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The Unknown Cystic | Leaving a digital record for my family & virtual friends

Leaving a digital record for my family & virtual friends

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The Unknown Cystic | Leaving a digital record for my family & virtual friends | unknowncystic.wordpress.com Reviews

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Leaving a digital record for my family & virtual friends

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Hernia Surgery – Part Two | The Unknown Cystic

https://unknowncystic.wordpress.com/2014/05/18/hernia-surgery-part-two

Leaving a digital record for my family and virtual friends. Skip to primary content. The Unknown Cystic – Fighting CF with Words, Humor, and a Flail. Hernia Surgery – Part Two. May 18, 2014. I was rabid when they wheeled me to a non CF-Floor. Tasmanian Devil, I was. And being admitted late on a Friday night? God, no, not the back-up staff. My mind swirled with the possibilities of what an open, oozing wound would earn me this time. Flesh-eating bacteria? Early that morning, they removed the catheter and ...

2

My Daughter, version 12.5 | The Unknown Cystic

https://unknowncystic.wordpress.com/2014/09/01/my-daughter-version-12-5

Leaving a digital record for my family and virtual friends. Skip to primary content. The Unknown Cystic – Fighting CF with Words, Humor, and a Flail. My Daughter, version 12.5. September 1, 2014. That’s the word my wife and I use most these days when discussing our 12-year-old daughter. We read parenting articles and strategize how best to deal with angry responses and other “tweenerisms.”. Nature vs. Nurture? Nature is winning. And hormones. Delusional, I was, that we would get a pass on this stage.

3

Giving it all to my job right now | The Unknown Cystic

https://unknowncystic.wordpress.com/2014/07/08/giving-it-all-to-my-job-right-now

Leaving a digital record for my family and virtual friends. Skip to primary content. The Unknown Cystic – Fighting CF with Words, Humor, and a Flail. Giving it all to my job right now. July 8, 2014. I’m leading part of a large training event at work right now and its sucking up all of my creative energy to complete it. And I’m working long days and putting in hours on weekends to finish all of the deliverables on time. Luckily, I’m working with a good team. One worry I have is that I now use O2 at night&...

4

And the decision is . . . | The Unknown Cystic

https://unknowncystic.wordpress.com/2014/09/18/and-the-decision-is

Leaving a digital record for my family and virtual friends. Skip to primary content. The Unknown Cystic – Fighting CF with Words, Humor, and a Flail. And the decision is . . . September 18, 2014. I stepped off the cliff and quit my job Wednesday. It’s the first major decision I’ve made that I didn’t second guess. I’m all in. It’s a risk, but I took it. Two weeks to go at my current job and a great 15-year chapter of my life closes. What is there to say? ArtFamily – Fotolia.com. And tagged changing jobs.

5

One of the biggest decisions of my life | The Unknown Cystic

https://unknowncystic.wordpress.com/2014/09/13/one-of-the-biggest-decisions-of-my-life

Leaving a digital record for my family and virtual friends. Skip to primary content. The Unknown Cystic – Fighting CF with Words, Humor, and a Flail. One of the biggest decisions of my life. September 13, 2014. I’m stressing. I have to decide whether to change jobs. My answer is due Tuesday. In return, I’ve worked hard for the company. It’s been beneficial for both of us. A few months ago, one of the smaller companies we hire to help us with large projects, approached me to work for them. As I was wo...

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cysticgal.blogspot.com cysticgal.blogspot.com

Cystic Gal: Cystic Gal: Cliff, Put Down That Hoagie!

http://cysticgal.blogspot.com/2012/05/cystic-gal-cliff-put-down-that-hoagie.html

The daily randomlings of women with Cystic Fibrosis, moderated by ME. Thursday, May 24, 2012. Cystic Gal: Cliff, Put Down That Hoagie! Tonight I came upon this old blog o' mine and realized- the problem i have right now is NO DIFFERENT than the one I had before transplant. And it gives a shout out to Dr. U. so, enjoy! Cystic Gal: Cliff, Put Down That Hoagie! You might be wondering, right about now - What does CG have to do with HH (Dr. Heathcliff Huxtible)? Well, I'll tell you. "Cliff," as we all. I star...

confessionscyster.blogspot.com confessionscyster.blogspot.com

Confessions of a Cyster: The Waiting Game

http://confessionscyster.blogspot.com/2013/02/the-waiting-game.html

Confessions of a Cyster. Be who you are and say what you feel because those who mind don't matter and those who matter don't mind." Dr. Seuss I am a 35 year old living with Cystic Fibrosis. I have had my ups and downs, but try my best to live a normal life. For now I am just living each day to the fullest, trying to juggle it all. These are my ramblings. What is Cystic Fibrosis? Confessions of a Cyster. Friday, February 22, 2013. My health is no better, but not tremendously worse. No huge complaints!

welcometojoshland.com welcometojoshland.com

Welcome to Joshland: 7/1/13 - 8/1/13

http://www.welcometojoshland.com/2013_07_01_archive.html

Friday, July 12, 2013. Fanning the Flames of Stupidity. Do YOU know what could've happened, Josh? The firefighter blurted out, his low voice reverberating in my head like a heavy bass line in a Motown classic. The words sent my head spinning. Did I really know what could've happened? I suppose I didn't, which was a rarity for me. WHAT ARE YOU DOING? LOOK AT YOUR SHIRTS! I thought to myself as they relayed the information so vital to the next part of the story. That's not what happened. Josh is going to y...

welcometojoshland.com welcometojoshland.com

Welcome to Joshland: 6/1/15 - 7/1/15

http://www.welcometojoshland.com/2015_06_01_archive.html

Saturday, June 20, 2015. Joshland Unfiltered Podcast: Episodes: 12 - Late Diagnosis of CF and 13 - Traveling with CF. There have been signs all your life that something was a little different about your health. Through a series of events and tests you finally discover a shocking truth: You’ve been living with a life-shortening genetic disorder known as cystic fibrosis since the day you were born! Https:/ www.facebook.com/. Check out Katharine's blog and follow her on Instagram and Twitter:. Here's how yo...

welcometojoshland.com welcometojoshland.com

Welcome to Joshland: 6/1/13 - 7/1/13

http://www.welcometojoshland.com/2013_06_01_archive.html

Saturday, June 15, 2013. What A Good Father Does. 8226; Is enamored with their child from the moment they are born. 8226; Sacrifices anything and everything to keep his family safe and secure. 8226; Makes time for his children and makes memories with them early and often. 8226; Makes up for the unfortunate moments when he cannot be there in person for his family and realizes when and if he needs to make changes in his life to be a greater presence in theirs. 8226; Always shows his children that he loves ...

cfblogroll.blogspot.com cfblogroll.blogspot.com

Cystic Fibrosis Blogroll: How To Get Your Blog Listed

http://cfblogroll.blogspot.com/p/how-to-get-your-blog-listed.html

Do you have cystic fibrosis (or a child or spouse with CF) and a blog? Add it to the CF Blogroll! How To Get Your Blog Listed. How To Get Your Blog Listed. If you have cystic fibrosis, or are the parent or spouse of a CFer, and you keep a blog—congratulations, you're eligible for membership on the CF Blogroll! The blogroll is a great way to drive new traffic to your blog and make new friends with CF in the process. Joining the blogroll is easy! Please help spread the word about the CF blogroll! If you're...

cfkitchen.wordpress.com cfkitchen.wordpress.com

Barbecue salmon and vegetables | CF Kitchen

https://cfkitchen.wordpress.com/2015/01/22/bbq-salmon-vegetables

Barbecue salmon and vegetables. January 22, 2015. The olive oil is added last, so you can vary how much goes on each plate (there’s really no such thing as ‘too much’ olive oil in this dish). If you want to increase the fat content further, top the vegetables with some feta. Yummy. 2 150g salmon fillets, skin on. 2 zucchini, cut in half lengthwise, and then into 5mm thick slices lengthwise. 6 spring onions, outermost layer removed. Good quality olive oil for drizzling. Juice of half a lemon. You are comm...

cfkitchen.wordpress.com cfkitchen.wordpress.com

Thai beef salad | CF Kitchen

https://cfkitchen.wordpress.com/2015/01/30/thai-beef-salad

January 30, 2015. The next timeI made it, I tried to add some extra fat into the recipe by mixing coconut milk powder into the dressing. It was so good I practically drank it. I’d also recommend the coconut milk version for anyone who doesn’t like too much chilli. 2 fresh red thai chillies, seeded and coarsely chopped. 1 stick lemongrass, coarsely chopped. 2/3 bunch fresh coriander. 1/3 cup lime juice. 1 tablespoon fish sauce. 1 tablespoon soy sauce. 2 tablespoons coconut milk powder. 400g been rump steak.

cfkitchen.wordpress.com cfkitchen.wordpress.com

Welcome back (and a meal plan) | CF Kitchen

https://cfkitchen.wordpress.com/2015/01/18/welcome-back-and-a-meal-plan

Welcome back (and a meal plan). January 18, 2015. Hello everyone, it’s been a long time since I posted. I was busy with work, then busy with all the Christmas lead-up stuff, and then I went away. But now that life has settled down, I’m going to start blogging again. I’ve also decided to make a few changes to the blog. I’m going to move beyond just writing recipes to write some posts about life with CF (and life in general). Meal plan – Summer plan 1. Snacks – hummus and carrot sticks. Dinner – Out. Enter...

worthhissalt.blogspot.com worthhissalt.blogspot.com

Worth His Salt: Strong

http://worthhissalt.blogspot.com/2014/04/strong.html

A family's journey through life with Cystic Fibrosis. Our Great Strides Team. Monday, April 7, 2014. It's 6:43 and the car is packed and ready to go. The kids will be up in fifteen minutes and in two hours we'll be on the road to one month in feeding therapy. Of course we can do this. Of course. And I'll blog it all. Something I hear a lot because of my writing and the people it reaches is how 'strong' I am. It's flattering, but always so very alien. I don't feel strong. Subscribe to: Post Comments (Atom).

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The Unknown Cystic | Leaving a digital record for my family & virtual friends

Leaving a digital record for my family and virtual friends. Skip to primary content. Skip to secondary content. The Unknown Cystic – Fighting CF with Words, Humor, and a Flail. The Universe slaps me. January 16, 2015. I tempted fate with my last post. And fate punched back. Hard. And there was blood. Sunday the Broncos lost; Monday I coughed up blood. What a surprise. Can I blame the Broncos for this? I’m a human sprinkler head. I have no complaints about life. It has given me more than most. Every time ...

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