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The Violet Foundation

Tuesday, July 3, 2012. Remembering Avery Lynn Canahuati (11/11/11-04/30/12). Do you remember your first kiss? Have you ever thrown the first pitch at a baseball game? Ever been featured on the news? Did you ever get a tattoo? Remember the first thing you built with your daddy? Receive a letter from the President? Have you built a fan base numbering in the millions? Have you ever raised hundreds of thousands of dollars for a cause? Avery was an instant hit. Everyone who visited the site fell in love w...

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The Violet Foundation | violetsway.blogspot.com Reviews
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Tuesday, July 3, 2012. Remembering Avery Lynn Canahuati (11/11/11-04/30/12). Do you remember your first kiss? Have you ever thrown the first pitch at a baseball game? Ever been featured on the news? Did you ever get a tattoo? Remember the first thing you built with your daddy? Receive a letter from the President? Have you built a fan base numbering in the millions? Have you ever raised hundreds of thousands of dollars for a cause? Avery was an instant hit. Everyone who visited the site fell in love w...
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The Violet Foundation | violetsway.blogspot.com Reviews

https://violetsway.blogspot.com

Tuesday, July 3, 2012. Remembering Avery Lynn Canahuati (11/11/11-04/30/12). Do you remember your first kiss? Have you ever thrown the first pitch at a baseball game? Ever been featured on the news? Did you ever get a tattoo? Remember the first thing you built with your daddy? Receive a letter from the President? Have you built a fan base numbering in the millions? Have you ever raised hundreds of thousands of dollars for a cause? Avery was an instant hit. Everyone who visited the site fell in love w...

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1

The Violet Foundation: A few faces of SMA!

http://violetsway.blogspot.com/2012/05/few-of-faces-of-sma.html

Tuesday, May 8, 2012. A few faces of SMA! Later this week I plan to post stories of several SMA patients and victims. For the time being I found a couple videos on http:/ www.youtube.com. That will grab your heart. Also remember that we are close to the cure but need to raise the remaining funding. Every dollar counts! Click here to donate to Dr. Kaspar's SMA Gene Therapy through Sophia's Cure which is a non-profit organization so all donations are tax deductible. Subscribe to: Post Comments (Atom).

2

The Violet Foundation: A Class Organization - Sugarland Skeeters

http://violetsway.blogspot.com/2012/05/class-organization-sugarland-skeeters.html

Wednesday, May 16, 2012. A Class Organization - Sugarland Skeeters. I would like for each of you to watch the following videos. The Sugarland Skeeters are a minor league baseball team representing Sugarland, Texas (A Suburb of Houston). The Skeeters first honored Avery on Friday April 27, 2012, just 3 days before her untimely passing, by letting her throw out the first pitch! Please watch the videos and for those with corporate or organizational influence please help raise support for SMA!

3

The Violet Foundation: Meet Estella (SMASH SMA)

http://violetsway.blogspot.com/2012/05/meet-estella-smash-sma.html

Friday, May 25, 2012. Meet Estella (SMASH SMA). Up until I came across the story of Avery Canahuati I, along with many of you, had no idea what SMA was. Avery helped educate so many people about this dreaded disease but there are a lot more Avery's out there. My next several posts will highlight some of Avery's friends both past and present. All this changed when at her 8 week checkup Estella was diagnosed with SMA Type I. From Estella's blog (http:/ livluna.com/profiles/blogs/estella-and-sma). Estella w...

4

The Violet Foundation: Who Know's SMA?

http://violetsway.blogspot.com/2012/05/who-knows-sma.html

Thursday, May 3, 2012. While scrolling through the headlines on www.khou.com. One afternoon I came across the story of Avery Lynn Canahuati. Avery was a cute little baby girl born just one day after my daughter Violet Grace. Possibly even in the same hospital in downtown Houston. This story really hit home for me especially having a daughter so close in age. And assisted their daughter in living a fuller life than those many times her age. SMA is the #1 genetic killer of children under the age of 2.

5

The Violet Foundation: July 2012

http://violetsway.blogspot.com/2012_07_01_archive.html

Tuesday, July 3, 2012. Remembering Avery Lynn Canahuati (11/11/11-04/30/12). Do you remember your first kiss? Have you ever thrown the first pitch at a baseball game? Ever been featured on the news? Did you ever get a tattoo? Remember the first thing you built with your daddy? Receive a letter from the President? Have you built a fan base numbering in the millions? Have you ever raised hundreds of thousands of dollars for a cause? Avery was an instant hit. Everyone who visited the site fell in love w...

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The Violet Foundation

Tuesday, July 3, 2012. Remembering Avery Lynn Canahuati (11/11/11-04/30/12). Do you remember your first kiss? Have you ever thrown the first pitch at a baseball game? Ever been featured on the news? Did you ever get a tattoo? Remember the first thing you built with your daddy? Receive a letter from the President? Have you built a fan base numbering in the millions? Have you ever raised hundreds of thousands of dollars for a cause? Avery was an instant hit. Everyone who visited the site fell in love w...

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