familyjourneyoffaith.blogspot.com
Journey of Faith: Special Exposure Wednesday: Reflecting
http://familyjourneyoffaith.blogspot.com/2009/06/special-exposure-wednesday-reflecting.html
Wednesday, June 17, 2009. Special Exposure Wednesday: Reflecting. This is a favorite of mine, from Will's third birthday. He was SO over picture taking. :). You can check out other photos of some pretty cool kids or join in the "Special Exposure Fun" by clicking on the button in my sidebar.}. Aw, sweet guy. Looks like he should have a thought bubble that says MOM! June 17, 2009 at 8:03:00 AM PDT. June 17, 2009 at 8:56:00 AM PDT. I love this picture! It has a great story. :). Wherever HE leads we'll go.
specialmommyx2.com
8 years ago
http://specialmommyx2.com/2015/05/21/8-years-ago
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. May 21, 2015. 2007: year of diagnosis. I wonder if our diagnosis day was not so close to her birthday if I would still remember it each year? Early on….sure, of course – 1st year, second year, 5th year maybe. But now eight years later – should it still come to mind? Should my heart still hurt? And eight years…how can that even be possible? Cry the entire year but it was tough. Most ...
specialmommyx2.com
Girl Power 2 Cure
http://specialmommyx2.com/category/girl-power-2-cure
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Girl Power 2 Cure. Girl Power 2 Cure. October 12, 2015. Let that sink in for a second. How much hope does this statement give you? For me it is overwhelming! Click to share on Facebook (Opens in new window). Click to share on Twitter (Opens in new window). Click to share on Google (Opens in new window). Click to email this to a friend (Opens in new window). Girl Power 2 Cure. And ei...
specialmommyx2.com
Uncategorized
http://specialmommyx2.com/category/uncategorized
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. A Day Off (no, out – well off too! October 11, 2015. I apologize for not posting yesterday but I had a day Off I mean out….well I was “off” too. Kristin and I took off for Southbend. Unfortunately our game tickets fell through but Notre Dame on game day is always a fun place to be. It is a HUGE bonus that our aunt lives there […]. Click to share on Facebook (Opens in new window).
specialmommyx2.com
Prom and an attempt at normalcy
http://specialmommyx2.com/2015/04/16/prom-and-an-attempt-at-normalcy
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Prom and an attempt at normalcy. Prom and an attempt at normalcy. April 16, 2015. Suddenly turning ten and thinking about eight years with Rett Syndrome seems insignificant. Prom Ugh. Prom. I can’t bring myself to think that far ahead. To be honest because I can’t – it hurts WAY TO MUCH. Here is what she wrote:. A letter to the mom in the dressing room next to me,. I love you so muc...
specialmommyx2.com
Life with Our Tubie – Changes
http://specialmommyx2.com/2015/06/06/life-with-tubie-changes
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Life with Our Tubie – Changes. Life with Our Tubie – Changes. June 6, 2015. And so the change begins…. Webpage is the official place to keep up with all of the changes as well as a timeline for these changes. I also love the Feeding Tube Awareness Foundation. Website for helpful information. For now the only “new” part I have is the bag – I use the adapter that com...Click to share ...
specialmommyx2.com
Autism Awareness Month
http://specialmommyx2.com/2015/04/06/autism-awareness-month
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. April 6, 2015. We are six days into Autism Awareness Month and I have not blogged. (I know – you are not shocked – I have been quite the blog slacker the past few months) Anyway, this is a tough one. I feel like I just “celebrated” World Down Syndrome Day – oh…because we did…just last month! 8221; I would not hesitate for even a second. Yes. Yes please. This might sound harsh. Ahhhh...
specialmommyx2.com
feeding
http://specialmommyx2.com/category/feeding
Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Life with Our Tubie – Changes. June 6, 2015. And so the change begins…. We received the “new” feeding pump bags this month. Those of you who have a kiddo with a feeding tube you know EXACTLY what I am talking about. For those of you who don’t, it seems that quite a few changes are coming down the road in terms of feeding […]. Click to share on Facebook (Opens in new window). Click t...
caseynconnor12409.blogspot.com
The 3rd 21st...: Hey! Guess what! I'm not perfect. And it's ok!
http://caseynconnor12409.blogspot.com/2013/04/hey-guess-what-im-not-perfect-and-its-ok.html
This blog is all about my sons Casey and Connor- identical twin boys who both have Down Syndrome, their sweet baby sister, Reagan, and the joys and struggles of our life as a family of 5! Tuesday, April 9, 2013. I'm not perfect. And it's ok! Then I felt selfish. And lazy. And like a failure. My goodness! I am really harsh with myself sometimes. And thus this post. I have learned the balancing act to some extent. Why do I do this to myself? Why do any of us? And then it hit me! You may be thinking "Wait!
caseynconnor12409.blogspot.com
The 3rd 21st...: March 2011
http://caseynconnor12409.blogspot.com/2011_03_01_archive.html
This blog is all about my sons Casey and Connor- identical twin boys who both have Down Syndrome, their sweet baby sister, Reagan, and the joys and struggles of our life as a family of 5! Tuesday, March 29, 2011. God knows. even when I don't. If there is one thing I have learned in my life it is that God has a plan. He does not clue me in to said plan and I just get to bump along and enjoy the ride. And enjoy it I do. Mostly. The boys are teething right now. Life is sweet when you have. Links to this post.
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