treatingnf.blogspot.com

Treating NF

Thursday, April 9, 2015. MRI - 6 months off. Logan recently went in for another MRI. This MRI marked the 6 month mark from being off chemo. To me, this would be the true test of whether or not he would be able to stay off chemo. We were waiting for this MRI to decide if we would have his port removed so it was kind of a big deal. I would hear about once an hour, "is it time to go to the doctor yet? Monday, February 2, 2015. Lesson learned - ALWAYS bring extra pills with us wherever we go! This has been q...

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Thursday, April 9, 2015. MRI - 6 months off. Logan recently went in for another MRI. This MRI marked the 6 month mark from being off chemo. To me, this would be the true test of whether or not he would be able to stay off chemo. We were waiting for this MRI to decide if we would have his port removed so it was kind of a big deal. I would hear about once an hour, is it time to go to the doctor yet? Monday, February 2, 2015. Lesson learned - ALWAYS bring extra pills with us wherever we go! This has been q...

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Treating NF | treatingnf.blogspot.com Reviews

https://treatingnf.blogspot.com

Thursday, April 9, 2015. MRI - 6 months off. Logan recently went in for another MRI. This MRI marked the 6 month mark from being off chemo. To me, this would be the true test of whether or not he would be able to stay off chemo. We were waiting for this MRI to decide if we would have his port removed so it was kind of a big deal. I would hear about once an hour, "is it time to go to the doctor yet? Monday, February 2, 2015. Lesson learned - ALWAYS bring extra pills with us wherever we go! This has been q...

INTERNAL PAGES

treatingnf.blogspot.com

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Treating NF: January 2015

http://www.treatingnf.blogspot.com/2015_01_01_archive.html

Monday, January 19, 2015. Our biggest battle over the last few months has been the behaviors! Subscribe to: Posts (Atom). View my complete profile. Applying For And Maintaining Social Security Disability. A Child's View into NF. My Love, My Sunshine, My little boy with NF1. Tumor-ey side of me. Tumor-ey Side of me has a new web address! Awesome Inc. template. Powered by Blogger.

2

Treating NF: What a week

http://www.treatingnf.blogspot.com/2014/10/what-week.html

Friday, October 3, 2014. This has been quite a week. Started with some fun family fundraising and ended with some very high highs and some very low lows. So lets start at the beginning. One highlight of our day was meeting a family that has been through such a similar story to ours, only a few years ahead. They have come through exactly what we are going through and are exactly where we want to be, stable and off chemo! We will go in for monthly checks and port flushes and have another MRI in 3 months&#4...

3

Treating NF: April 2015

http://www.treatingnf.blogspot.com/2015_04_01_archive.html

Thursday, April 9, 2015. MRI - 6 months off. Logan recently went in for another MRI. This MRI marked the 6 month mark from being off chemo. To me, this would be the true test of whether or not he would be able to stay off chemo. We were waiting for this MRI to decide if we would have his port removed so it was kind of a big deal. I would hear about once an hour, "is it time to go to the doctor yet? Subscribe to: Posts (Atom). View my complete profile. A Child's View into NF. Tumor-ey side of me.

4

Treating NF: 3 months

http://www.treatingnf.blogspot.com/2015/01/3-months.html

Monday, January 19, 2015. Our biggest battle over the last few months has been the behaviors! Subscribe to: Post Comments (Atom). View my complete profile. Applying For And Maintaining Social Security Disability. A Child's View into NF. My Love, My Sunshine, My little boy with NF1. Tumor-ey side of me. Tumor-ey Side of me has a new web address! Awesome Inc. template. Powered by Blogger.

5

Treating NF: MRI - 6 months off

http://www.treatingnf.blogspot.com/2015/04/mri-6-months-off.html

Thursday, April 9, 2015. MRI - 6 months off. Logan recently went in for another MRI. This MRI marked the 6 month mark from being off chemo. To me, this would be the true test of whether or not he would be able to stay off chemo. We were waiting for this MRI to decide if we would have his port removed so it was kind of a big deal. I would hear about once an hour, "is it time to go to the doctor yet? Subscribe to: Post Comments (Atom). View my complete profile. MEK Pre-Cycle 7 Visit. A Child's View into NF.

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thrivingwithneurofibromatosis.blogspot.com

Thriving with Neurofibromatosis: Who Is Kristi Hopkins?

http://thrivingwithneurofibromatosis.blogspot.com/p/who-is-kristi-hopkins.html

How NF Affects MY kids. Who Is Kristi Hopkins? Who Is Kristi Hopkins? I'm Kristi.A 39 year old, mother to six kiddos. I have Neurofibromatosis type 1. I grew up in a family where Neurofibromatosis was curse word. The utter mention of it grew guilt and fear in my parents. Understandably so. Using the fear and turning it into doing something productive and positive! Three of my children got the 'official' NF diagnosis, after I did. Do you regret having children? I do wish I had more knowledge BEFORE I chos...

thrivingwithneurofibromatosis.blogspot.com

Thriving with Neurofibromatosis: I am a Work in Progress

http://thrivingwithneurofibromatosis.blogspot.com/2015/07/i-am-work-in-progress.html

How NF Affects MY kids. Who Is Kristi Hopkins? Wednesday, July 8, 2015. I am a Work in Progress. After Rachel was taken off disability, I sorta panicked. This meant no health insurance.And I was left scrambling.Trying to figure out what to do. She needed an MRI.She has been complaining of headaches and dizziness for a while.And a tiny part of me was feeling that I was glad she didn't have insurance.Because I was dreading discovering that her little 'something'.could be a BIG something. How old is Rachel?

thrivingwithneurofibromatosis.blogspot.com

Thriving with Neurofibromatosis: How NF Affects MY kids

http://thrivingwithneurofibromatosis.blogspot.com/p/how-nf-affects-my-kids.html

How NF Affects MY kids. Who Is Kristi Hopkins? How NF Affects MY kids. I accept NF, I know it's part of who I am. Sometimes I'm nervous, but I always try to keep a positive attitude about it.". GO TO Bailey's- BLOG. Bailey was a healthy baby, developing normally. It was when she started Kindergarten that we began to notice learning delays. The birth marks on her body were "no big deal", since Bailey was hitting developmental milestones. We started Chemotherapy on March 28th 2011. As of March 2013.MRI...

thrivingwithneurofibromatosis.blogspot.com

Thriving with Neurofibromatosis: Why Chemotherapy?

http://thrivingwithneurofibromatosis.blogspot.com/p/chemotherapy.html

How NF Affects MY kids. Who Is Kristi Hopkins? Sometimes people with Neurofibromatosis go through chemotherapy. When a tumor becomes large enough to affect surrounding areas, chemo is used to shrink the tumor. I know when I told my family and friends that my daughter was beginning 52 weeks of chemo, I got an overwhelming reaction. "Ohh My we are so sorry". I am in no way downsizing the seriousness of cancer, just trying to help people better understand the NF world. Her drs. were hoping that the typi...

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treatingnf.blogspot.com

Treating NF

Thursday, April 9, 2015. MRI - 6 months off. Logan recently went in for another MRI. This MRI marked the 6 month mark from being off chemo. To me, this would be the true test of whether or not he would be able to stay off chemo. We were waiting for this MRI to decide if we would have his port removed so it was kind of a big deal. I would hear about once an hour, "is it time to go to the doctor yet? Monday, February 2, 2015. Lesson learned - ALWAYS bring extra pills with us wherever we go! This has been q...

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