trachties.blogspot.com

Trach Ties

Monday, February 25, 2013. We have been racking up on sleepless nights. The diagnosis is a simple runny nose. The symptoms are continuous coughing, gagging on post nasal drip, and the vomiting. We are burning through sheets, pjs, and carpet cleaner, but this is nothing new. This is every runny nose and something that is par for course around here. When I got to her crib she was visibly unset. I started to brush back her crazy locks with my hand and asked her what was the matter. I cannot be the sword of ...

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Trach Ties | trachties.blogspot.com Reviews

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Monday, February 25, 2013. We have been racking up on sleepless nights. The diagnosis is a simple runny nose. The symptoms are continuous coughing, gagging on post nasal drip, and the vomiting. We are burning through sheets, pjs, and carpet cleaner, but this is nothing new. This is every runny nose and something that is par for course around here. When I got to her crib she was visibly unset. I started to brush back her crazy locks with my hand and asked her what was the matter. I cannot be the sword of ...

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Trach Ties | trachties.blogspot.com Reviews

https://trachties.blogspot.com

Monday, February 25, 2013. We have been racking up on sleepless nights. The diagnosis is a simple runny nose. The symptoms are continuous coughing, gagging on post nasal drip, and the vomiting. We are burning through sheets, pjs, and carpet cleaner, but this is nothing new. This is every runny nose and something that is par for course around here. When I got to her crib she was visibly unset. I started to brush back her crazy locks with my hand and asked her what was the matter. I cannot be the sword of ...

INTERNAL PAGES

trachties.blogspot.com

1

Trach Ties: She said exactly what I felt.

http://trachties.blogspot.com/2012/05/she-said-exactly-what-i-felt.html

Thursday, May 3, 2012. She said exactly what I felt. Taken from the blog. Five years ago I learned that even though my life had changed, even though taking my third daughter home wasn't what I had planned, even though, while my world had stopped, others lives were still moving along, and that what I had been given was every bit as wonderful as what they had been given. Even though I might mourn the loss of what might have been, I still love what is. ". Subscribe to: Post Comments (Atom).

2

Trach Ties: The Devil You Know and Pre-preparing for decannulation

http://trachties.blogspot.com/2013/02/the-devil-you-know-and-pre-preparing.html

Tuesday, February 5, 2013. The Devil You Know and Pre-preparing for decannulation. One day at the library we happened to chance upon this book. I fear sudden swellings and flareups with no sure airway. I fear surgery and recoveries without easy access. I fear it is too early. I fear emergency phone calls and CPR. I fear the worst. I fear my fears. I fear the unknown. On the way home from her last appointment with a baggy full of fashion coordinating trach caps. February 5, 2013 at 1:29 PM. Traveling with...

3

Trach Ties: Organizing Medical Equipment

http://trachties.blogspot.com/2012/03/organizing-medical-equipment.html

Monday, March 19, 2012. With time and patience we have found our system. Thankfully we are in our own home now and life has settled into our current norm. Here is what works for us:. Humidifier - positioned closest to the bed so we get the most reach with the blue tubing. Air compressor - turned sideways so that Maaike can't pull out the filters as easy. Pulse-ox- faces the door so I can see her numbers with only a crack in the door. Suction-on the bottom shelf so that any residual fluids can drain down.

4

Trach Ties: Organizing My Medical Task List

http://trachties.blogspot.com/2012/03/organizing-my-medical-task-list.html

Saturday, March 24, 2012. Organizing My Medical Task List. March 24, 2012 at 2:10 PM. I dont know how long i have been following your blog now and I am embarrassed it has taken me this long to comment! BUT I have loved reading your blog and am amazed at your creativity, strength, organization, and talent! I am so glad you qualified for some extra help and nursing hours - i dont know how you would do anything without it. Just wanted to say hi and let you know that I love you! Keep up the amazing work!

5

Trach Ties: Finding Acceptance

http://trachties.blogspot.com/2012/04/exactly.html

Friday, April 27, 2012. I was recently invited to a Facebook group for people of my same faith that have special needs children and this morning someone from the group posted this picture. It is wonderful to feel connected through our different challenges. It is hard for me to reflect back on Maaike's first year of life. It was such an isolating time. But just before Maaike's first birthday we stumbled upon Liam and Kody. Where in cyber space do you find acceptance and peace? April 29, 2012 at 12:20 AM.

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daveandshannonnorton.blogspot.com

The Norton Family: 6 months, Today

http://daveandshannonnorton.blogspot.com/2014/01/6-months-today.html

Friday, January 17, 2014. 6 months, Today. Six months ago today our hearts literally broke. Someday I will get to writing about that whole experience, someday. Today, I miss Paxton. With every cell of my body. I ache to hold his body and kiss his cheeks, ear, on down to his neck; stroke his hair; and feel his hand on my face. I miss seeing him wake up so happy and look towards the window, as if it would tell him what kind of a day it would be. It was so fun for me, too! He was so perfect and peaceful and...

krommenhoek.blogspot.com

farm house chronicles: Trach ties

http://krommenhoek.blogspot.com/2011/04/trach-ties.html

Today I am launching a new blog. New is really a relative term here. The blog is Trach ties. A blog totally devoted to life with a trach, but as of yet there is no new content. If you read this blog or my sewing blog. Posted by Rian Krommenhoek. Thanks Lady. Sign me up! April 19, 2011 at 10:41 PM. Subscribe to: Post Comments (Atom). She is sunshine in my soul. A Bridge to China. Sew along with Rian.

grantandgabby.blogspot.com

Clark Ever After: March 2011

http://grantandgabby.blogspot.com/2011_03_01_archive.html

Until We Meet Again. This past weekend (March 19th, 2011) my great grandma, Mama Licha, passed away. She celebrated her 110th birthday this past January (although some may argue it was her 111th). This lady is such a great example of endurance and hard work. She had her own little stand in Guatemala were she worked until she was 102. The only thing that stopped her from continuing to work was her deteriorating vision. We love you and miss you Mama Licha.UNTIL WE MEET AGAIN! 2 I love hearing from you!

grantandgabby.blogspot.com

Clark Ever After: The Hair

http://grantandgabby.blogspot.com/2012/11/the-hair.html

My kids have never lacked hair. CeCe is no exception. Here are some pictures of her hair. She even lets me french braid it. Scarlet has been putting her hair up Puerto Rican style. I guess people there do this to get body on their hair. CeCe has now decided that she wants body on her hair so she makes us put all the clips on her hair just like aunt Scarlet. 0 I love hearing from you! Subscribe to: Post Comments (Atom). Halloween [ 2012 ]. So Many Things.So Little Time ]. Where are the Woodruffs.

grantandgabby.blogspot.com

Clark Ever After: January 2012

http://grantandgabby.blogspot.com/2012_01_01_archive.html

CeCe is now at the "crawling" stage, however she has decided to use a unique way to travel. We call it the "Caterpillar Crawl". 0 I love hearing from you! Subscribe to: Posts (Atom). Where are the Woodruffs.

daveandshannonnorton.blogspot.com

The Norton Family: 1/12/14 - 1/19/14

http://daveandshannonnorton.blogspot.com/2014_01_12_archive.html

Friday, January 17, 2014. 6 months, Today. Six months ago today our hearts literally broke. Someday I will get to writing about that whole experience, someday. Today, I miss Paxton. With every cell of my body. I ache to hold his body and kiss his cheeks, ear, on down to his neck; stroke his hair; and feel his hand on my face. I miss seeing him wake up so happy and look towards the window, as if it would tell him what kind of a day it would be. It was so fun for me, too! He was so perfect and peaceful and...

daveandshannonnorton.blogspot.com

The Norton Family: Longing

http://daveandshannonnorton.blogspot.com/2012/05/longing.html

Tuesday, May 1, 2012. Ah, that is more about me than it is about Paxton. I have had such the urge to WRITE for so long. It is just so hard to do it. How do you other SNM (Special Needs Mommies) do it? Seriously, I am so grateful and appreciate people reaching out so much. I am loving meeting new people who share similar experiences and stories and emotions. It is a great blessing to make those connections and strengthen each other. I just never get time on my computer! Don't you people sleep? Paxton coul...

daveandshannonnorton.blogspot.com

The Norton Family: 9/1/13 - 9/8/13

http://daveandshannonnorton.blogspot.com/2013_09_01_archive.html

Monday, September 2, 2013. As much as it feels like everyone in our immediate world knows this, there are some readers who I know do not. Our precious son, Paxton, passed away on July 17. You can read his obituary here. I have wanted to get on here since to share SOMETHING, .but which of the constant flood of thoughts or many emotions do I choose to share? Where do I begin? This will not be by any means all-inclusive, but perhaps satisfy the demands of my heart to share .something. Mourning is one of the...

daveandshannonnorton.blogspot.com

The Norton Family: 7/8/12 - 7/15/12

http://daveandshannonnorton.blogspot.com/2012_07_08_archive.html

Friday, July 13, 2012. I cannot believe my Angel Boy is 2! Happy Birthday our Dear Sweet Paxton. How many ways you have enriched our lives. I feel like everyday we are learning something new. Or learning the same thing, again, whether I want to or not. You have helped me to learn oh so much about myself. About priorities. About choosing. About submitting. About seeking. Oh, how we love you! Is someone dancing in their angel whites, swishing their soft fabric over your face? I'm amazed at all you have con...

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Trach Ties

Monday, February 25, 2013. We have been racking up on sleepless nights. The diagnosis is a simple runny nose. The symptoms are continuous coughing, gagging on post nasal drip, and the vomiting. We are burning through sheets, pjs, and carpet cleaner, but this is nothing new. This is every runny nose and something that is par for course around here. When I got to her crib she was visibly unset. I started to brush back her crazy locks with my hand and asked her what was the matter. I cannot be the sword of ...

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