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Thoughts About M.E. | Myalgic Encephalomyelitis (M.E.): Amped up. Ready to go (TM) Gladiators in PJs (TM)

Myalgic Encephalomyelitis (M.E.): Amped up. Ready to go (TM) Gladiators in PJs (TM) (by Jeannette Burmeister)

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Thoughts About M.E. | Myalgic Encephalomyelitis (M.E.): Amped up. Ready to go (TM) Gladiators in PJs (TM) | thoughtsaboutme.com Reviews

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Myalgic Encephalomyelitis (M.E.): Amped up. Ready to go (TM) Gladiators in PJs (TM) (by Jeannette Burmeister)

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1

CFSAC December 2013 | Thoughts About M.E.

http://thoughtsaboutme.com/cfsac-december-2013

Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. My December 2013 Video CFSAC Testimony. December 11, 2013). Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Email (Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. You are commenting using your Google account. ( Log Out.

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CFSAC | Thoughts About M.E.

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Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. Http:/ www.hhs.gov/advcomcfs/. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Email (Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. You are commenting using your Google account. ( Log Out. Notify me of new posts via email.

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Quotes | Thoughts About M.E.

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Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. In my experience, (ME/CFS) is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages. Dr Daniel Peterson (Introduction to Research and Clinical Conference, Fort Lauderdale, Florida, October 1994; published in JCFS 1995:1:3-4:123-125). 8220;Fatigue is what we experience, but it is what a match is to an atomic bomb.”. February 4, 2011). The whole idea that you can take a disease like this an...

4

267% Price Increase for Ampligen | Thoughts About M.E.

http://thoughtsaboutme.com/2015/08/12/267-price-increase-for-ampligen

Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. Hip Surgery and ME: Society Has It Wrong. CFSAC Comments August 2015: Ampligen Price Increase on Shaky Ground →. 267% Price Increase for Ampligen. August 12, 2015. For my follow-up letter to Dr. Woodcock.]. I just sent the following message regarding Hemispherx’s extraordinary 267% price increase for Ampligen to Dr. Janet Woodcock, the FDA’s Director of the Center for Drug Evaluation and Research:. Dear Dr. Woodcock,. To be completely blindsi...

5

CFS | Thoughts About M.E.

http://thoughtsaboutme.com/tag/cfs

Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. Keep an Eye on Your Walitt: NIH Study Poses Dramatic Risk to Long-Term Disability Benefits. March 21, 2016. Many ME/CFS* sufferers are covered by employer-sponsored long-term disability ( LTD ) policies. These policies almost universally limit LTD benefits to 24 months for disability caused or even just contributed to by a mental/nervous disorder. The following language is taken from a current policy … Continue reading →. February 21, 2016.

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sallyjustme.blogspot.com sallyjustme.blogspot.com

Just ME: Well enough to drink coffee?

http://sallyjustme.blogspot.com/2015/05/well-enough.html

ME - Myalgic Encephalomyelitis - not just fatigue. Views expressed are not to be taken as medical advice. 10 Things ME patients need NOW! Tuesday, 12 May 2015. Well enough to drink coffee? Often people find it hard to understand why ME folk can do something once but not repeatedly. I used to think that way too. Before I was ill, I remember hearing a comment about a colleague who was off work on long-term sick leave:. Some-one said, "If he's well enough to be out drinking coffee, he should be back in work!

wolfdreams.wordpress.com wolfdreams.wordpress.com

The Deep of the Night | Wolfdreams...

https://wolfdreams.wordpress.com/2015/07/08/the-deep-of-the-night

Life, Spirit, and Health: the View from the Mountain. Laquo; #FWF Kellie Elmore. The Deep of the Night. July 8, 2015 by Ash. Awake, yet again, in the deep of the night,. I listen to the breeze sigh through the forest leaves,. Sounding like the gentle caress of waves on the shore. My ever present companion, Kodi,. Lays watchful at the end of the deck,. As I turn to go sit in my porch swing. A loud snort breaks the silence of the Mountain,. Echoing all around us,. And Kodi is instantly alert and by my side.

cfspatientadvocate.blogspot.com cfspatientadvocate.blogspot.com

CFS Patient Advocate: September 2013

http://cfspatientadvocate.blogspot.com/2013_09_01_archive.html

The job of Patient Advocate came upon me uninvited. I did not apply for this job, nor did I have any qualifications for it. I am a sculptor, not a doctor or a researcher. My daughter. Survey Results on Adaptogens. When Retreat Means Advance: A Recovered Chronic Fatigue Syndrome/Fibromyalgia Patient Looks Back. OMG: Prof Chalder admits that they made up the death threats themself to ridicule patients. LOOKING AT LYME DISEASE - MSIDS. TICK AWARENESS IN SURREY - LYME DISEASE. Quixotic: My M.E. Blog. Points ...

cfspatientadvocate.blogspot.com cfspatientadvocate.blogspot.com

CFS Patient Advocate: August 2013

http://cfspatientadvocate.blogspot.com/2013_08_01_archive.html

The job of Patient Advocate came upon me uninvited. I did not apply for this job, nor did I have any qualifications for it. I am a sculptor, not a doctor or a researcher. My daughter. Survey Results on Adaptogens. When Retreat Means Advance: A Recovered Chronic Fatigue Syndrome/Fibromyalgia Patient Looks Back. OMG: Prof Chalder admits that they made up the death threats themself to ridicule patients. LOOKING AT LYME DISEASE - MSIDS. TICK AWARENESS IN SURREY - LYME DISEASE. Quixotic: My M.E. Blog. I have ...

cfspatientadvocate.blogspot.com cfspatientadvocate.blogspot.com

CFS Patient Advocate: Hugh and Chris Hempel - and their daughters Addi and Cassi

http://cfspatientadvocate.blogspot.com/2015/02/hugh-and-chris-hempel-and-their.html

The job of Patient Advocate came upon me uninvited. I did not apply for this job, nor did I have any qualifications for it. I am a sculptor, not a doctor or a researcher. My daughter. Survey Results on Adaptogens. When Retreat Means Advance: A Recovered Chronic Fatigue Syndrome/Fibromyalgia Patient Looks Back. OMG: Prof Chalder admits that they made up the death threats themself to ridicule patients. LOOKING AT LYME DISEASE - MSIDS. TICK AWARENESS IN SURREY - LYME DISEASE. Quixotic: My M.E. Blog. The Hem...

cfspatientadvocate.blogspot.com cfspatientadvocate.blogspot.com

CFS Patient Advocate: October 2013

http://cfspatientadvocate.blogspot.com/2013_10_01_archive.html

The job of Patient Advocate came upon me uninvited. I did not apply for this job, nor did I have any qualifications for it. I am a sculptor, not a doctor or a researcher. My daughter. Survey Results on Adaptogens. When Retreat Means Advance: A Recovered Chronic Fatigue Syndrome/Fibromyalgia Patient Looks Back. OMG: Prof Chalder admits that they made up the death threats themself to ridicule patients. LOOKING AT LYME DISEASE - MSIDS. TICK AWARENESS IN SURREY - LYME DISEASE. Quixotic: My M.E. Blog. This is...

cfspatientadvocate.blogspot.com cfspatientadvocate.blogspot.com

CFS Patient Advocate: March 2014

http://cfspatientadvocate.blogspot.com/2014_03_01_archive.html

The job of Patient Advocate came upon me uninvited. I did not apply for this job, nor did I have any qualifications for it. I am a sculptor, not a doctor or a researcher. My daughter. Survey Results on Adaptogens. When Retreat Means Advance: A Recovered Chronic Fatigue Syndrome/Fibromyalgia Patient Looks Back. OMG: Prof Chalder admits that they made up the death threats themself to ridicule patients. LOOKING AT LYME DISEASE - MSIDS. TICK AWARENESS IN SURREY - LYME DISEASE. Quixotic: My M.E. Blog. In this...

cfspatientadvocate.blogspot.com cfspatientadvocate.blogspot.com

CFS Patient Advocate: Dr. Joseph Brewer at ILADS 2013

http://cfspatientadvocate.blogspot.com/2013/10/normal-0-false-false-false-en-us-ja-x.html

The job of Patient Advocate came upon me uninvited. I did not apply for this job, nor did I have any qualifications for it. I am a sculptor, not a doctor or a researcher. My daughter. Survey Results on Adaptogens. When Retreat Means Advance: A Recovered Chronic Fatigue Syndrome/Fibromyalgia Patient Looks Back. OMG: Prof Chalder admits that they made up the death threats themself to ridicule patients. LOOKING AT LYME DISEASE - MSIDS. TICK AWARENESS IN SURREY - LYME DISEASE. Quixotic: My M.E. Blog. Dr Brew...

quixoticmeblog.blogspot.com quixoticmeblog.blogspot.com

Quixotic: My M.E. Blog: What I learned from a vacation

http://quixoticmeblog.blogspot.com/2015/05/what-i-learned-from-vacation.html

Tracking my efforts to beat Myalgic Encephalomyelitis (ME), aka CFIDS, aka CFS. Tracking my efforts to beat Myalgic Encephalomyelitis (ME), aka CFIDS, aka CFS. Thursday, May 28, 2015. What I learned from a vacation. In that wake of a recent vacation I took to Croatia, I have to rethink much of what I thought I knew about my illness. Since the beginning of April, I have been in a crash that was severe enough that I wondered if it should actually be called a relapse. I still don't know if it was the massag...

bealightcfsawareness.blogspot.com bealightcfsawareness.blogspot.com

Be a light, CFS awareness: this is not a poem.

http://bealightcfsawareness.blogspot.com/2011/09/this-is-not-poem.html

Be a light, CFS awareness. Thoughts, reflections, and facts about Chronic Fatigue Syndrome. Living with CFS: the box story. The Politics of CFS. Words from my tribe. Tuesday, September 27, 2011. This is not a poem. It's been a run on sentence kind of day. A couple of days ago i took a heavy clunk to the head. Which is up there on the list of. Really bad things that should not happen to someone with a neurological disease. I am too sad to write. Maybe it's that life is so damn hard all the time. I wish we...

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Thoughts about life from beyond the grave. YOU COULD BE MISSED. Wednesday, March 3, 2010. YOU COULD BE MISSED. YOU COULD BE MISSED. You could be missed. Afterwards, she will speak. More than these centuries. Of wedlock and its silence,. But you won't hear. The words will come slow. At first,through her eyes bleeding,. Resonantly, like dull hammers. Where your eardrum should be;. You won't hear, I promise. But she will speak, repeatedly,. Will try to explain, forgive. The time could come when. And it's co...

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Thoughts About M.E. | Myalgic Encephalomyelitis (M.E.): Amped up. Ready to go (TM) Gladiators in PJs (TM)

Thoughts About M.E. Myalgic Encephalomyelitis (M.E.): Amped up. Ready to go (TM) Gladiators in PJs (TM). CFSAC Comments August 2015: Ampligen Price Representation Not Honored. August 14, 2015. I looked into the Ampligen issue–the exorbitant 267% price increase by Hemispherx. I also sent a follow-up message to FDA’s Dr. Woodcock with additional information regarding the distressing new price for Ampligen. I submitted that message together with my message to Dr. Woodcock from two days ago. You can read my ...

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