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CysticLife Campaign Home

Every day cystic fibrosis (CF) patients spend hours bound to boring and isolating treatments,but you can help us change that! Patients have observed that exercise has been an effective treatment for them. They now want to study this to benefit their friends and larger community. Help me make this happen. #unleashus #cysticfibrosis

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Every day cystic fibrosis (CF) patients spend hours bound to boring and isolating treatments,but you can help us change that! Patients have observed that exercise has been an effective treatment for them. They now want to study this to benefit their friends and larger community. Help me make this happen. #unleashus #cysticfibrosis
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CysticLife Campaign Home | unleashus.org Reviews

https://unleashus.org

Every day cystic fibrosis (CF) patients spend hours bound to boring and isolating treatments,but you can help us change that! Patients have observed that exercise has been an effective treatment for them. They now want to study this to benefit their friends and larger community. Help me make this happen. #unleashus #cysticfibrosis

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unleashus.org unleashus.org
1

CysticLife DonorList

https://unleashus.org/web/cysticlife/donorlist

Your browser is blocking our popup. Please enable the popup to continue sharing the campaign. This is how you will be known to anybody else you choose to communicate with while using the Social Funds application. You may edit the name below. Thank you to the following Community and Friends. Crowdfunding Powered by Althea Health.

2

CysticLife Community Driven Research Fund

https://unleashus.org/cysticlife/project_history.php

CysticLife Community Driven Research Fund. CysticLife is proud to announce their partnership with the Sharktank Research Foundation (SRF). The Sharktank Research Foundation is a non-profit medical research organization dedicated to accelerating development of safer and more effective therapies for cystic fibrosis. The ERC Has Been Hard at Work! The ERC started developing the Specific Aims for the research and believe, based on patient feedback, that not only will we have an incredible opportunity before ...

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LINKS TO THIS WEBSITE

cysticlife.org cysticlife.org

About CysticLife

https://cysticlife.org/about-cysticlife.php

Invite a friend nevermind. What does this email say? Please verify that you are human and type the word "CysticLife" (Case Sensitive). In March 2009, Ronnie Sharpe, a CF patient, started to blog ( www.RunSickboyRun.com. About his life with CF. The goal of his blog? CysticLife.org is funded by paid marketing projects, a generous angel investor, and out of the pockets of family, friends and founders. It truly is a labor of love. Meet The CysticLife Team. Master of Mischief and Community Servant/Founder.

cysticlife.org cysticlife.org

Grant

https://cysticlife.org/grant_notice.php

Invite a friend nevermind. What does this email say? Please verify that you are human and type the word "CysticLife" (Case Sensitive). We are currently restructuring the CysticLife grant program to better serve the needs of the CF community. Please check back with us shortly to apply. Videos, reading materials and links. Non-members have the ability. To browse community pages. Members have full access. To all user-generated content. CF-related activity, medical,.

cysticlife.org cysticlife.org

What Is The CysticLife Community?

https://cysticlife.org/what-is-cysticlife.php

Invite a friend nevermind. What does this email say? Please verify that you are human and type the word "CysticLife" (Case Sensitive). What Is The CysticLife Community? CysticLife.org is a social network just for the cystic fibrosis community. This positive, uplifting web site is the central location for the CF community to share tips, questions, ideas, experiences and encouragement. Videos, reading materials and links. Non-members have the ability. To browse community pages. Members have full access.

cysticlife.org cysticlife.org

Link

https://cysticlife.org/cystic-fibrosis-websites.php

Invite a friend nevermind. What does this email say? Please verify that you are human and type the word "CysticLife" (Case Sensitive). Tips for CF Parents-. Provides tips and resources for parents of children with CF. Lisa C. Greene is the mom of two kids with CF, a parent coach and co- author with Foster Cline MD of the award-winning Parenting Children with Health Issues. Parenting Children With Health Issues-. Club CF is an online club for individuals with CF of various ages who are LIVING, BREATHING a...

cysticlife.org cysticlife.org

FAQs

https://cysticlife.org/FAQ.php

Invite a friend nevermind. What does this email say? Please verify that you are human and type the word "CysticLife" (Case Sensitive). Why should I put my personal information, like my PFTs, medicines used, and weight on my profile? If I have a profile, do other members of my family need one as well? Where can I find medical information? They have a plethora of medical information that has been generated by medical personnel and researchers. How do I search for people or topics? Or click Contact Us at th...

cysticlife.org cysticlife.org

CysticLife - A Cystic Fibrosis Community

https://cysticlife.org/index.php

Not a CysticLife member? Join our community today! Or just browse the blogs. What is the CysticLife community? Informational and educational videos, reading materials and links. Non-members have the ability to browse community pages. Members have full access to all user-generated content. See what else we're doing online. CF-related activity, medical, and educational grants.

cysticlife.org cysticlife.org

Watch

https://cysticlife.org/cystic-fibrosis-videos.php

Invite a friend nevermind. What does this email say? Please verify that you are human and type the word "CysticLife" (Case Sensitive). Videos, reading materials and links. Non-members have the ability. To browse community pages. Members have full access. To all user-generated content. CF-related activity, medical,. The content on CysticLife.org is not medical advice. Be sure to consult a medical professional when determining which course of treatment is best for you or your loved ones.

cysticlife.org cysticlife.org

Read

https://cysticlife.org/cystic-fibrosis-reading-materials.php

Invite a friend nevermind. What does this email say? Please verify that you are human and type the word "CysticLife" (Case Sensitive). Life After the Diagnosis-. This guide helps newly diagnosed parents through the months following their child’s diagnosis. Life After the Diagnosis. Is a part of the Living with CF. Want to help spread the word about CysticLife.org in your community? This handout has all the information people need. The Faces of CF-. Want to tell your friends and family who CF affects?

cysticlife.org cysticlife.org

Cystic Fibrosis Blogs

https://cysticlife.org/Blogs.php

Invite a friend nevermind. What does this email say? Please verify that you are human and type the word "CysticLife" (Case Sensitive). You must be a member. To view the author. Bull; 2 Comments. I have not been on here in a while but I just felt the need to log on an share some things! William up till a year ago was doing amazing. He had gained weight appreciate rate. His test we're all good considering he was just learning how to do the pfts. In the past year he has been hospital twic. To view the author.

cysticlife.org cysticlife.org

Cystic Fibrosis Questions

https://cysticlife.org/Questions.php

Invite a friend nevermind. What does this email say? Please verify that you are human and type the word "CysticLife" (Case Sensitive). You must be a member. To view the author. Mutations linked to Agent Orange? Bull; 0 Answers. You must be a member. To view the author. Learning more about double lung transplants. Bull; 0 Answers. You must be a member. To view the author. Bull; 3 Answers. Just curious who all has the Invacare Mobilaire nebulizer compressor, and how you like it? You must be a member. I lik...

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Your browser is blocking our popup. Please enable the popup to continue sharing the campaign. CysticLife Community Driven Research Fund. A Word from Ronnie Sharpe, Founder CysticLife. Cystic fibrosis (CF), a life-threatening, genetic disease that primarily affects the lungs and digestive system, was rearing its ugly head. Ldquo;Will I ever recover from this setback, or is this the beginning of the end? Rdquo; - Ashley Coleman. What are the current therapies in CF? Ashley started to question if she was ev...

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