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Life as I know it - and other Random Ramblings

Life as I know it - and other Random Ramblings. View my complete profile. Wednesday, 29 May 2013. Thursday, 7 March 2013. Funny thing, life, isn’t it? Wednesday, 13 February 2013. New year, late blog. oops! Thursday, 29 November 2012. Catching up. Again! Wednesday, 29 August 2012. Like a Duck to Water. Friday, 29 June 2012. This is my left leg when blistering, just as it was starting to spread to my knee (19th June 2012). This is my left leg and the knee just as it was starting to dry up (21st June 2012).

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Life as I know it - and other Random Ramblings | twinksblog-twink.blogspot.com Reviews

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Life as I know it - and other Random Ramblings. View my complete profile. Wednesday, 29 May 2013. Thursday, 7 March 2013. Funny thing, life, isn’t it? Wednesday, 13 February 2013. New year, late blog. oops! Thursday, 29 November 2012. Catching up. Again! Wednesday, 29 August 2012. Like a Duck to Water. Friday, 29 June 2012. This is my left leg when blistering, just as it was starting to spread to my knee (19th June 2012). This is my left leg and the knee just as it was starting to dry up (21st June 2012).

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1 pages

2 ichthyosis

3 followers

4 blog archive

5 daily updates

6 about me

7 twink

8 posted by

9 no comments

10 thinking out loud

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Life as I know it - and other Random Ramblings | twinksblog-twink.blogspot.com Reviews

https://twinksblog-twink.blogspot.com

Life as I know it - and other Random Ramblings. View my complete profile. Wednesday, 29 May 2013. Thursday, 7 March 2013. Funny thing, life, isn’t it? Wednesday, 13 February 2013. New year, late blog. oops! Thursday, 29 November 2012. Catching up. Again! Wednesday, 29 August 2012. Like a Duck to Water. Friday, 29 June 2012. This is my left leg when blistering, just as it was starting to spread to my knee (19th June 2012). This is my left leg and the knee just as it was starting to dry up (21st June 2012).

INTERNAL PAGES

twinksblog-twink.blogspot.com

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Life as I know it - and other Random Ramblings: May 2013

http://twinksblog-twink.blogspot.com/2013_05_01_archive.html

Life as I know it - and other Random Ramblings. View my complete profile. Wednesday, 29 May 2013. Subscribe to: Posts (Atom).

2

Life as I know it - and other Random Ramblings: June 2011

http://twinksblog-twink.blogspot.com/2011_06_01_archive.html

Life as I know it - and other Random Ramblings. View my complete profile. Friday, 24 June 2011. Rebecca wearing her harness and still smiling. The question now is. Could I possibly fit anymore into a day? And my answer to that is simply this. I honestly don’t know but I’ll give it a damn good try. Subscribe to: Posts (Atom).

3

Life as I know it - and other Random Ramblings: Ichthyosis

http://twinksblog-twink.blogspot.com/p/ichthyosis.html

Life as I know it - and other Random Ramblings. View my complete profile. I was born with the genetic skin condition called Bullous Ichthyosis (aka EHK - Epidermolytic Hyperkeratosis). It is just one of many different types of Ichthyosis. Here is an overview of the condition from my own personal experience. So, what exactly is Ichthyosis? And What does it mean to have Ichthyosis and how does it affect you? You’re probably wondering? Subscribe to: Posts (Atom).

4

Life as I know it - and other Random Ramblings: May 2012

http://twinksblog-twink.blogspot.com/2012_05_01_archive.html

Life as I know it - and other Random Ramblings. A Grand Day OutOn Saturday 27th May Friends of Ich. View my complete profile. Thursday, 24 May 2012. Craig and Sharon Beattie with their son Harry, Myself and my daughter Rebecca and Tammy Smith. Donna Antrobus, Tomo and Beccy Curtis. Sharon Beattie and her son Harry. Tammy Smith with her son Max. Tomo, Max and ABi. Vincent and Daniel Bradley. Riding on the train. Subscribe to: Posts (Atom).

5

Life as I know it - and other Random Ramblings: Daily updates

http://twinksblog-twink.blogspot.com/2013/05/daily-updates.html

Life as I know it - and other Random Ramblings. View my complete profile. Wednesday, 29 May 2013. Subscribe to: Post Comments (Atom).

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fishyskin.blogspot.com

Fishy Skin: Living with Ichthyosis Vulgaris: Ichthyosis Confessions: Is It True?

http://fishyskin.blogspot.com/2012/03/ichthyosis-confessions-is-it-true.html

Fishy Skin: Living with Ichthyosis Vulgaris. Friday, March 2, 2012. Ichthyosis Confessions: Is It True? This is part of a series of blog posts I dubbed "Ichthyosis confessions" which features people on youtube talking about their experiences and concerns about Ichthyosis. A Singaporean teen video blogs about Ichthyosis, looking for possible treatments to ease the condition. Subscribe to: Post Comments (Atom). Yes, I have Ichthyosis Vulgaris. Would you like some tea? Call me your Ichthyosister! Dr Keith C...

fishyskin.blogspot.com

Fishy Skin: Living with Ichthyosis Vulgaris: November 2011

http://fishyskin.blogspot.com/2011_11_01_archive.html

Fishy Skin: Living with Ichthyosis Vulgaris. Saturday, November 19, 2011. A Video that Explains it All. I think of all the Ichthyosis skin conditions, I am afflicted with the mildest form, I consider myself still fortunate despite how aggravating the "mildest" form is. I cannot begin to fathom the severity and difficulty of living with Ichthyosis of the extreme or rare kind. If you can't see the video, watch it here. Subscribe to: Posts (Atom). Yes, I have Ichthyosis Vulgaris. Would you like some tea?

fishyskin.blogspot.com

Fishy Skin: Living with Ichthyosis Vulgaris: A Child with Granny Hands: A Case of Hyperlinear Palms

http://fishyskin.blogspot.com/2011/07/child-with-granny-hands-case-of.html

Fishy Skin: Living with Ichthyosis Vulgaris. Friday, July 29, 2011. A Child with Granny Hands: A Case of Hyperlinear Palms. I've been called many things and many names growing up. People would discuss my fishy skin right in front me as if I wasn't there. They would prod and stare at it and theorize how this came about. But thinking about all that name calling, amuses me now. It seemed to mystify people that someone like me can actually live with something like this. The act of strange food cravings by a ...

confettiskin.com

Glossary « Confetti Skin, Beauty Within

http://confettiskin.com/wp/glossary

Confetti Skin, Beauty Within. Navigating life with ichthyosis. What’s a Gene? Genetic Mutations Video Explanation. Confetti Skin, Beauty Within. Is our blog about ichthyosis. And its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2". Read more about us and this blog. Here's our summary of our best and most important posts of 2012. 2014 Ichthyosis Conference An Update from Dr. Choate. 2014 Ichthyosis Conference: Day 1. Dermis &#8...

confettiskin.com

About Ichthyosis « Confetti Skin, Beauty Within

http://confettiskin.com/wp/ichthyosisinfo

Confetti Skin, Beauty Within. Navigating life with ichthyosis. What’s a Gene? Genetic Mutations Video Explanation. Confetti Skin, Beauty Within. Is our blog about ichthyosis. And its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2". Read more about us and this blog. Here's our summary of our best and most important posts of 2012. 2014 Ichthyosis Conference An Update from Dr. Choate. 2014 Ichthyosis Conference: Day 1. Congenital...

confettiskin.com

Genetics Part 2 – Recessive Inheritance « Confetti Skin, Beauty Within

http://confettiskin.com/wp/2012/11/01/recessive-inheritance

Confetti Skin, Beauty Within. Navigating life with ichthyosis. What’s a Gene? Genetic Mutations Video Explanation. Confetti Skin, Beauty Within. Is our blog about ichthyosis. And its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2". Read more about us and this blog. Here's our summary of our best and most important posts of 2012. 2014 Ichthyosis Conference An Update from Dr. Choate. 2014 Ichthyosis Conference: Day 1. Because th...

confettiskin.com

Harlequin « Confetti Skin, Beauty Within

http://confettiskin.com/wp/category/arci/harlequin

Confetti Skin, Beauty Within. Navigating life with ichthyosis. What’s a Gene? Genetic Mutations Video Explanation. Confetti Skin, Beauty Within. Is our blog about ichthyosis. And its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2". Read more about us and this blog. Here's our summary of our best and most important posts of 2012. 2014 Ichthyosis Conference An Update from Dr. Choate. 2014 Ichthyosis Conference: Day 1. Malawi med...

confettiskin.com

Free Aquaphor for patients with ichthyosis from Beiersdorf « Confetti Skin, Beauty Within

http://confettiskin.com/wp/free-aquaphor-program

Confetti Skin, Beauty Within. Navigating life with ichthyosis. What’s a Gene? Genetic Mutations Video Explanation. Confetti Skin, Beauty Within. Is our blog about ichthyosis. And its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2". Read more about us and this blog. Here's our summary of our best and most important posts of 2012. 2014 Ichthyosis Conference An Update from Dr. Choate. 2014 Ichthyosis Conference: Day 1. Even with ...

confettiskin.com

Genetics « Confetti Skin, Beauty Within

http://confettiskin.com/wp/category/genetics

Confetti Skin, Beauty Within. Navigating life with ichthyosis. What’s a Gene? Genetic Mutations Video Explanation. Confetti Skin, Beauty Within. Is our blog about ichthyosis. And its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2". Read more about us and this blog. Here's our summary of our best and most important posts of 2012. 2014 Ichthyosis Conference An Update from Dr. Choate. 2014 Ichthyosis Conference: Day 1. When she a...

confettiskin.com

Genetics Part 5: Dominant Inheritance « Confetti Skin, Beauty Within

http://confettiskin.com/wp/2013/08/20/dominant-inheritance

Confetti Skin, Beauty Within. Navigating life with ichthyosis. What’s a Gene? Genetic Mutations Video Explanation. Confetti Skin, Beauty Within. Is our blog about ichthyosis. And its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2". Read more about us and this blog. Here's our summary of our best and most important posts of 2012. 2014 Ichthyosis Conference An Update from Dr. Choate. 2014 Ichthyosis Conference: Day 1. We set up ...

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Life as I know it - and other Random Ramblings

Life as I know it - and other Random Ramblings. View my complete profile. Wednesday, 29 May 2013. Thursday, 7 March 2013. Funny thing, life, isn’t it? Wednesday, 13 February 2013. New year, late blog. oops! Thursday, 29 November 2012. Catching up. Again! Wednesday, 29 August 2012. Like a Duck to Water. Friday, 29 June 2012. This is my left leg when blistering, just as it was starting to spread to my knee (19th June 2012). This is my left leg and the knee just as it was starting to dry up (21st June 2012).

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