On-line support groups for those whose lives have been effected by the diagnosis of a trisomy and related disorders, including mosaicism and partial trisomy
http://www.trisomyonline.org/
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Trisomy On-Line
Karen Schuler
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Trisomy On-Line - Trisomy Support for Families by Families | trisomyonline.org Reviews
https://trisomyonline.org
On-line support groups for those whose lives have been effected by the diagnosis of a trisomy and related disorders, including mosaicism and partial trisomy
trisomyonline.org
Trisomy On-Line - What is the Angel Wings List?
http://www.trisomyonline.org/wlist.htm
The Trisomy Angel Wings List (Wings for short) is an email based support group for parents, relatives and friends of our trisomy Angels - our little ones who could not stay here on this earth with us, but who we will forever keep in our hearts. The Wings List is complimentary to the Trisomy Medical list, and the they shall always be close twins in love and support. The Wings List is a closed list to help ensure that it is a safe environment for those who participate. Your email address will only be known...
Trisomy On-Line - What is the Trisomy Family List?
http://www.trisomyonline.org/tfamlist.htm
Over the years the members of the Trisomy Online List community have become very close. Many have gone on to share a very special bond, meeting up with those who are close and participating in good natured bantering about things not specifically related to trisomy. We feel that this is just as important as the more technical aspects of trisomy, and so unlike many email lists we encourage this closeness. List members represent many different trisomy conditions (including full, partial, mosaic, 18, 14, 13,...
Trisomy On-Line - What is the Trisomy Medical List
http://www.trisomyonline.org/tmedlist.htm
The Trisomy Medical List is an e-mail based support group that was formed by a group of families in 1997 for families, friends and health professionals who share a common medical, academic and emotional interest in the rarer trisomy conditions. Membership is open to all who have an interest in Trisomy conditions and related disorders, and who are willing to abide by the list rules. List members represent many different trisomy conditions (including full, partial, mosaic, 18, 14, 13, 8, 6, 4 etc.) and...
Trisomy On-Line - What is the Trisomy Choices List?
http://www.trisomyonline.org/tchoiceslist.htm
The Trisomy Choices List is an e-mail based support group designed specifically for those families who have made the heartbreaking decision to interrupt their pregnancy after the diagnosis of a trisomy prenatally. The Trisomy Choices list aims to provide a safe and protected forum for people who have made this decision to support each other. This is simply to ensure that the list operates in complete safety. People may however leave the list at will and we only ask that you respect the list rules. The we...
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Mama, Papa, Hapas: April 2009
http://mamapapahapas.blogspot.com/2009_04_01_archive.html
Mama, Papa, Hapas. Tuesday, April 14, 2009. Spring Break in California. The wedding was in a small town called Walnut Grove and the reception was nearby at a huge mansion in the middle of orchards. We all had a great time and Hana seemed to like all the attention. Next, we drove to Corte Madera north of San Francisco to see Shawn's brother Dave and his family. We got to watch cousin Nick play some baseball and cousin Emily introduced us to their new kittens Cooper and Chloe. You can see Hana was ready to...
Mama, Papa, Hapas: September 2009
http://mamapapahapas.blogspot.com/2009_09_01_archive.html
Mama, Papa, Hapas. Sunday, September 6, 2009. Hana capped off her busy summer with our traditional trip to the State Fair. She had the chance to pet a few animals and check out the crowds. She had a taste of her first fair food. the chocolate from a fudge puppy (belgian waffle on a stick covered in Chocolate). She seemed to enjoy herself, but pooped out before too long. Hana will be going back to ECFE soon and we'll also be volunteering during another class. Hana loves other kids and she'll be able t...
Mama, Papa, Hapas: Happy 2011
http://mamapapahapas.blogspot.com/2011/01/happy-2011.html
Mama, Papa, Hapas. Monday, January 17, 2011. Another year, and another opportunity to start blogging more. I've really been inspired by my friend Jen who has been blogging everyday of this year, so far. You check her out her blog Jfibers here. For more motivation, I've also decided to join my other good friend Heather on the cookalong for Around My French Table. It's connected to the author's blog French Fridays with Dorie. OK I digress. After finishing student teaching, we drove to California for th...
Nina Minha Filha | A alegria em Deus numa história de síndrome de Patau: Nathalia e Erick: nossa história com Lucas
http://ninaminhafilha.blogspot.com/2013/03/nathalia-e-erick-nossa-historia-com.html
Quarta-feira, 20 de março de 2013. Nathalia e Erick: nossa história com Lucas. Por ter compartilhado de nossa história com Nina, diversas pessoas entraram em contato comigo (T. Zambelli). Todas elas estavam extremamente envolvidas com alguém diagnosticado com síndrome de Patau. A maioria foi mães. A história abaixo é um depoimento de Nathalia e Erick, por quem pude orar quando me contaram da situação que passavam com Lucas, ainda no ventre. Não percam a fé! Compartilhar com o Pinterest. Parte 15 26/03/20...
Mama, Papa, Hapas: January 2010
http://mamapapahapas.blogspot.com/2010_01_01_archive.html
Mama, Papa, Hapas. Wednesday, January 13, 2010. Not the Biggest , But Still a Loser. So, I've lost about 25 pounds since September. Since people have asked, I thought I'd blog about how I did it. One of my co-workers lost 40 pounds on the Flat Belly Diet. Last year. Another friend of mine, a woman, lost 30 pounds. Both have kept it off, but basically changed their eating habits for life. Four meals of 400 calories. Eat every 4 hours during the day. Eat a monounsaturated fat (MUFA) with every meal. Store ...
Nina Minha Filha | A alegria em Deus numa história de síndrome de Patau: O segredo de um excelente professor (em inglês)
http://ninaminhafilha.blogspot.com/2013/08/o-segredo-de-um-excelente-professor-em.html
Sexta-feira, 23 de agosto de 2013. O segredo de um excelente professor (em inglês). Compartilhar com o Pinterest. Assinar: Postar comentários (Atom). Os cinco posts mais vistos da semana. Cartas da História (Parte 15). Parte 15 26/03/2012 - O Senhor nos deu, o Senhor levou Queridos, esta é uma breve nota para informá-los que nossa pequena Nina faleceu . Nathalia e Erick: nossa história com Lucas. Cartas da História (Parte 16). A história de Nick Vujicic. Querida futura mamãe (Síndrome de Down). Mateus-po...
Nina Minha Filha | A alegria em Deus numa história de síndrome de Patau: Poema: I still would've chosen you
http://ninaminhafilha.blogspot.com/2013/04/poema-i-still-wouldve-chosen-you.html
Terça-feira, 2 de abril de 2013. Poema: I still would've chosen you. Compartilhar com o Pinterest. Assinar: Postar comentários (Atom). Os cinco posts mais vistos da semana. Cartas da História (Parte 15). Parte 15 26/03/2012 - O Senhor nos deu, o Senhor levou Queridos, esta é uma breve nota para informá-los que nossa pequena Nina faleceu . Nathalia e Erick: nossa história com Lucas. Cartas da História (Parte 16). A história de Nick Vujicic. Mais uma bela história. Glórias a Jesus Cristo, o Salvador. Meu f...
Nina Minha Filha | A alegria em Deus numa história de síndrome de Patau: A história de Nina também no SOFT (Support Organization for Trisomy)
http://ninaminhafilha.blogspot.com/2013/10/a-historia-de-nina-tambem-no-soft.html
Terça-feira, 22 de outubro de 2013. A história de Nina também no SOFT (Support Organization for Trisomy). Agora a história de Nina também está contada no SOFT. Clique no logo abaixo para ser direcionado e ler a história. Compartilhar com o Pinterest. Assinar: Postar comentários (Atom). Os cinco posts mais vistos da semana. Cartas da História (Parte 15). Parte 15 26/03/2012 - O Senhor nos deu, o Senhor levou Queridos, esta é uma breve nota para informá-los que nossa pequena Nina faleceu . João é um milagre.
Nina Minha Filha | A alegria em Deus numa história de síndrome de Patau: Histórias que edificam
http://ninaminhafilha.blogspot.com/2013/07/historias-que-edificam.html
Domingo, 28 de julho de 2013. Desde que iniciei o site Nina Minha Filha. Compartilhar histórias, saber contá-las e ouvi-las, é uma das formas de Deus nos edificar. Quando Karen e eu soubemos que Nina era portadora da Trissomia do cromossomo 13, encontramos algumas pessoas maduras que já tinham passado por uma situação semelhante. Crescemos muito em conhecimento e nos sentimos mais consolados à medida que percebíamos o agir de Deus em cada um dos casos ouvidos. Abçs (E.S.). Tiago sou a t. de campinas ...
Nina Minha Filha | A alegria em Deus numa história de síndrome de Patau: Somente um cromossomo extra
http://ninaminhafilha.blogspot.com/2013/11/somente-um-cromossomo-extra.html
Segunda-feira, 4 de novembro de 2013. Somente um cromossomo extra. Compartilhar com o Pinterest. Assinar: Postar comentários (Atom). Os cinco posts mais vistos da semana. Cartas da História (Parte 15). Parte 15 26/03/2012 - O Senhor nos deu, o Senhor levou Queridos, esta é uma breve nota para informá-los que nossa pequena Nina faleceu . Nathalia e Erick: nossa história com Lucas. Cartas da História (Parte 16). A história de Nick Vujicic. Mais uma bela história. Glórias a Jesus Cristo, o Salvador. Meu fil...
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our trisomy journey- God's gift of jedidiah joseph
Our trisomy journey- God's gift of jedidiah joseph. Lilypie Angel and Memorial tickers. Tuesday, July 28, 2015. Seattle #womenbetrayed rally speech. The mic wasn't working so imagine me holding a ridiculous big bullhorn in one hand and my phone in the other. That's right, a bullhorn. No bras were burned during this rally but it felt like it could have easily gone that way. My name is Elizabeth Arendale -. Once with my first child - as an unmarried scholarship soccer player in college. Why are we shocked?
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Trisomy On-Line - Trisomy Support for Families by Families
Trisomy Online is a free email based support group that was formed in 1997 for families and professionals whose lives have been touched by the diagnosis of a trisomy condition. Please join us in remembering all children who have died. Light a candle at 7pm on Sunday 13th December 2009 together we will make a wave of light around the world "that their light may always shine.". We warmly invite all into this wonderful online community to share the ups and downs of life in the fun park, to gain the benefit ...
Welcome to TrisomyTalk! - TrisomyTalk.com
Webinar Series: Trisomy and Genetics with John C. Carey, MD. The Tracking Rare Incidence Syndromes (TRIS) Project. My Name is Simon. Every child’s life matters regardless of how much time they have to spend on this spinning planet we call Earth. They each carry with them a message of hope, a message of courage and most of all they bring love. A love that will forever change the lives of all who hear their story. Help us bring you the information that you need most by completing our survey. This is yo...
Home - TRISOMYtest.com
Where to find Trisomy Test. Where to get tested. Where to get tested. All moms-to-be deserve a peaceful pregnancy. That is why it is important to break the code to your baby’s health before it is born. The TRISOMY test is a non-invasive high-precision screening test based on maternal blood. Which is used to determine the presence of frequent fetal chromosomal abnormalities as early as in the 11th week of pregnancy. Posing no risk to either the mother or the baby, the TRISOMY test. Trisomy and its risks.
Home - TRISOMYtest.cz
Kontaktujte nás: 420 558 900 315. Každá budoucí maminka si zaslouží klidné těhotenství. TRISOMY test je neinvazivní screeningové vyšetření z krve matky. Které dokáže s velkou přesností vyloučit přítomnost nejčastějších závažných chromozomálních poruch plodu již od 11. týdne těhotenství. Nepředstavuje pro matku ani dítě žádné riziko. Trizomie a její rizika. Poraďte se s lékařem. Rozhodli jste se pro TRISOMY test? Zjistit více o genetické výbavě svého plodu můžete v krátkém čase. Stačí navštívit svého ...
Home - TRISOMYtest.hr
Poliklinika Analiza: 021 688 888. Iz iskustva roditelja i liječnika. Iz iskustva roditelja i liječnika. Svaka trudnica zaslužuje mirnu trudnoću. Zbog toga je važno saznati stanje svog djeteta već za vrijeme trudnoće. TRISOMY test je prenatalni, neinvazivni test iz krvi majke, koji već od 11 tjedna trudnoće. S velikom osjetljivošću i specifičnošću može isključiti prisutnost kromosomskih defekata ploda. Trisomija i njezini rizici. Posavjetujte se s liječnikom. Odlučili ste se za TRISOMY test? Saznajte više...
TRISZÓMIA-teszt - magzati kromoszóma rendellenességek szűrése
Géndiagnosztikai Centrum: 36 1 580 8600. Miért válassza a TRISZÓMIA-tesztet? Hol végzik el a vizsgálatot? Miért válassza a TRISZÓMIA-tesztet? Hol végzik el a vizsgálatot? ÖN, ÉS SZABADULJON MEG FÉLELMEITŐL. Minden leendő édesanya megérdemli, hogy várandóssága békés legyen. A TRISZÓMIA-teszt egy nagy pontosságú, nem invazív szűrővizsgálat, amelynek segítségével már a terhesség 11. hetétől ki lehet mutatni az anya véréből a gyakori magzati kromoszóma-rendellenességek jelenlétét. A magzati DNS már a terhess...
