this and be content with the spiritual understanding that she is at peace? That she was a really sick little girl and was ready to die? That she is our Saint who prays for Manny, Gabriel and me and is with us everyday? That this was the best resolution for her? During the past week, I have hung in...

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1

This Stefanie Matters: All-Star

http://thisstefaniematters.blogspot.com/2011/06/all-star.html

A happy family is but an earlier heaven." - george bernard shaw. Sunday, June 12, 2011. Gabe's had an awesome baseball season! The games and practices have kept us on our toes but the amount of improvement he and the team have made is incredible. It's been a great season. And I think he looks so cute in his uniform. Here's a little clip of Gabe and Daddy being goofs after one of his games:. Posted by stefanie g. He is looking so grown up. June 17, 2011 at 1:10 PM. Subscribe to: Post Comments (Atom).

2

This Stefanie Matters: Reflecting

http://thisstefaniematters.blogspot.com/2012/09/reflecting.html

A happy family is but an earlier heaven." - george bernard shaw. Sunday, September 23, 2012. Who's going to go apple picking with us? Who's going to go hiking with us? Go on trips with us? North Carolina to the beach with us? Just, who will do anything with us? I don't feel so good about being a family of three.". These words were spoken by Gabriel, Anna's big brother, today. And they are so simple, yet so resonating. She died 34 days after this photo was taken, on Sept. 5th. The last blog post I wrote w...

3

This Stefanie Matters: The Return...

http://thisstefaniematters.blogspot.com/2011/06/return.html

A happy family is but an earlier heaven." - george bernard shaw. Saturday, June 11, 2011. This past month has been cray-cray brosephs! Alas highlights of the past 5 weeks in photos:. Palm Sunday Easter Egg Hunt that followed our favorite Sunday of every month, the monthly Special Needs Mass at Holy Trinity, Whitestone:. In true big brother fashion, Gabe made it his mission to get enough for Anna Banana, too.). The Easter Bunny came:. Dental Check-Up For the Kiddos. Congrats, Gabe and Anna! But as time, a...

4

This Stefanie Matters: Time

http://thisstefaniematters.blogspot.com/2012/12/time.html

A happy family is but an earlier heaven." - george bernard shaw. Tuesday, December 4, 2012. Time Time moves on, so quickly. The days go by, and tomorrow I stare in the face of four months without the physical presence of Anna in my life. The dream that I keep waiting to wake up from becomes more of my reality, and it is scary, lonely, surreal, to navigate through life without her. Is this what this is? I am so not used to this. The Rett community. Especially Monica, Rachel, Erika, Jeff and Sara, Kris...

5

This Stefanie Matters: Reflecting.

http://thisstefaniematters.blogspot.com/2013/09/reflecting.html

A happy family is but an earlier heaven." - george bernard shaw. Tuesday, September 3, 2013. Is this a waste of my time? To write of the days leading up to the night that Anna died? Should I just walk away from this and be content with the spiritual understanding that she is at peace? That she was a really sick little girl and was ready to die? That she is our Saint who prays for Manny, Gabriel and me and is with us everyday? That this was the best resolution for her? During the past week, I have hung in...

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Pennies for Rett: April 2011

http://penniesforerett.blogspot.com/2011_04_01_archive.html

Pennies for Rett January 2011. Look at all of the pennies I have collected so far! Wednesday, April 6, 2011. My Pennies for Rett Video. Monday, April 4, 2011. I got lots of coins this week at school doing Pennies for Rett! Subscribe to: Posts (Atom). Rett Syndrome on The View 1/28/11. Girl Power 2 Cure. Girl Power 2 Cure. Runner Spotlight: Molly Barker. Quest for a Cure 2013! My Pennies for Rett Video. There was an error in this gadget. Simple theme. Powered by Blogger.

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Pennies for Rett: March 2011

http://penniesforerett.blogspot.com/2011_03_01_archive.html

Pennies for Rett January 2011. Look at all of the pennies I have collected so far! Monday, March 7, 2011. Rockin for Rett 2011. I know this is early but I cannot wait for rockin for Rett. My cousin Rachel and I are having a cupcake stand. We are going to even make cupcakes for dogs. pupcakes ha ha. mom is going to e mail Gorge Town cupcakes the DC cupcakes show to see if they will donate something for the auction. I am going to burst. We will definitely get close to curing Rett. Subscribe to: Posts (Atom).

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The Wacko Mascos: MB Day 2/3 -2011

http://wackomascos.blogspot.com/2011/06/mb-day-23-2011.html

Welcome friends and family to our blog, we hope you come back often so you can keep up with our crazy lives. Kevin, Jodi, Allysa and Ashlee. Mother to Allysa and Ashlee, wife, friend, a nurse. Enjoy reading, Love Buckeye and Steeler Football and spending time with my friends and family. View my complete profile. Tuesday, June 7, 2011. MB Day 2/3 -2011. Again, not a whole lot to stay, the pictures speak for themselves. I think they induced panic :). I am enjoying my 5 o'clock somewhere time and reading!

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The Wacko Mascos: January 2011

http://wackomascos.blogspot.com/2011_01_01_archive.html

Welcome friends and family to our blog, we hope you come back often so you can keep up with our crazy lives. Kevin, Jodi, Allysa and Ashlee. Mother to Allysa and Ashlee, wife, friend, a nurse. Enjoy reading, Love Buckeye and Steeler Football and spending time with my friends and family. View my complete profile. Saturday, January 8, 2011. Officially Spooked and In Loving Memory. About that time I woke up and realized it was a just a DREAM, however it felt so REAL! This is not the first time I had a dream...

specialmommyx2.com specialmommyx2.com

8 years ago

http://specialmommyx2.com/2015/05/21/8-years-ago

Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. May 21, 2015. 2007: year of diagnosis. I wonder if our diagnosis day was not so close to her birthday if I would still remember it each year? Early on….sure, of course – 1st year, second year, 5th year maybe. But now eight years later – should it still come to mind? Should my heart still hurt? And eight years…how can that even be possible? Cry the entire year but it was tough. Most ...

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Girl Power 2 Cure

http://specialmommyx2.com/category/girl-power-2-cure

Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Girl Power 2 Cure. Girl Power 2 Cure. October 12, 2015. Let that sink in for a second. How much hope does this statement give you? For me it is overwhelming! Click to share on Facebook (Opens in new window). Click to share on Twitter (Opens in new window). Click to share on Google (Opens in new window). Click to email this to a friend (Opens in new window). Girl Power 2 Cure. And ei...

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Uncategorized

http://specialmommyx2.com/category/uncategorized

Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. A Day Off (no, out – well off too! October 11, 2015. I apologize for not posting yesterday but I had a day Off I mean out….well I was “off” too. Kristin and I took off for Southbend. Unfortunately our game tickets fell through but Notre Dame on game day is always a fun place to be. It is a HUGE bonus that our aunt lives there […]. Click to share on Facebook (Opens in new window).

specialmommyx2.com specialmommyx2.com

Prom and an attempt at normalcy

http://specialmommyx2.com/2015/04/16/prom-and-an-attempt-at-normalcy

Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Prom and an attempt at normalcy. Prom and an attempt at normalcy. April 16, 2015. Suddenly turning ten and thinking about eight years with Rett Syndrome seems insignificant. Prom Ugh. Prom. I can’t bring myself to think that far ahead. To be honest because I can’t – it hurts WAY TO MUCH. Here is what she wrote:. A letter to the mom in the dressing room next to me,. I love you so muc...

specialmommyx2.com specialmommyx2.com

Life with Our Tubie – Changes

http://specialmommyx2.com/2015/06/06/life-with-tubie-changes

Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Life with Our Tubie – Changes. Life with Our Tubie – Changes. June 6, 2015. And so the change begins…. Webpage is the official place to keep up with all of the changes as well as a timeline for these changes. I also love the Feeding Tube Awareness Foundation. Website for helpful information. For now the only “new” part I have is the bag – I use the adapter that com...Click to share ...

specialmommyx2.com specialmommyx2.com

Autism Awareness Month

http://specialmommyx2.com/2015/04/06/autism-awareness-month

Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. April 6, 2015. We are six days into Autism Awareness Month and I have not blogged. (I know – you are not shocked – I have been quite the blog slacker the past few months) Anyway, this is a tough one. I feel like I just “celebrated” World Down Syndrome Day – oh…because we did…just last month! 8221; I would not hesitate for even a second. Yes. Yes please. This might sound harsh. Ahhhh...

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This Stefanie Matters

A happy family is but an earlier heaven." - george bernard shaw. Tuesday, September 3, 2013. Is this a waste of my time? To write of the days leading up to the night that Anna died? Should I just walk away from this and be content with the spiritual understanding that she is at peace? That she was a really sick little girl and was ready to die? That she is our Saint who prays for Manny, Gabriel and me and is with us everyday? That this was the best resolution for her? During the past week, I have hung in...

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