understandinglu.blogspot.com

Understanding Lu

Our family's journey in living with Rett Syndrome. Wednesday, August 12, 2015. The annual Pennsylvania Strollathon is coming up on September 5th this year! It's being held in Pittsburgh again at the nice park we strolled in last year, while enjoying views of the river. The 2014 event raised over $10,000! Newron and breathing drug. New discovery about the X Chromosome. Neuren and Orphan Drug Status. What if she could pick her own tomatoes, all by herself? Or walk without anyone's help? This is huge consid...

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Our family's journey in living with Rett Syndrome. Wednesday, August 12, 2015. The annual Pennsylvania Strollathon is coming up on September 5th this year! It's being held in Pittsburgh again at the nice park we strolled in last year, while enjoying views of the river. The 2014 event raised over $10,000! Newron and breathing drug. New discovery about the X Chromosome. Neuren and Orphan Drug Status. What if she could pick her own tomatoes, all by herself? Or walk without anyone's help? This is huge consid...

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Understanding Lu | understandinglu.blogspot.com Reviews

https://understandinglu.blogspot.com

Our family's journey in living with Rett Syndrome. Wednesday, August 12, 2015. The annual Pennsylvania Strollathon is coming up on September 5th this year! It's being held in Pittsburgh again at the nice park we strolled in last year, while enjoying views of the river. The 2014 event raised over $10,000! Newron and breathing drug. New discovery about the X Chromosome. Neuren and Orphan Drug Status. What if she could pick her own tomatoes, all by herself? Or walk without anyone's help? This is huge consid...

INTERNAL PAGES

understandinglu.blogspot.com

1

Understanding Lu: Ups and Downs

http://www.understandinglu.blogspot.com/2015/06/ups-and-downs.html

Our family's journey in living with Rett Syndrome. Friday, June 5, 2015. As the title suggests, we have had a lot of ups and downs lately. I have felt a little more down than up and didn't want to write a big downer post, but there have definitely been some bright spots in our days, so I'll share it all. We also saw Dr. Sasha a few Friday's ago. She said Lu is a star! I just don't know. I'm just doing my best to comfort her and keep her body as calm as we can. And look at her beautiful tomatoes! So, thin...

2

Understanding Lu: Why We Stroll

http://www.understandinglu.blogspot.com/2015/08/why-we-stroll.html

Our family's journey in living with Rett Syndrome. Wednesday, August 12, 2015. The annual Pennsylvania Strollathon is coming up on September 5th this year! It's being held in Pittsburgh again at the nice park we strolled in last year, while enjoying views of the river. The 2014 event raised over $10,000! Newron and breathing drug. New discovery about the X Chromosome. Neuren and Orphan Drug Status. What if she could pick her own tomatoes, all by herself? Or walk without anyone's help? Lucy May age 4.

3

Understanding Lu: June 2015

http://www.understandinglu.blogspot.com/2015_06_01_archive.html

Our family's journey in living with Rett Syndrome. Tuesday, June 16, 2015. With a little help from her friends. One such group of friends I have mentioned before in my blog, the Weber brothers, Miles, Chase, and Isaac, have become a very important part of Lucy's life over the few short years they have known each other. Back in early the spring we went on a little outing with them, and I wrote about it here: "Quality". A stream for wading that Lu and I, and the boys took full advantage of:. I just don't k...

4

Understanding Lu: March 2015

http://www.understandinglu.blogspot.com/2015_03_01_archive.html

Our family's journey in living with Rett Syndrome. Tuesday, March 24, 2015. Meanwhile, lunch was a success, Lu ate well, and we are all smiling and happy, so why feel sad for us? Sunday, March 22, 2015. Anxiety in Rett Syndrome. A few days later at breakfast after she had choked again Lucy said:. Hate, nervous, cry, hate, eat". So I scaffolded to her food pages and asked her to tell me what foods are easy for her to eat, what foods do not make her nervous, and here is the list she created:. I like Lucy t...

5

Understanding Lu: January 2015

http://www.understandinglu.blogspot.com/2015_01_01_archive.html

Our family's journey in living with Rett Syndrome. Monday, January 19, 2015. What might have been. A few days ago a Facebook friend of mine whose daughter has Rett posted a picture of her daughter and her daughter's twin brother playing dress up and just looking silly and adorable. That night I dreamt that I was searching for some definitive answer regarding the safe amount of weight a pregnant woman can lift. In my dream I just kept thinking, "Is it 42 pounds? Sunday, January 11, 2015. It could be worse...

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Our family's journey in living with Rett Syndrome. Wednesday, August 12, 2015. The annual Pennsylvania Strollathon is coming up on September 5th this year! It's being held in Pittsburgh again at the nice park we strolled in last year, while enjoying views of the river. The 2014 event raised over $10,000! Newron and breathing drug. New discovery about the X Chromosome. Neuren and Orphan Drug Status. What if she could pick her own tomatoes, all by herself? Or walk without anyone's help? This is huge consid...

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