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TREAT-NMD : Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world.Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world.
http://www.treat-nmd.eu/
Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world.
http://www.treat-nmd.eu/
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TREAT-NMD : Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world. | treat-nmd.eu Reviews
https://treat-nmd.eu
Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world.
TREAT-NMD Intranet : Gateway : Welcome
Jump to tools list. Jump to worksite list. Message of the day. Opens in a new window. TREAT-NMD Intranet - 2.0 - Sakai 2.5.3 - Server treatnmd.
treat-nmd.eu
TREAT-NMD : Frequently Asked Questions
http://www.treat-nmd.eu/resources/post-marketing-surveillance/FAQs
All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?
TREAT-NMD : TREAT-NMD Post Marketing Surveillance Webinar
http://www.treat-nmd.eu/resources/post-marketing-surveillance/webinar
All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?
TREAT-NMD : GNE Myopathy / HIBM overview
http://www.treat-nmd.eu/gne/overview
All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?
TREAT-NMD : NMR (MRI and MRS) as an outcome measure
http://www.treat-nmd.eu/NMR
All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?
TREAT-NMD : Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world.
http://www.treat-nmd.eu/home.php
All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?
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Registry of Outcome Measures
http://www.researchrom.com/reference
Registry of Outcome Measures. Standardisation of Outcome Measures. Over time we will be adding reference information to the Registry. This information will be posted here. It will be aimed at assisting individuals or groups in using Outcome Measures to their best advantage and will include, for example, guidance on how to select an appropriate outcome measure for use in trials, studies, etc. At present we have provided links to articles that deal with:. Standardisation of Outcome Measures; and.
Registry of Outcome Measures
http://www.researchrom.com/compare
Registry of Outcome Measures. This is a dedicated report engine. It generates a comparison report for two to four outcome measures (OMs). To begin, select either 2, 3 or 4 OMs from those listed. Use the Ctrl key to select/deselect multiple measures. As you select a measure the background will change to highlight it's selection. When ready, click the Continue button (located below the list). 12 Minute Shuttle Walk Test. 6 Minute Walk Test. 9 Hole Peg Test. Assessment of Motor and Process Skills. Measuring...
Duchenne Parent Project España » ¿Quiénes somos?
https://www.duchenne-spain.org/quienes-somos
8211; Main Menu –. Duchenne Parent Project España es una asociación sin ánimo de lucro creada y dirigida por padres de niños con Distrofia Muscular de Duchenne (DMD) y de Becker (DMB). Esta centrada únicamente en esta enfermedad porque para nosotros los afectados Duchenne/Becker y sus familias son siempre lo primero. En esta página Web se puede encontrar información sobre la enfermedad, el estado de las investigaciones más recientes e información sobre el cuidado de nuestros hijos. Esta centrada únicamen...
The Partners
http://www.skip-nmd.eu/partners
SKIP-NMD clinical trial now progressing to part 2. Sarepta Therapeutics Announces First Patient Dosed in European Phase I/II Study of SRP-4053 in Duchenne Muscular Dystrophy Patients. Information regarding the SKIP-NMD clinical trial of Sarepta’s drug candidate SRP-4053 is now available on www.clinicaltrials.gov. SKIP-NMD Webinar now available. SKIP-NMD Webinar for DMD families on 8th September. Co-ordinated by Straub and Bushby), as well as the smaller FP7 collaborative grants, BIO-NMD. Is Belgium-based...
About | Cognitive Resonance
http://www.sunil.org.uk/about
Musings on technology, politics and current affairs. I’m a social science researcher based in Newcastle upon Tyne, with experience in international relations, history, politics, and rare diseases. I am currently a postgraduate student in Digital Civics. With the Digital Interaction. Group, part of the School of Computing Science. Previously, I worked in translational neuromuscular research for the TREAT-NMD Alliance. I hold a joint honours undergraduate degree in International Relations.
Academic | Cognitive Resonance
http://www.sunil.org.uk/category/academic
Musings on technology, politics and current affairs. My first paper: one year on. Today marks one year since the publication of my first academic paper. In the Orphanet Journal of Rare Diseases (OJRD). And with several other papers currently at various stages of completion, I thought I’d take a quick look to see how my first has fared over the last 12 months. The paper was written while I worked for the TREAT-NMD Alliance. An international translational medicine. Field In rare diseases. Via PubMed Centra...
Observatoire National Français des patients atteints de DMFSH
http://www.fshd.fr//genetique/FR
Société Française de Myologie. Blog du groupe FSH de l'AFM. Registre italien de la FSH. Site de la FSH Society. Site de l'université de Rochester. La dystrophie musculaire Facio-Scapulo-Humérale ( DMFSH. Est la troisième en terme de fréquence des myopathies héréditaires, la première chez les adultes. Selon le rapport préliminaire établi par EURORDIS. La DMFSH est caractérisée par une faiblesse des muscles de la face et de la ceinture scapulaire qui peut s’étendre progressivement aux muscles huméraux, abd...
Observatoire National Français des patients atteints de DMFSH
http://www.fshd.fr//pin/FR
Société Française de Myologie. Blog du groupe FSH de l'AFM. Registre italien de la FSH. Site de la FSH Society. Site de l'université de Rochester. En tant que patient. En tant que médecin. Afin de participer à l'Observatoire, plusieurs options s'ouvrent à vous. L'idéal serait de remplir les deux questionnaires. De manière à avoir un dossier complet. L'auto-questionnaire et la fiche d'évaluation clinique peuvent être remplis à des moments différents. Être en possession d'un résultat de test génétique.
TOTAL LINKS TO THIS WEBSITE
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Treat Nail Fungus
Your Trusted Source For Reviews on the Best Toe Nail Fungus Cures and Remedies. Top Nail Fungus Treatments. It has come to our attention there are companies out there selling cheap low quality products to treat nail fungus. After trying almost all nail fungus treatments in the market we have come to the conclusion that not all of them are the same. All of these products are tried and tested and produced great results for us. CLICK FOR FULL DESCRIPTION, REVIEWS AND PRICING. A natural antiseptic, bacterici...
医師の男女比を随時更新するサイト
特に小児科 女性医師比率32 、産婦人科 女性医師比率26 などの診療科では女性の特性を活かし、より患者さんに寄り添った診療や治療方針を示すことができるため、患者さん側にとっても心強いものがあります。 就業傾向としては男性医師が加齢とともに60歳以降から就業率が落ちるの対し、女性医師の場合には、医学部卒業後、年齢を重ねるとともに減少し卒業後約10年 35 36歳 で就業率が95 程度から75 台に落ち込みます。
TREAT-NMD Conference 2015 – TREAT-NMD Conference 2015
4 – 8 December 2015. 2121 Massachusetts Ave NW. Washington - DC 20008 - United States. Growing the drug pipeline for neuromuscular diseases: optimising resources for. Clinical development of new therapies. We look forward to hosting you at the TREAT-NMD International Conference in Washington DC! In the DuPont Circle region of DC - a region known for its many embassies, restaurants, and landmarks. Speakers at the conference include. John Brownstein – United States. Arthur Burghes – United Kingdom. Lori Re...
Esély a gyógyulásra
A TREAT-NMD (Translational Research in Europe for the Assessment and Treatment of Neuromuscular Diseases) nemzetközi konzorcium célja a legújabb kutatási eredmények alapján hatékony ápolási eljárások kidolgozása a neuromuszkuláris betegségekben szenvedő betegek részére. Belépés a TREAT-NMD adatbázisba: kérdőívek itt a jobboldali menüben! Dr Garami Márta, TREAT-NMD adatbázis kezelő munkatárs. (Országos Környezetegészségügyi Intézet, Molekuláris Genetikai és Diagnosztikai Osztály). Kérdéseikkel meg...A TRE...
TREAT-NMD: Ein europäisches Exzellenznetzwerk für neuromuskuläre Erkrankungen
TREAT-NMD ( Translational Research in Europe for the Assessment and Treatment of Neuromuscular Disease ) wird von der Europäischen Union gefördert und verbindet 21 Partnerorganisationen aus 11 europäischen Ländern. Innerhalb dieses Exzellenznetzwerks arbeiten Europas führende Spezialisten auf dem Gebiet der neuromuskulären Erkrankungen zusammen. Mitglieder in diesem Netzwerk sind auch Patientenorganisationen und Partner aus der pharmazeutischen Industrie, die in diesem Bereich aktiv sind. Es wird ein Onl...
TREAT-NMD : Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world.
All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?
Online Collage Maker with Photo Editor Effects
Online Photo Collage Maker. Online Photo Collage Maker. Online Photo Collage Maker. Online Photo Editor and Collage Maker. written by: Addrane You want to get a little creative with your photographs and you want to present them in aesthetically attractive patterns, then a collage maker or a photo editor is a software you should put into consideration. What is a Photo Collage Maker? Online, there are many free collage makers. What is a Photo Editor? Online Photo Collage Maker.
Home - UK SMA Patient Registry
UK SMA Patient Registry. UK SMA Patient Registry. This registry is for patients in the United Kingdom and Ireland with Spinal Muscular Atrophy. Learn more about the patient registry, the advantages of registering for you as a patient and the registration process. Contact us if you would like to receive the paper registration form to fill in. Currently, there are 511 patients in this registry. Co-sponsored by the patient organisation Spinal Muscular Atrophy Support UK. Formerly The Jennifer Trust).
Feel Younger in every way | Follows the journey of Marilyn
Feel Younger in every way. Follows the journey of Marilyn. Retirement is really really busy. The Secret to Living is Giving. How to feel younger. April 13, 2015. The hardest part is asking my husband if he wants to be my father or my lover, he is confused by the question as he is used to my strange philosophies and changes. No worries, he will get used to it and he may even enjoy it as I take on a childlike approach to many things. Try it and let me know how you get on. The freedom is revolutionary.
Treat of Freedom | Nicht nur träumen, sondern erleben.
Blog – Alle Beiträge auf einem Blick. Backpacking – Mit dem Rucksack auf Reisen. Bushcraft – Leben in der Natur. Deine Fotos bei Treat of Freedom. Günstig verreisen – Das E-Book. Jetzt Fan werden auf Facebook.
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