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Toby's Trust | Fighting the impact of Dravet Syndrome

What is the money for? Dravet Links and Info. Toby has Dravet Syndrome. A severe, life limiting form of epilepsy that also impacts his development, muscle tone, appetite and ability to talk, what is doesn’t impact is his gorgeous smile and enjoyment of the simple things in life. To read about the first few months of Toby’s life and how our difficult journey with Dravet began please click to read Toby’s Story. How it all began. Toby’s November 2016 update. It’s been an emotional month as there’s been lots...

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Toby's Trust | Fighting the impact of Dravet Syndrome | tobystrust.org Reviews
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What is the money for? Dravet Links and Info. Toby has Dravet Syndrome. A severe, life limiting form of epilepsy that also impacts his development, muscle tone, appetite and ability to talk, what is doesn’t impact is his gorgeous smile and enjoyment of the simple things in life. To read about the first few months of Toby’s life and how our difficult journey with Dravet began please click to read Toby’s Story. How it all began. Toby’s November 2016 update. It’s been an emotional month as there’s been lots...
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4 monthly updates
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8 what is dravet
9 docs
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Toby's Trust | Fighting the impact of Dravet Syndrome | tobystrust.org Reviews

https://tobystrust.org

What is the money for? Dravet Links and Info. Toby has Dravet Syndrome. A severe, life limiting form of epilepsy that also impacts his development, muscle tone, appetite and ability to talk, what is doesn’t impact is his gorgeous smile and enjoyment of the simple things in life. To read about the first few months of Toby’s life and how our difficult journey with Dravet began please click to read Toby’s Story. How it all began. Toby’s November 2016 update. It’s been an emotional month as there’s been lots...

INTERNAL PAGES

tobystrust.org tobystrust.org
1

Calendar | Toby's Trust

http://www.tobystrust.org/calendar/action~week/request_format~json

What is the money for? Dravet Links and Info. Week of March 12. Now: Mar 12 12:29 am. Week of March 12. Add to Timely Calendar. Add to Apple Calendar. Add to other calendar. We welcome any donations to help support Toby in his fight against Dravet Syndrome. As Toby's Trust isn't a registered charity we can't use the likes of Just Giving or Virgin money however you can donate in the following ways:. Toby's Trust has a dedicated bank account only accessible by Trustees, the details are:. 45 West Side Rise.

2

Toby’s November 2016 update | Toby's Trust

http://www.tobystrust.org/2016/12/01/tobys-november-2016-update

What is the money for? Dravet Links and Info. Toby’s November 2016 update. Dec 1, 2016. It’s been an emotional month as there’s been lots of reminders that Toby is different, from spending his birthday in hospital, not going to friends’ birthday parties and an appointment to discuss his first wheelchair. Add in a higher than average number of seizures causing Toby to fall, knock himself and bash his face it’s been a tough month for all of us. Being November the big news is that Toby is 3! So as always, t...

3

Toby’s Story | Toby's Trust

http://www.tobystrust.org/2016/10/20/tobys-story

What is the money for? Dravet Links and Info. Oct 20, 2016. Our beautiful baby boy was born on the 22nd November 2013. It was a fairly rocky but ‘normal’ start with an emergency caesarean followed by a scare in week 2 when he lost too much weight and ended up in hospital under a UV lamp to treat jaundice. The next 8 weeks were filled with the normal baby stuff of sleepless nights, dirty nappies, a screaming baby and the feeling of being completely clueless new parents. It did happen again and this time i...

4

Why a Trust? | Toby's Trust

http://www.tobystrust.org/why-a-trust

What is the money for? Dravet Links and Info. Toby fights the devastating effects of Dravet Syndrome every day, as does everyone close to him. Not only does he have hundreds of partial seizures throughout the day but he suffers from life threatening tonic clinic seizures a few times a week when he often stops breathing and always requires oxygen. The impact of Dravet is not just the seizures, it always means he has significant developmental delays that increase with age. With the support of our wonderful...

5

reviews | Toby's Trust

http://www.tobystrust.org/category/reviews

What is the money for? Dravet Links and Info. Thoughts so far on the Embrace watch by Empatica. Oct 12, 2016. A good friend of ours found the Embrace watch on the crowdfunding website Indiegogo not long after Toby started to have seizures, it seemed like the miracle device we were searching for to help keep Toby safe and to alert us or carers when he had a seizure. We. We welcome any donations to help support Toby in his fight against Dravet Syndrome. 45 West Side Rise. Designed by Elegant Themes.

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Newport Pagnell & Olney Lions Club - Motorama

http://npolneylions.btck.co.uk/Fundraising/Motorama

Newport Pagnell and Olney Lions Club. Dickens of a Christmas. Can we help YOU? How YOU can Help. Other Sites of Interest. One of the more popular events we organise involves us converting Olney Market Place and the surrounding streets into a youngster's dream and the more mature persons nostalgia trip and so it was on 12th June when this years event took place. The Classes will be. Pre War to 1955. Post War 1956 - 1968. Public's Car of the Day. The free event which raises lots of cash. But unfortunately ...

npolneylions.btik.com npolneylions.btik.com

Newport Pagnell & Olney Lions Club - Motorama

http://npolneylions.btik.com/Fundraising/Motorama

Newport Pagnell and Olney Lions Club. Dickens of a Christmas. Can we help YOU? How YOU can Help. Other Sites of Interest. One of the more popular events we organise involves us converting Olney Market Place and the surrounding streets into a youngster's dream and the more mature persons nostalgia trip and so it was on 12th June when this years event took place. The Classes will be. Pre War to 1955. Post War 1956 - 1968. Public's Car of the Day. The free event which raises lots of cash. But unfortunately ...

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Toby's Travels

Thursday, July 13, 2006. They are just children not mature like Patrick, Christopher, and me. And Toby is a troublesome three year old, who can find mischief around every corner. After we got to camp, while eating one of many undigestable meals, the brothers and I decided we had better get Toby to camp where we could take care of him as soon as possible. But how would we do it? Patrick thought he could E-mail Emily and have her explain to her mom the situation, Mrs. Alexander is Toby's God-mother, so...

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Toby's Trust | Fighting the impact of Dravet Syndrome

What is the money for? Dravet Links and Info. Toby has Dravet Syndrome. A severe, life limiting form of epilepsy that also impacts his development, muscle tone, appetite and ability to talk, what is doesn’t impact is his gorgeous smile and enjoyment of the simple things in life. To read about the first few months of Toby’s life and how our difficult journey with Dravet began please click to read Toby’s Story. How it all began. Toby’s November 2016 update. It’s been an emotional month as there’s been lots...

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Utobia

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Toby Sturgill | Moving Forward

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Welcome - 6th November 2012 - Toby Sturgis, Brinkworth :: Welcome

To get the most out of this website, please enable cookies. A cookie is a small text file, on your computer, that we can use to store any configurations specific to you. Please note: if you choose not to enable cookies we will have to show you this message on every page. Toby Sturgis, Brinkworth : Welcome. Welcome to my website! The contents of this website are promoted and published by Toby Sturgis, Brook Farm, Great Somerford, Chippenham, Wiltshire, SN15 5JA.