vpprn.org

Vasculitis Patient Powered Research Network

Vasculitis Patient-Powered Research Network. A partnership of the Vasculitis Clinical Research Consortium and the Vasculitis Foundation. Blueprint for Innovative Research. Hear from our Co-Principal Investigator, George Casey, about how the V-PPRN will transform vasculitis research. We are patients, researchers, clinicians, advocates, and family members all working to improve healthcare for patients with vasculitis through high-quality clinical research. Become part of our Research Join The Network!

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Vasculitis Patient Powered Research Network | vpprn.org Reviews

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Vasculitis Patient-Powered Research Network. A partnership of the Vasculitis Clinical Research Consortium and the Vasculitis Foundation. Blueprint for Innovative Research. Hear from our Co-Principal Investigator, George Casey, about how the V-PPRN will transform vasculitis research. We are patients, researchers, clinicians, advocates, and family members all working to improve healthcare for patients with vasculitis through high-quality clinical research. Become part of our Research Join The Network!

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Vasculitis Patient Powered Research Network | vpprn.org Reviews

https://vpprn.org

Vasculitis Patient-Powered Research Network. A partnership of the Vasculitis Clinical Research Consortium and the Vasculitis Foundation. Blueprint for Innovative Research. Hear from our Co-Principal Investigator, George Casey, about how the V-PPRN will transform vasculitis research. We are patients, researchers, clinicians, advocates, and family members all working to improve healthcare for patients with vasculitis through high-quality clinical research. Become part of our Research Join The Network!

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vpprn.org

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Expectations for Participants and the Network

http://www.vpprn.org/cms/WhatsInvolved

Vasculitis Patient-Powered Research Network. A partnership of the Vasculitis Clinical Research Consortium and the Vasculitis Foundation. Blueprint for Innovative Research. Expectations for Participants and the Network. What types of vasculitis are the V-PPRN currently studying? When you enroll in the V-PPRN, you can expect us to:. The V-PPRN will directly engage:. Patients, parents or legal guardians, and caregivers or family members of patients. The V-PPRN will respect your privacy by:. Patients are res...

2

VPPRN Supporters

http://www.vpprn.org/cms/Supporters

Vasculitis Patient-Powered Research Network. A partnership of the Vasculitis Clinical Research Consortium and the Vasculitis Foundation. Blueprint for Innovative Research. With support we can do more. Join the V-PPRN and become a vasculitis visionary! Blueprint for Innovative Research. Who can join the V-PPRN.

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Blueprint for Innovative Research

http://www.vpprn.org/cms/Blueprint

Vasculitis Patient-Powered Research Network. A partnership of the Vasculitis Clinical Research Consortium and the Vasculitis Foundation. Blueprint for Innovative Research. Blueprint for Innovative Research. What we are collecting. Why we are collecting data from patients. Blueprint for Innovative Research. All types of vasculitis are rare diseases. Making it difficult to find enough patients for research studies. Patients are spread out geographically. What we are collecting:. We will ask you basic quest...

4

Who We Are

http://www.vpprn.org/cms/WhoWeAre

Vasculitis Patient-Powered Research Network. A partnership of the Vasculitis Clinical Research Consortium and the Vasculitis Foundation. Blueprint for Innovative Research. What is the strength of the V-PPRN? We are a team of patients with vasculitis, caregivers, researchers, data specialists, and providers on a daily mission to share and learn from one another with a vision for the future in clinical vasculitis research. Our vision is to improve the health of vasculitis patients by developing early-diagn...

5

Consent

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Agreement to Participate in the Vasculitis Patient-Powered Research Network (V-PPRN). The V-PPRN seeks to. Transform how clinical research in vasculitis is conducted. When you join the V-PPRN, you will be asked to. You means you, your child or the person for whom you are providing care). Agree to English proficiency requirements. Tell us about yourself. Provide information about yourself, your diagnosis and treatment, and how vasculitis impacts your life. Agree to let us contact you. By joining the V-PPR...

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allianceforcryo.org

Cryoglobulinemia Brochure - Alliance for Cryoglobulinemia

http://allianceforcryo.org/patient-toolbox/cryoglobulinemia-brochure

Download [137.55 KB]. Find a Doctor who knows about Cryoglobulinemia. Tips to Stay Warm. RareConnect International Cryoglobulinemia Community. Like us on Facebook. The AFC relies heavily on donations to fund our efforts to Find A Cure For Cryo. Click Here to Donate. FREE - Sign Up Today for the The Vasculitis Foundation E-News, a monthly email blast that has information on the latest updates about vasculitis including doctors, clinics, new vasculitis studies, recruiting patients for research and much more.

allianceforcryo.org

Dr. Peter Merkel VPPRN - Alliance for Cryoglobulinemia

http://allianceforcryo.org/about-us/medical-advisors/dr-peter-merkel-vpprn

Dr Peter Merkel VPPRN. Dr Peter Merkel VPPRN. Dr Peter Merkel, University of Pennsylvania,. 8th Floor Penn Tower,. 3400 Spruce Street,. Philadelphia, PA 19104,. Principle Investigator of The Vasculitis Patient Powered Research Network. The VPPRN is a partnership of The Vasculitis Clinical Research Consortium and The Vasculitis Foundation. Http:/ allianceforcryo.org/wp-content/uploads/2014/11/V-PPRN-Research.mp4. Donate To Cryoglobulinemia Research. Dr Peter Merkel VPPRN. Alliance For Cryo Partners. I Won...

allianceforcryo.org

Skin Pictures (Viewer Discretion is Advised) - Alliance for Cryoglobulinemia

http://allianceforcryo.org/cryoglobulinemia/skin-pictures

Skin Pictures (Viewer Discretion is Advised). Skin Pictures (Viewer Discretion is Advised). Cryo Types & Associated Diseases. Medications Used to Treat Cryoglobulinemia. Skin Pictures (Viewer Discretion is Advised). Like us on Facebook. The AFC relies heavily on donations to fund our efforts to Find A Cure For Cryo. Click Here to Donate. Find a Doctor who knows about Cryoglobulinemia. Tips to Stay Warm. Email - mvennitti@allianceforcryo.org. Phone - (856) 448-4085. Twitter - @ mvennitti.

allianceforcryo.org

About Us - Alliance for Cryoglobulinemia

http://allianceforcryo.org/about-us

The Alliance For Cryoglobulinemia is an inclusive network of patients. Caregivers, family, medical professionals and Cryoglobulinemia Ambassadors. Dedicated to improving the quality of life for people with cryoglobulinemia. Our goal is to act as an international platform that links all efforts of cryoglobulinemia research, awareness, patient support and education. We utilize Medical Advisors. And a peer to peer support group. And The Vasculitis Clinical Research Consortium. The information contained on t...

allianceforcryo.org

Cryoglobulinemia Ambassadors/Volunteer - Alliance for Cryoglobulinemia

http://allianceforcryo.org/about-us/cryo-ambassadors

Become a Cryo Ambassador. If Cryoglobulinemia affects your life, please consider becoming a Cryo Ambassador by offering your comments, support, your “Living With Cryo” story or expertise in any field of interest that would benefit our Mission and Patients. If. The Alliance For Cryo is entirely supported and run by volunteers. Join us, in our mission to promote Cryoglobulinemia awareness, education, research and patient support. Glen Garder, M.S. Show airs at 7 pm Pacific and 10 pm Eastern. He shares ...

allianceforcryo.org

Cryo Types & Associated Diseases - Alliance for Cryoglobulinemia

http://allianceforcryo.org/cryoglobulinemia/cryo-types-associated-diseases

Cryo Types & Associated Diseases. Cryo Types & Associated Diseases. The video uses art, science and stop motion photography to explain Cryoglobulinemia, a rare type of vasculitis or blood vessel damage. The immunoglobulin response to cold is shown inside the blood vessel. Reviewed for medical accuracy by Dr. Paul Monach. Producer: Matt Hanlon, www.thoughtfulduck.com. Amy O’Hanlon, llustrator http:/ aeohanlon.carbonmade.com. Coordinator/Sponsor: Eileen Propp, Ph.D. www.proppsolutions.com. Single cryoglobu...

allianceforcryo.org

Vascuitis - Alliance for Cryoglobulinemia

http://allianceforcryo.org/vascuitis

Narrow, making it more difficult for blood to get through. Close off completely so that blood cannot pass through. Stretch and weaken the wall of the vessel causing collapse or bursting. Like us on Facebook. The AFC relies heavily on donations to fund our efforts to Find A Cure For Cryo. Click Here to Donate. Find a Doctor who knows about Cryoglobulinemia. Tips to Stay Warm. Email - mvennitti@allianceforcryo.org. Phone - (856) 448-4085. Twitter - @ mvennitti. Facebook - Marianne Vennitti.

rarediseasesnetwork.org

VCRC > Home

http://www.rarediseasesnetwork.org/vcrc

Vasculitis Patient-Powered Research Network. How VCRC Is Unique. VCRC Contact Registry Interest Form. Vasculitis Patient-Powered Research Network. How VCRC Is Unique. VCRC Contact Registry Interest Form. It is our goal to improve the care of patients with vasculitis. ". Unsure of a condition or looking to learn more? Find definitions and more helpful information below. Learn More About Vasculitis. Participate in clinical research studies for vasculitis. Find A Participating Clinical Center Near You!

insidemystory.com

PCORI Archives - Inside My Story

http://insidemystory.com/tag/pcori

Life with Multiple Sclerosis and More. Official Channels and Protocol. OhioHealth MS Clinic Education Programs. Valuing Advocacy and MS Patient ‘Experts’. Big Boobs and MS Blog Awards. Shingles belong on the roof, not my body! Cost Effectiveness in MS Treatments. Mary Jane and the MS Clinic. Subscribe to Inside My Story. Enter your email address to subscribe to this blog and receive notifications of new posts by email. Follow me on Twitter. We cannot load blog data at this time. IConquer MS needs you!

insidemystory.com

PPRN Archives - Inside My Story

http://insidemystory.com/tag/pprn

Life with Multiple Sclerosis and More. Official Channels and Protocol. OhioHealth MS Clinic Education Programs. Valuing Advocacy and MS Patient ‘Experts’. Big Boobs and MS Blog Awards. Shingles belong on the roof, not my body! Cost Effectiveness in MS Treatments. Mary Jane and the MS Clinic. Subscribe to Inside My Story. Enter your email address to subscribe to this blog and receive notifications of new posts by email. Follow me on Twitter. We cannot load blog data at this time. IConquer MS needs you!

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Vasculitis Patient Powered Research Network

Vasculitis Patient-Powered Research Network. A partnership of the Vasculitis Clinical Research Consortium and the Vasculitis Foundation. Blueprint for Innovative Research. Hear from our Co-Principal Investigator, George Casey, about how the V-PPRN will transform vasculitis research. We are patients, researchers, clinicians, advocates, and family members all working to improve healthcare for patients with vasculitis through high-quality clinical research. Become part of our Research Join The Network!

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