erinbuenger.blogspot.com
Let's Do It!: Lost
http://erinbuenger.blogspot.com/2014/06/lost.html
Welcome to Erin's Home, where her family and friends follow her example of living with gusto every day. What verb do you choose? Friday, June 20, 2014. June 20, 2014. When your child dies from cancer, you focus moment to moment. You might have been told it was coming, but you didn't believe it. Moment to moment turns into day to day. Can I face Mother's Day? What about Halloween with no costumes? How do you work up to putting the Christmas ornaments on the tree? Folks, we have to do better. We can't ...
erinbuenger.blogspot.com
Let's Do It!: As Promised. . . The Family Gallery
http://erinbuenger.blogspot.com/2015/01/as-promised-family-gallery.html
Welcome to Erin's Home, where her family and friends follow her example of living with gusto every day. What verb do you choose? Monday, January 5, 2015. As Promised. . . The Family Gallery. January 5, 2015. Here I go, spoiling you again by posting so soon. But I did promise to give you an update when all the Lego family portraits were finished. Here is our foursome (at a distance, so you can tell who we are):. And here we are, a little closer and with a beagle bonus. January 6, 2015 at 8:13 AM. I'm Erin...
maxmikulak.com
Max Mikulak - neuroblastoma angel: The night Max went to Heaven
http://www.maxmikulak.com/2010/08/night-max-went-to-heaven.html
The night Max went to Heaven. We never did tell the story of the night Max died. A few people have heard it. We thought some of the people who came to love Max in person and through this blog might find it helpful to read about it, just as we have found helpful to write about it. And so we share on the 2nd anniversary of his passing. We had scheduled Nicky’s 3rd birthday party this day. We laid Max on the bed, he was practically unresponsive. Andy and I were on opposite sides of the bed trying to hel...
maxmikulak.com
Max Mikulak - neuroblastoma angel: 08/01/2012 - 09/01/2012
http://www.maxmikulak.com/2012_08_01_archive.html
The asterisk* in the room. In the super-squeaky high voice that he had. His statement tore me up quick - I knew there might not be many more opportunities, if any, to hear him say something like that. While at the same time, I was in my own reality-distortion-field trying to avoid acknowledging the inevitable, I didn't think at the time he'd be gone in less than a month. Touch A Truck and MaxRun. Robosaurus will be doing 2-3 LIVE shows. Max would love this (is loving this). 2 stages featuring live music.
maxmikulak.com
Max Mikulak - neuroblastoma angel: 06/01/2014 - 07/01/2014
http://www.maxmikulak.com/2014_06_01_archive.html
Max playing a game while getting platelets in 2008. Love that spirit! 6/30/14 - this would have been Max's 13th birthday and to celebrate we're going on a family hike and will eat crab - Max's fav - for dinner. Max's urn accompanied us on his 13th birthday hike. Still playing with Legos? As the only one of our three kids to have ever picked up a baseball bat and glove for an organized league, would he have played more small-ball? Live Life to the Max. By Andy (Dad to Max). Subscribe to: Posts (Atom).
maxmikulak.com
Max Mikulak - neuroblastoma angel: 05/01/2011 - 06/01/2011
http://www.maxmikulak.com/2011_05_01_archive.html
Max's story featured on New York Times website. We know we owe a long-overdue update. This isn't that update :). I had a loooooong update almost ready to be set free on the Internet, when the blog company that Max's Cancer. Is hosted by - Blogger (owned by Google) - had some difficulties. I (along with tens of millions of others). Things are good for our family - we're very busy with Touch A Truck. By Andy (Dad to Max). Subscribe to: Posts (Atom). Max's Ring of Fire (foundation). How can I keep from sing...
maxmikulak.com
Max Mikulak - neuroblastoma angel: 01/01/2012 - 02/01/2012
http://www.maxmikulak.com/2012_01_01_archive.html
Brian is one of my best friends since childhood, and lives in Reno, NV. We usually see Brian and his family during our annual Lake Tahoe trip over Christmas. But schedules didn't work out this year and we missed seeing them while up in the (snow-less) North. Brian's daughters - Jillian and Sabrina - know of Max but never met him. They requested to hear a story about Max, and I thought rather than email, I'd post the story here. The first photo attempt caught Hannah and the photographer by surprise. Mashe...
maxmikulak.com
Max Mikulak - neuroblastoma angel: 07/01/2012 - 08/01/2012
http://www.maxmikulak.com/2012_07_01_archive.html
June 30 2012 would have been Max's eleventh birthday. Andy suggested throwing a party - a kids birthday party with Max's friends - and without hesitation I signed right up. Max's birthday has been a hard day for me to handle over the years, and the wonderful distraction of a celebration turned out to be perfect. Max's buddies dropping off fifty party favor bags (that they assembled) to the oncology unit. Food was never a great surprise for Max, but who can say no to In N Out? I lost my dad, age 85, and m...
maxmikulak.com
Max Mikulak - neuroblastoma angel: Thirteen
http://www.maxmikulak.com/2014/06/thirteen.html
Max playing a game while getting platelets in 2008. Love that spirit! 6/30/14 - this would have been Max's 13th birthday and to celebrate we're going on a family hike and will eat crab - Max's fav - for dinner. Max's urn accompanied us on his 13th birthday hike. Still playing with Legos? As the only one of our three kids to have ever picked up a baseball bat and glove for an organized league, would he have played more small-ball? Live Life to the Max. By Andy (Dad to Max). Max's Ring of Fire (foundation).
maxmikulak.com
Max Mikulak - neuroblastoma angel: 03/01/2011 - 04/01/2011
http://www.maxmikulak.com/2011_03_01_archive.html
Send some good thoughts the Axson's way. From Nathan Axson's CaringBridge site this week. Nathan is NED. He has, however, been in the hospital for almost two weeks having some terrible difficulties with gall bladder blockage. While the docs don't think he has relapsed with NB, it is in the back - maybe front - of his mom's mind. Uncertainty is so scary. But I guess not as scary as a confirmed relapse. I believe that it is something else. But I can't lie, I have to prepare for the worst. That Sydney and S...
