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Belangenvereniging Von Hippel Lindau. De Belangenvereniging Von Hippel-Lindau (VHL) richt zich op het verbeteren van het leven van patiënten, hun partners, kinderen en andere familieleden. VHL is een erfelijke ziekte waarbij in verschillende organen, soms tegelijkertijd, tumoren (gezwellen) kunnen ontstaan. Dit betreft o.a. de kleine hersenen, het ruggenmerg, de ogen, de nieren en de bijnieren. Betrokkenen zo volledig mogelijk te informeren over aspecten van het leven met het VHL syndroom. Deel te nemen ...
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