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UK Potsies is a campaign and organisation dedicated to raising Postural Orthostatic Tachycardia Syndrome awareness in the UK (A member of Genetic Alliance UK). Following people from the UK living...

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About Us | ukpotsies.weebly.com Reviews
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UK Potsies is a campaign and organisation dedicated to raising Postural Orthostatic Tachycardia Syndrome awareness in the UK (A member of Genetic Alliance UK). Following people from the UK living...
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1 about us
2 pots information
3 what is pots
4 articles and downloads
5 pots stories
6 claire's story
7 eve's story
8 lette's story
9 lianne's story
10 fundraising
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about us,pots information,what is pots,articles and downloads,pots stories,claire's story,eve's story,lette's story,lianne's story,fundraising,disclaimer,latest news,our motto,rdquo;,youtube,facebook open page,facebook private page,marcia founder
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About Us | ukpotsies.weebly.com Reviews

https://ukpotsies.weebly.com

UK Potsies is a campaign and organisation dedicated to raising Postural Orthostatic Tachycardia Syndrome awareness in the UK (A member of Genetic Alliance UK). Following people from the UK living...

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ukpotsies.weebly.com ukpotsies.weebly.com
1

Claire's Story

http://ukpotsies.weebly.com/claires-story.html

What help is available? Pots in the media. One day, I developed an infection and was taken into hospital with stomach pains and vomiting. I felt extremely dizzy and was desperate to lie down. A nurse took my blood pressure and told me it was so low she thought I was dead (hospital humour! I improved gradually, but it took months before I could sit or stand without feeling very ill. I was first referred to a local immunologist who specialised in CFS/ME and I told him my theory about POTs. He wasn&rsqu...

2

Disclaimer

http://ukpotsies.weebly.com/disclaimer.html

What help is available? Pots in the media. If you have any concerns about your health please seek professional medical advice without delay. In no event will we be liable for any loss or damage including without limitation, direct, indirect, consequential loss or damage, or any other loss or damage whatsoever arising out of, or in connection with, the use or content of this website. Create a free website. Create your own free website. Start your own free website.

3

Articles & Downloads

http://ukpotsies.weebly.com/articles--downloads.html

What help is available? Pots in the media. An amazing UK research paper courtesy of Nature Reviews Neurology at Nature Reviews – Neurology. Christopher J. Mathias, David A. Low, Valeria Iodice, Andrew P. Owens, Mojca Kirbis and Rodney Grahame. This paper has already had such an overwhelmingly positive response, and I believe it highlights the wonderful doctors, specialists and research that is going on in the UK into Postural Orthostatic Tachycardia Syndrome. Article on POTs by Dr Blair Grubb. These down...

4

- Latest News

http://ukpotsies.weebly.com/latest-news.html

What help is available? Pots in the media. Our Charity Day is Almost Here! Our charity day this year is on the 1st August 2015 at Paddock Wood Memorial Ground, Maidstone Road, Paddock Wood, TN12 6EB. Gates open at 1pm and the football match begins at 2.30pm. This year we are incredibly lucky to welcome FA trophy finalists Tunbridge Wells FC and a Charlton Athletic representative side for an exhibition match. We also have lots in store to keep the kids happy! Share your own story! We are extremely interes...

5

What help is available?

http://ukpotsies.weebly.com/what-help-is-available.html

What help is available? Pots in the media. What help is available? Benefits from the Department for Work and Pensions. There are numerous options for those not able to work, or who need a little extra help with things. The two main benefits you may be entitled to are Disability Living Allowance and Employment Support Allowance. You can find a very useful guide on how to fill in a DLA application form as it is a very long process. You can apply for DLA even if you are in some form of employment. For those...

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What help is available? Pots in the media. About Us . UK Potsies is a campaign and organisation dedicated to raising Postural Orthostatic Tachycardia Syndrome awareness in the UK (A member of Genetic Alliance UK). Following people from the UK living with POTs – a form of Dysautonomia, to raise awareness and reach out to other sufferers of POTs and Dysautonomia. Ldquo;POTs – Life can still blossom! We also run both an open page and a hugely popular private facebook group which allows patients, friends an...

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