understandingwilliamssyndrome.blogspot.com

Understanding Williams Syndrome

I am a high school human anatomy and physiology teacher by trade and I double as a mother of a little girl with Williams Syndrome. When my daughter was diagnosed, I was thankful that I understood how the body worked so I could navigate through the condition and understand what the doctors had to say. This is my way of sharing my knowledge so other parents can have that same power. Thursday, January 1, 2015. New resources for you! Here is a screen shot of the topics and you can find the link below. In my ...

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Understanding Williams Syndrome | understandingwilliamssyndrome.blogspot.com Reviews

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I am a high school human anatomy and physiology teacher by trade and I double as a mother of a little girl with Williams Syndrome. When my daughter was diagnosed, I was thankful that I understood how the body worked so I could navigate through the condition and understand what the doctors had to say. This is my way of sharing my knowledge so other parents can have that same power. Thursday, January 1, 2015. New resources for you! Here is a screen shot of the topics and you can find the link below. In my ...

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2 pages

3 blog contents

4 genetics

5 cardiovascular

6 speech

7 muscles and joints

8 growth and diet

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10 ears

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Understanding Williams Syndrome | understandingwilliamssyndrome.blogspot.com Reviews

https://understandingwilliamssyndrome.blogspot.com

I am a high school human anatomy and physiology teacher by trade and I double as a mother of a little girl with Williams Syndrome. When my daughter was diagnosed, I was thankful that I understood how the body worked so I could navigate through the condition and understand what the doctors had to say. This is my way of sharing my knowledge so other parents can have that same power. Thursday, January 1, 2015. New resources for you! Here is a screen shot of the topics and you can find the link below. In my ...

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understandingwilliamssyndrome.blogspot.com

1

Understanding Williams Syndrome: Webcast- Understanding Elastin

http://understandingwilliamssyndrome.blogspot.com/2014/02/webcast-understanding-elastin.html

I am a high school human anatomy and physiology teacher by trade and I double as a mother of a little girl with Williams Syndrome. When my daughter was diagnosed, I was thankful that I understood how the body worked so I could navigate through the condition and understand what the doctors had to say. This is my way of sharing my knowledge so other parents can have that same power. Saturday, February 15, 2014. Subscribe to: Post Comments (Atom). View my complete profile. Subscribe to this Blog.

2

Understanding Williams Syndrome: Interpreting microarray results

http://understandingwilliamssyndrome.blogspot.com/2011/07/interpreting-microarray-results.html

I am a high school human anatomy and physiology teacher by trade and I double as a mother of a little girl with Williams Syndrome. When my daughter was diagnosed, I was thankful that I understood how the body worked so I could navigate through the condition and understand what the doctors had to say. This is my way of sharing my knowledge so other parents can have that same power. Wednesday, July 20, 2011. A 155 Mb deletion was observed at 7q11.23 from linear location 72,337,897 - 73,837,643". When scien...

3

Understanding Williams Syndrome: Understanding Elastin

http://understandingwilliamssyndrome.blogspot.com/2014/02/understanding-elastin.html

I am a high school human anatomy and physiology teacher by trade and I double as a mother of a little girl with Williams Syndrome. When my daughter was diagnosed, I was thankful that I understood how the body worked so I could navigate through the condition and understand what the doctors had to say. This is my way of sharing my knowledge so other parents can have that same power. Tuesday, February 18, 2014. In this blog post- and on my webcast. Through the Williams Syndrome Association- we'll explore th...

4

Understanding Williams Syndrome: Posture issues associated with WS

http://understandingwilliamssyndrome.blogspot.com/2012/12/posture-issues-associated-with-ws.html

I am a high school human anatomy and physiology teacher by trade and I double as a mother of a little girl with Williams Syndrome. When my daughter was diagnosed, I was thankful that I understood how the body worked so I could navigate through the condition and understand what the doctors had to say. This is my way of sharing my knowledge so other parents can have that same power. Monday, December 31, 2012. Posture issues associated with WS. Bends in the spine due to muscle tone. Lordosis is commonly cal...

5

Understanding Williams Syndrome: Speech

http://understandingwilliamssyndrome.blogspot.com/p/nervous-system.html

I am a high school human anatomy and physiology teacher by trade and I double as a mother of a little girl with Williams Syndrome. When my daughter was diagnosed, I was thankful that I understood how the body worked so I could navigate through the condition and understand what the doctors had to say. This is my way of sharing my knowledge so other parents can have that same power. If you talk to any WS parent, most will admit that one of their first concerns was- when will that bubbly language appear?

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williamssyndromedad.blogspot.com

Williams Syndrome: Dad's Journey into the unknown: We are waiting, we are waiting...

http://williamssyndromedad.blogspot.com/2013/09/we-are-waiting-we-are-waiting.html

Williams Syndrome: Dad's Journey into the unknown. Thursday, September 12, 2013. We are waiting, we are waiting. Mostly in to theatre nearly 3 hours ago. We do not expect to see him inside another 4. We wait. The greatest fear I have is that the last thing E will know is me restraining him, while the mask is applied for the gas. My greatest hope is that he remembers the last words said to him while awake. "I love you" from his mum and "keep fighting bubba" from me. Most recently, the support of complete ...

williamssyndromedad.blogspot.com

Williams Syndrome: Dad's Journey into the unknown: May 2012

http://williamssyndromedad.blogspot.com/2012_05_01_archive.html

Williams Syndrome: Dad's Journey into the unknown. Saturday, May 26, 2012. God Only Knows What I'd be Without You - a post about E's Mum. When E's mum and I got married I wanted the first dance to be to the Beach Boys "god only knows". I settled for the last dance and as an aside wore flop flops, something I swore I would do on my wedding day! The song makes me think more of her now than then - God only knows what I'd be without you. So, E's mum, the person who makes this dad's journey into the unknown a...

williamssyndromedad.blogspot.com

Williams Syndrome: Dad's Journey into the unknown: February 2012

http://williamssyndromedad.blogspot.com/2012_02_01_archive.html

Williams Syndrome: Dad's Journey into the unknown. Wednesday, February 22, 2012. What if we had known? Due warning: this is not an easy post to write and is not likely to be an easy post to read - but its what's been in my head - so its coming out - it has taken me three weeks to get to this. This was brought up in my mind by one of the things I look at and it got me to thinking. It was the decision we came to the first time - and we didn't need to use it, so decision remained the same. E's condition has...

williamssyndromedad.blogspot.com

Williams Syndrome: Dad's Journey into the unknown: October 2011

http://williamssyndromedad.blogspot.com/2011_10_01_archive.html

Williams Syndrome: Dad's Journey into the unknown. Sunday, October 9, 2011. Dark Days and Sleepless Nights. Yesterday marked 3 months since we were formally notified of Ethan's diagnosis. This has made me return to my blog which has been neglected a little - and makes me think i need to return to the original purpose for setting it up - to help me - to give me a vent. Be back more frequently in future. Subscribe to: Posts (Atom). Things i look at. Working Mum's Fight for Sanity. Chubby Chicks Run Too.

williamssyndromedad.blogspot.com

Williams Syndrome: Dad's Journey into the unknown: Williams Syndrome Basics

http://williamssyndromedad.blogspot.com/p/williams-syndrome-basics.html

Williams Syndrome: Dad's Journey into the unknown. Williams Syndrome is a rare genetic disorder which comes with a complex set of physical and mental challenges. more soon. Subscribe to: Posts (Atom). Things i look at. Working Mum's Fight for Sanity. Chubby Chicks Run Too. Williams Syndrome Foundation UK. Our Story - WS. Notes from the holler. Comradeship or lonely furrow. A day of mixed feelings. The unfamiliar side of the familiar and our medica. We are waiting, we are waiting. Never tell me the odds.

babyjandbean.com

Adventures with Baby J and Bean: "I need a case manager."

http://www.babyjandbean.com/2011/10/i-need-case-manager.html

Adventures with Baby J and Bean. And our perfectly imperfect life. What is Williams Syndrome? Sunday, October 2, 2011. I need a case manager.". So many times, I've heard parents of kids with special and complex medical needs say that they need a case manager. I can certainly relate. The good news is that there's resources out there for parents like us. Shortly after receiving his Williams syndrome (WS) diagnosis, his pediatrician referred us to the Diagnostic Referral Group. At Children's Hospital of Phi...

babyjandbean.com

Adventures with Baby J and Bean: Hanging with Baby J

http://www.babyjandbean.com/2011/11/hanging-with-baby-j.html

Adventures with Baby J and Bean. And our perfectly imperfect life. What is Williams Syndrome? Wednesday, November 2, 2011. Hanging with Baby J. I've been making an extra effort lately to spend as much one-on-one time with Baby J as possible. He had been showing signs of jealousy towards his brother and the extra attention he receives in the form of therapy sessions (fun grown-up playmates that come to the house) and doctor appointments (fun outings - at least in Baby J's eyes). Today is a preschool day&#...

babyjandbean.com

Adventures with Baby J and Bean: Joyful

http://www.babyjandbean.com/2011/04/joyful.html

Adventures with Baby J and Bean. And our perfectly imperfect life. What is Williams Syndrome? Tuesday, April 26, 2011. One of the hallmark characteristics of individuals affected by Williams Syndrome. WS) is a highly social personality. This past weekend, Bean was surrounded by family and friends and Husband and I had the opportunity to really see Bean's sweet personality in bloom. His desire for interpersonal relationships is so strong now that his feelings are obviously hurt if you don't greet him, hol...

babyjandbean.com

Adventures with Baby J and Bean: Tomorrow is the day...

http://www.babyjandbean.com/2011/09/tomorrow-is-day.html

Adventures with Baby J and Bean. And our perfectly imperfect life. What is Williams Syndrome? Tuesday, September 6, 2011. Tomorrow is the day. Bean's dental surgery is tomorrow morning. I wrote about it before here. We have to be at the hospital at 7:45. I'm glad it's relatively early so that he won't be too hungry and grouchy. Bean's SVAS is mild at this point and he has done well with anesthesia in the past (pre- diagnosis), but his condition is progressive in nature and I am his mommy so I worry.

phasesofthemooniers.blogspot.com

Phases of the Mooniers: Cup of ...

http://phasesofthemooniers.blogspot.com/2013/12/cup-of.html

Phases of the Mooniers. Learning about Williams Syndrome. Tuesday, December 31, 2013. I also played around with a new bokeh backdrop idea. I love the result and it's SO easy. You just set up crinkled foil far back from your subject and photograph on a very low aperature. The result is that beautiful bokeh. So fun! January 8, 2014 at 11:35 AM. Coming from P52 to say hello! Loved your take on the theme this week :). Subscribe to: Post Comments (Atom). View my complete profile. Check out my other blogs.

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Understanding Who God Is -YHVH. Thursday, May 14, 2015. Once Saved, Always Saved? Regarding the theory; "Once Saved, Always Saved" or "No Christian Will Miss The Rapture" and "There are No Christians in Hell". Well, let's look at the scriptures:. 8217; And then I will declare to them, ‘I never knew you; depart from Me, you who practice lawlessness! 8217; -Matthew 7:21-23. Who was Jesus talking to? What atheist is going to prophesy in His name? We are currently living in the Church age of Laodicea. Un...

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You got a mind, You got a voice, Take a stand, Make your choice. Monday, August 3, 2009. The Red Baron - Cheapshots and Brodowns. The Red Baron - Cheapshots and Brodowns. 1 Jesus Loves Sam Koody. 3 Rolling With The Punches. 4 Sick And Tired. They ruled. They broke up this year. This stuff is old. Labels: The Red Baron. Posted by understanding why. Thursday, April 9, 2009. Underoath - Cries of The Past. Underoath - Cries of The Past. 3 Giving up Hurts the Most. 4 And I Dreamt of You. 5 Cries of the Past.

understandingwilliamssyndrome.blogspot.com

Understanding Williams Syndrome

I am a high school human anatomy and physiology teacher by trade and I double as a mother of a little girl with Williams Syndrome. When my daughter was diagnosed, I was thankful that I understood how the body worked so I could navigate through the condition and understand what the doctors had to say. This is my way of sharing my knowledge so other parents can have that same power. Thursday, January 1, 2015. New resources for you! Here is a screen shot of the topics and you can find the link below. In my ...

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Wednesday, October 24, 2007. Configuring Windows Server 2008 Server Core Basic Networking Settings. Configuring Windows Server 2008 Server Core Basic Networking Settings. Like any other server, Server Core machines must be properly configured to be able to communicate on your network. Some of these settings include:. Configuring an IP address. Configuring an administrator's password. Configuring a server name. Enabling remote MMC snap-in management. Enabling remote RDP connections. Netsh interface ipv4 s...

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Is the name of a short course in palate appreciation. Developed over my 34 years of working in and around the wine industry, the course is based on empowering people with confidence in their ability to understand a glass of wine. Participants, both trade and public, gain the confidence to consider and discuss wine from their ability to understand what is in their glass. This leads to greater enjoyment and enthusiasm about what is one of the world's great beverages. Bush vines in Rioja, Spain.

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The last weeks of Gordon’s life were spent with someone I barely knew and didn’t know how to approach. It took me two years of counseling to get through the scars. It didn’t have to be that way for me. And it certainly doesn’t have to be that way for you. A LOOK INSIDE THE BOOK. Understanding That There Is Still Much More Life to Live Every Day. Support for Caregivers and Care Receivers. How to create and maintain a warm, comfortable, and safe environment.