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unofficially-nameless | unofficially-nameless.blogspot.com Reviews

https://unofficially-nameless.blogspot.com

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graciewhite.blogspot.com graciewhite.blogspot.com

saving grace: July 2013

http://graciewhite.blogspot.com/2013_07_01_archive.html

A Family Journal of Hurler Syndrome. Wednesday, July 31, 2013. So far, so good. Gracie has done very well so far. Monday was lab day, and thanks to the numbing cream, the blood draw was a breeze! We also got to see our BMT doc, Dr. Orchard. He was (of course) very impressed with Gracie and pronounced her "awesome! But of course, we knew that. The best part about getting the MRI done like a big shot was that we got to cancel our Tuesday morning Surgery time and slept in! Today is a busy day with lots of a...

graciewhite.blogspot.com graciewhite.blogspot.com

saving grace: March 2010

http://graciewhite.blogspot.com/2010_03_01_archive.html

A Family Journal of Hurler Syndrome. Thursday, March 25, 2010. A (late, late, late) checkup update! Dr Tolar did a short exam, pronounced that Gracie is his Hurler Poster Child, and proceeded to cheer Gracie on as she shared lots of her tricks and even showed him how to edit her chart on the clinic computer. :) Whoops. Anyway, it was a joyful appointment, all smiles and hugs and claps, and Miss Gracie *loved* all of the attention she received. More later, I promise. Labels: Chillin: Life In Minnesota.

danicaboni.blogspot.com danicaboni.blogspot.com

Danica Boni - An Adventure with Hurler's Syndrome: July 2009

http://danicaboni.blogspot.com/2009_07_01_archive.html

Danica Boni - An Adventure with Hurler's Syndrome. Join with us in our battle against the disorder affecting our daughter. Thursday, July 30, 2009. We can not say how much fun it was to visit with everyone in San Diego. We stalked Guy's show "Diners, Drive-Ins, and Dives" with PJ and it was a blast. Then we got a tour of the military base and saw subs, carriers, and lots of different aircraft. Can not even tell you how much fun all of us had with the first day. Pie Eye you are awesome! He had a stroke in...

danicaboni.blogspot.com danicaboni.blogspot.com

Danica Boni - An Adventure with Hurler's Syndrome: October 2008

http://danicaboni.blogspot.com/2008_10_01_archive.html

Danica Boni - An Adventure with Hurler's Syndrome. Join with us in our battle against the disorder affecting our daughter. Wednesday, October 29, 2008. Dani is loving daycare now. It seems like all the kids get along pretty well. She really loves Ms. Macy (her teacher). They are having a pajama party for Halloween. I am sure she will have a blast especially since they are ordering Pizza (her favorite). Monday, October 06, 2008. Here they are . Subscribe to: Posts (Atom). View my complete profile.

danicaboni.blogspot.com danicaboni.blogspot.com

Danica Boni - An Adventure with Hurler's Syndrome

http://danicaboni.blogspot.com/2010/08/gabe-ethan-and-dani-are-enjoying-their.html

Danica Boni - An Adventure with Hurler's Syndrome. Join with us in our battle against the disorder affecting our daughter. Monday, August 09, 2010. Gabe is starting 8th grade, Ethan 6th, and Dani is in her last year at Pre-School. Next year we will have every school covered. IT HAS BEEN SUCH A LONG TIME SINCE THERE HAS BEEN ANY UPDATES ;(. Subscribe to: Post Comments (Atom). View my complete profile. Gabe, Ethan, and Dani are enjoying . Natl Marrow Donor Program. Email The Boni Family.

danicaboni.blogspot.com danicaboni.blogspot.com

Danica Boni - An Adventure with Hurler's Syndrome: December 2008

http://danicaboni.blogspot.com/2008_12_01_archive.html

Danica Boni - An Adventure with Hurler's Syndrome. Join with us in our battle against the disorder affecting our daughter. Friday, December 12, 2008. Good and Bad News. IgG 319 (Normal 345-1213). For those non MPS families her diagnosis says she will slow down in all regards after the age of three. We are going to fight this as much as we can and hope that she is the best person she can be. And hope that the medical advances that have occurred the last ten to twenty years will help with that. We did do D...

sh0nuff.wordpress.com sh0nuff.wordpress.com

It’s a new year; lets try this again… – Shonuff

https://sh0nuff.wordpress.com/2010/01/14/its-a-new-year-lets-try-this-again

Ben’s attempt to get it out…. It’s a new year; lets try this again…. Look at that beard! To the World at large, well, read through the pages and you should be able to understand where we’re at. This post is all about short quick statuses to get everybody up to speed on what I’ve been up to. The kids continue to get bigger and bigger. God has blessed me with attractive kids… teenage and puberty are going to be great! Marissa still loves me, praise the Lord! I’ve got a beard! We’ve still got snow tha...

sh0nuff.wordpress.com sh0nuff.wordpress.com

35.6% through the Bible… – Shonuff

https://sh0nuff.wordpress.com/2010/02/10/35-6-through-the-bible

Ben’s attempt to get it out…. 356% through the Bible…. I’m now 35.6% finished with my most current attempt to read through the Bible. I’m in the middle of 2nd Chronicles. I’ve signed up for a plan to complete it in 90 days. In the past, and I’ve attempted it many times, I’d sign up for/commit to a plan to read through the entire Bible over a year. I was never able to make it through, and was hoping a shorter commitment would work out better. Things I’ve been thinking about lately:. February 10, 2010.

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In A Sentence .org. The best little site that helps you understand word usage with examples. Unofficially in a sentence. It was, at least. Added in iOS 5. Use ajar in a sentence. Use antiquarians in a sentence. Use appreciate in a sentence. Use demonically in a sentence. Use disembarrass in a sentence. Use goddamn in a sentence. Use logroll in a sentence. Use pathologic in a sentence. Use remainders in a sentence. Use trepanation in a sentence. Popular Words This Week. It was, at least unofficially.

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