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von Willebrand Disease Prophylaxis Network (vWD PN): HomeInformation about von Willebrand Disease and clinical trials relating to that disease
http://www.vwd-prophy.com/
Information about von Willebrand Disease and clinical trials relating to that disease
http://www.vwd-prophy.com/
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von Willebrand Disease Prophylaxis Network (vWD PN): Home | vwd-prophy.com Reviews
https://vwd-prophy.com
Information about von Willebrand Disease and clinical trials relating to that disease
vwd-prophy.com
vWD PN: References
http://www.vwd-prophy.com/references.htm
Rodeghiero F, Castaman G, Dini E. Epidemiological investigation of the prevalence of von Willebrand’s disease. Blood 1987;69: 454-459. Federici, A. and P. Mannuccio Mannucci (2007). Management of inherited von Willebrand disease in 2007. Annals of Medicine 39(5): 346-358. Rodeghiero F, Castaman G. (2005) von Willebrand disease: epidemiology. In CA Lee, EE Berntorp and WK Hoots (Eds). Textbook of Hemophilia. Oxford: Blackwell, 2005: 265-271. Would you like more information? Funding for the VWD PN and the ...
vWD PN: Page 3
http://www.vwd-prophy.com/studyorg.htm
Study organization and leadership. Is provided by a Steering Committee. The American Thrombosis and Hemostasis Network (ATHN). And is officially recognized by the Von Willebrand Factor Scientific and Standardization Committee (SSC) of the International Society on Thrombosis and Haemostasis (ISTH). It is registered at www.ClinicalTrials.gov. Would you like more information? You are encouraged to contact Sharyne Donfield.
vWD PN: Page 2
http://www.vwd-prophy.com/indication.htm
Long-term prophylaxis in VWD; how should it be given and for whom? The von Willebrand Disease Prophylaxis Network (vWD PN), an international study group, was formed to investigate the role of prophylaxis in severe VWD [9]. VWD International Prophylaxis (VIP). Is an initiative of the vWD PN. The primary objectives of the VIP study are to:. Study the effect of prophylaxis on bleeding frequency. Establish optimal treatment regimens for:. These objectives are being met through a combination of.
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von Willebrand Disease Prophylaxis Network (vWD PN): Home
Von Willebrand Disease Prophylaxis Network (vWD PN). Erik A. von Willebrand was born in Vasa, Finland, in 1870 and died in 1949. Von Willebrand disease (VWD) is the most common inherited bleeding disorder [1]. And is caused by quantitative (types 1 and 3) or qualitative (types 2A, 2B, 2M, 2N) defects of von Willebrand factor (VWF) [2]. Replacement therapy to prevent bleeding, called prophylaxis, has been used to treat patients with VWD that is unresponsive to other treatment [6].
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