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VACTERL Association Support Group » Home
VACTERL Association Support Group. New Support Group Website. We hope you like the new look and feel of the VACTERL Association Support Group website, take a look around, we are constantly updating the information here so if you don't find what your looking for, please check back again. If this is your first time here, you may well be frightened by the prospect of raising a child with VACTERL, well don't be, you are not alone. We like to use facebook and twitter to get to know all our VACTERL friends...
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Survivre heureux, un jour après l'autre. Atrésie de l’oesophage. Survivre heureux, éveil. Parcours de Mathys (fresque). Bientôt deux mois que Mathys n’a plus sa trachéotomie, c’est un changement énorme dans notre vie, et j’ai eu envie de faire un peu le point sur le parcours de…. Fermeture de la trachéotomie. Dans ce sixième séjour à Necker, nous avons enfin pu dire adieu à la trachéotomie! Ce fût long et cela a mis notre patience à l’épreuve, mais ça en valait la peine.…. La théorie des balles perdues.
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