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Tuberous Sclerosis Complex New Zealand - Home

Tuberous Sclerosis Complex (TSC). Affects hundreds of individuals in New Zealand and thousands more carers, families and friends who live with the impact of the disease. TSC tumours can grow in any organ of the body, commonly affecting the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. Tuberous Sclerosis Complex New Zealand. Has been founded to improve the lives of New Zealanders living with this condition. Registered charity number CC50554.

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Tuberous Sclerosis Complex New Zealand - Home | tsc.org.nz Reviews

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Tuberous Sclerosis Complex (TSC). Affects hundreds of individuals in New Zealand and thousands more carers, families and friends who live with the impact of the disease. TSC tumours can grow in any organ of the body, commonly affecting the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. Tuberous Sclerosis Complex New Zealand. Has been founded to improve the lives of New Zealanders living with this condition. Registered charity number CC50554.

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3 about us

4 about tsc

5 our stories

6 resources

7 support us

8 our mission

9 our values

10 partnership respect aspiration

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Tuberous Sclerosis Complex New Zealand - Home | tsc.org.nz Reviews

https://tsc.org.nz

Tuberous Sclerosis Complex (TSC). Affects hundreds of individuals in New Zealand and thousands more carers, families and friends who live with the impact of the disease. TSC tumours can grow in any organ of the body, commonly affecting the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. Tuberous Sclerosis Complex New Zealand. Has been founded to improve the lives of New Zealanders living with this condition. Registered charity number CC50554.

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tsc.org.nz

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Tuberous Sclerosis Complex New Zealand - Home

http://www.tsc.org.nz/home

Tuberous Sclerosis Complex (TSC). Affects hundreds of individuals in New Zealand and thousands more carers, families and friends who live with the impact of the disease. TSC tumours can grow in any organ of the body, commonly affecting the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. Tuberous Sclerosis Complex New Zealand. Has been founded to improve the lives of New Zealanders living with this condition. Registered charity number CC50554.

2

Tuberous Sclerosis Complex New Zealand - Disclaimer

http://www.tsc.org.nz/disclaimer

Registered charity number CC50554. Tuberous Sclerosis Complex NZ 2014.

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Tuberous Sclerosis Complex New Zealand - Resources

http://www.tsc.org.nz/resources

Keep up to date with TSCNZ events and news through our Facebook Page. Talk with other people and families who have Tuberous Sclerosis at the Discussions of Tuberous Sclerosis in Australia and New Zealand (a closed facebook group) Discussions of Tuberous Sclerosis in Australia and New Zealand. Surveillance and Management Guidelines. Balloons with the TSCNZ logo. Contact us if you would like these resources sent to you free of charge or print them off this website. Peer-Reviewed, Published Consensus Papers.

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Tuberous Sclerosis Complex New Zealand - Support Us

http://www.tsc.org.nz/membership

In our bid to fulfill our mission to inform, connect and support the TSC community in New Zealand, we would like to invite you to become a financial member of Tuberous Sclerosis Complex New Zealand. For an annual contribution of $30, you will receive two copies of Reach Out, the excellent magazine published by Tuberous Sclerosis Australia. TSCNZ will continue to provide New Zealand specific content to Reach Out. Maintain an up-to-date website of TSC related information and resources. To make a donation o...

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Tuberous Sclerosis Complex New Zealand - Our Stories

http://www.tsc.org.nz/our-stories

Leah: My Story Thus Far. My name is Leah Bos. I am 33 years-old. I live in Whangarei, New Zealand. I am a TSC individual who would like to share my journey with you thus far. I am the youngest of three children and I am the only child affected with Tuberous Sclerosis. At a tender age of 15 months I had a febrile convulsion and was taken to the doctor. At the doctor’s clinic the paediatrician noticed a white cloud on my thigh. It was then that tests were done to diagnose me with TSC. I went home feeling e...

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About Tuberous Sclerosis Complex. How to Start a TSC Organization. Find a TSC Organization in Your Area. A Worldwide Association of. Tuberous Sclerosis Complex Organizations. Professor Petrus de Vries, rehana.effendi@uct.ac.za. Loren Leclezio, loren.leclezio@uct.ac.za. June Lu, Email: deerjune@gmail.com. Jane Yu, Email: fish3h2o@126.com. The Japanese Society of Tuberous Sclerosis Complex. Tokyo, Japan 113-8421. Dr Okio Hino, Juntendo University, ohino@juntendo.ac.jp. Taipei 8F-7 No. 6. 64 21 154 7017.

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Tuberous Sclerosis Complex New Zealand - Home

Tuberous Sclerosis Complex (TSC). Affects hundreds of individuals in New Zealand and thousands more carers, families and friends who live with the impact of the disease. TSC tumours can grow in any organ of the body, commonly affecting the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. Tuberous Sclerosis Complex New Zealand. Has been founded to improve the lives of New Zealanders living with this condition. Registered charity number CC50554.

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