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Fighting against leukodystrophy

Well done Uncle John and team. We’re sending a virtual big hug full of pride and thanks to my brother and Joey’s godfather and uncle, John, who completed his first marathon (Cork City Marathon, Ireland) today, Monday 1st June 2015, in a time of 3 hours 44 minutes, despite the gale force Irish winds, torrential rain and a pulled calf muscle! Our deepest and heartfelt thanks to you all. Mixed emotions in Paris. For some of the families that we have become friends with over the years, there’s always a...

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Fighting against leukodystrophy | tri4joe.com Reviews
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Well done Uncle John and team. We’re sending a virtual big hug full of pride and thanks to my brother and Joey’s godfather and uncle, John, who completed his first marathon (Cork City Marathon, Ireland) today, Monday 1st June 2015, in a time of 3 hours 44 minutes, despite the gale force Irish winds, torrential rain and a pulled calf muscle! Our deepest and heartfelt thanks to you all. Mixed emotions in Paris. For some of the families that we have become friends with over the years, there’s always a...
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4 other events
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Fighting against leukodystrophy | tri4joe.com Reviews

https://tri4joe.com

Well done Uncle John and team. We’re sending a virtual big hug full of pride and thanks to my brother and Joey’s godfather and uncle, John, who completed his first marathon (Cork City Marathon, Ireland) today, Monday 1st June 2015, in a time of 3 hours 44 minutes, despite the gale force Irish winds, torrential rain and a pulled calf muscle! Our deepest and heartfelt thanks to you all. Mixed emotions in Paris. For some of the families that we have become friends with over the years, there’s always a...

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1

Mixed emotions in Paris – Fighting against leukodystrophy

http://www.tri4joe.com/2015/04/01/mixed-emotions-in-paris

Mixed emotions in Paris. As always, the annual ELA family get-together in Paris on 27, 28 and 29 March 2015, combined with the AGM and medical researchers meeting on the different leukodystrophies sent our emotions in all directions. Then there’s the jarring contrast of emotions when Matt and I sat in the medical researchers meeting where we both felt a re-ignition of hope, a feeling that we thought had long been extinquished. Clinic in Paris, the first paediatric hospital in the world. Just as we were a...

2

Remembering Grandad Jimmy – Fighting against leukodystrophy

http://www.tri4joe.com/2013/04/18/remembering-grandad-jimmy

Grandad Jimmy passed away on 31 December 2012 and today (18 April) is his birthday. Joey and Grandad had a very special bond; Joey would sit in Grandad’s arms and he would be very happy, cosy and extremely pleased to have Grandad all to himself, sometimes making his other cousins quite jealous! We miss you very much Grandad, Dad, Jimmy. You live on in our hearts. This entry was posted on April 18, 2013 at 2:16 pm. You can follow any responses to this entry through the RSS 2.0. From your own site.

3

Long time no update – Fighting against leukodystrophy

http://www.tri4joe.com/2015/03/21/long-time-no-update

Long time no update. Wow, it’s been so long since we updated Joey’s blog, I don’t know where to begin. There never seems to be enough time or energy left at the end of each day to put fingers to the keyboard! I’ve been promising John for a few weeks now that I’d get my act together and set up a fundraising page for him and also put some up to date info and images on Joey’s blog. So, the next few posts is catch up time…. I’ll start with a link to John’s fundraising page. Feed You can leave a response.

4

Well done Uncle John and team – Fighting against leukodystrophy

http://www.tri4joe.com/2015/06/01/thank-you-uncle-john-and-team

Well done Uncle John and team. We’re sending a virtual big hug full of pride and thanks to my brother and Joey’s godfather and uncle, John, who completed his first marathon (Cork City Marathon, Ireland) today, Monday 1st June 2015, in a time of 3 hours 44 minutes, despite the gale force Irish winds, torrential rain and a pulled calf muscle! Our deepest and heartfelt thanks to you all. This entry was posted on June 1, 2015 at 3:18 pm. You can follow any responses to this entry through the RSS 2.0.

5

Mets tes baskets et bats la maladie – Fighting against leukodystrophy

http://www.tri4joe.com/2012/10/27/mets-tes-baskets-et-bats-la-maladie

Mets tes baskets et bats la maladie. This entry was posted on October 27, 2012 at 12:07 am. You can follow any responses to this entry through the RSS 2.0. Feed You can leave a response. From your own site. Click here to cancel reply. Email (will not be published) (required). ELA – Cork city marathon. ELA – Donate. ELA – Raise money. ELA – The charity. Well done Uncle John and team. Mixed emotions in Paris. From the past week…. Long time no update. Ultra Trail for Joe and his ELA friends.

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westcorkforoige.com westcorkforoige.com

West Cork Foróige District - Latest News

http://www.westcorkforoige.com/latest-news.html

West Cork Foróige District. District Council - Meeting Minutes. Aldi National Junior Baking Competition. Contribute to the Districts News! Click below to email us some news, pictures and events your club may have. Alternatively visit our Facebook page or contact page. October DC Meeting - Skibbereen. Meeting will take place in Riverside Studio. Near library) on Tuesday 13th Oct from 8pm. Please find attached the agenda for this months meeting. See you all there. West Cork DC Oct 2015. With the new For&oa...

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Personal Links | ALD Life

http://www.aldlife.org/patient-information/useful-links

Link between ALD and Addison’s Disease. Help, Info & Care Links. Donating your Unwanted Clothes. Playing a Prize Draw. Recycling your old Ink Cartridges. Run for Your ALD Life! Parachute Jump and Skydive. Other ways to get involved. Patience is a Virtue. Where your money goes. Link between ALD and Addison’s Disease. ALD & AMN Forums. Donating your Unwanted Clothes. Playing a Prize Draw. Recycling your old Ink Cartridges. Run for Your ALD Life! Parachute Jump and Skydive. Patience is a Virtue. Fundación N...

aldlife.org aldlife.org

Personal Links | ALD Life

http://www.aldlife.org/patient-information/useful-links/personal-links

Link between ALD and Addison’s Disease. Help, Info & Care Links. Donating your Unwanted Clothes. Playing a Prize Draw. Recycling your old Ink Cartridges. Run for Your ALD Life! Parachute Jump and Skydive. Other ways to get involved. Patience is a Virtue. Where your money goes. Link between ALD and Addison’s Disease. ALD & AMN Forums. Donating your Unwanted Clothes. Playing a Prize Draw. Recycling your old Ink Cartridges. Run for Your ALD Life! Parachute Jump and Skydive. Patience is a Virtue. Fundación N...

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Well done Uncle John and team. We’re sending a virtual big hug full of pride and thanks to my brother and Joey’s godfather and uncle, John, who completed his first marathon (Cork City Marathon, Ireland) today, Monday 1st June 2015, in a time of 3 hours 44 minutes, despite the gale force Irish winds, torrential rain and a pulled calf muscle! Our deepest and heartfelt thanks to you all. Mixed emotions in Paris. For some of the families that we have become friends with over the years, there’s always a...

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